I have an email question from someone who has a child that was diagnosed with Reflex Sympathetic Dystrophy (RSD).
Years later they found out it was really Lyme.
Any and all information on how it relates to Lyme... and if anyone has been diagnosed this way would be appreciated.
Please respond.
TANKS BERRY MUSH!
Posted by Paisley (Member # 6502) on :
dear tincup,
i read many of your posts. they are informative and funny. thanks.
i have RSD and i also have lyme. i can't tell which i hate more.
please let me know what kind of info. you want. I have so much!!! regards paisley
Posted by Tincup (Member # 5829) on :
Thanks for the kind offer!
I will try to get back to this post later... hopefully tonight or tomorrow.
I DO need your information... and I have some questions... but I am herxing ... and have zip for energy right now.
Otay?
Posted by GiGi (Member # 259) on :
Paisley, would you please describe the symptoms of RSD and how you are being treated.
Thank you so much.
Posted by frustratedNJ (Member # 6603) on :
The only information that I can offer is that after I was diagnosed with lyme's, I wasn't getting any better. My symptoms obviously started getting worse and were increasing. One reason being that I wasn't being treated the right way. Unfortunately, symptoms of RSD tend to mimic those of Lyme. They thought I was suffering with RSD b/c I was in a bad car accident, and with RSD it is brought upon by some form of trauma. Come to findo ut now that the same thing happens with Lyme,,,as in my case. I had to go to another neurologist and have a few tests done to see the reactivity of my muscles. Because I showed no signs of RSD through some tests, I was not diagnosed, but for a while that was what they thought I had, even though I had been diagnosed with Lyme. What I have figured out, as with so many other people, that drs aren't aware that Lyme can affect someone the way is does. So they find anything else to explain it. I hope I have helped some. BEST OF LUCK!!! My prayers are with her daughter Lisa
Posted by bg (Member # 46416) on :
Tincup, here is a link from the pax tv DOC message board after they aired a show on RSD:
Hope this helps too. I believe I looked before in the 300 other medical conditions that lyme mimics, and RSD, reflex... was NOT listed. They had a RSD but had another total meaning! Betty, Iowa
Posted by 2bostons (Member # 6249) on :
Tincup..I would love to provide any info on RSD..I know that there is a good website..i used to refer to it all the time..i think if you type in rsds.org you will find the site..i had rsd a few years ago, but it wasn't related to the lyme..the lyme came after that..but i was treated successfully for the RSD..i hope i have the same success with LD..
Posted by BJG (Member # 4723) on :
Hey, I was diagnosed with RSD by a doc at a pain clinic in Wis. The symtoms of RSD are similar to Lyme. There is a difference tho. RSD is progressive with more consistancy than Lyme. It does not shift and move as readily as lyme. I was treated with a machine from Dynatron,it sounds familair to the rife machine. Electobes are use to redirect the sympathetic nervous system. I was there 2 weeks. During that time I saw people with RSD get better. I did not get better.I was diagnosed with Lyme 4 months later. Please contact me if you need more info. peace, BJG
Posted by Paisley (Member # 6502) on :
edited
[This message has been edited by Paisley (edited 09 February 2005).]
Posted by Tincup (Member # 5829) on :
TANKS dear ones.. you de bestest!
I am sending this to the person who asked me originally... and I KNOW it will be helpful!
Actually.. I am learning about it now.. from you.. and I do have some questions.
BUT... In a rush... gotta run.
Will check back tonight.
We had lightning and thunder last night.. so I couldn't come check in and chat.
Please keep the info coming and I will respond as soon as I have a few minutes... ok?
Thanks again for taking time to help this person in need.
And ME!!!
Posted by FightFireWithWater (Member # 5781) on :
Tincup,
The dx of RSD is not definitive. The symptoms can mimic several conditions. I know of patient who received this dx (as one of several) who believes that resting your hands (though not complete immobilitiy), keeping them warm, and not carrying heavy objects including a heavy shoulder bag help a lot. She is doing pretty well now as long as she doesn't overuse her hands.
This is a dx that must be taken very seriously or the pain can get totally out of control.
Best of wishes to the person who suffers from this.
... and have zip for energy right now.