LymeNet Flash: questions

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Posted by heiwalove (Member # 6467) on :

ok, i have a few questions. instead of creating a bunch of separate posts, i thought i'd consolidate and put them all here.

1) i know quest certainly isn't the best lab for lyme. however, all my bands from quest were non-reactive, both igg and igm. and of course a negative elisa. has anyone else had this experience, and still had lyme? or would at least one band most likely appear reactive?

2) where and how do you get a cd-57 test (immune function)?

3) i believe i asked this before, but i thought i'd ask it again: were any of your blood tests pre-lyme, indicative of something wrong? anything at all?

thanks.

Posted by heiwalove (Member # 6467) on :

up, for at least one of the questions!

Posted by heiwalove (Member # 6467) on :

up?? help??

Posted by willbeatlyme (Member # 4696) on :

1) I never had any bands in Quest labwork....did get bands at Igenex (to be fair I have to say...Igenex test was after one month on abx)

2) no idea about this one

3) no everything looked just perfect....

good luck in searching for answers

Posted by Lisianthus (Member # 6631) on :

I had alot of preliminary bloodwork from my HMO Dr., everything was neg. All my bloodwork was normal. He said I didn't have Lyme. When I had tests done through Igenex and Stoney Brook, I was positive/equiv. for about 9 bands.

I know that Igenex tests are more senstive than Quest labs. That may be the reason.

Don't know if that helps you.

Good luck,
Lisi

Posted by lymelady (Member # 6207) on :

i was totally negative on quest test except for one IGM 23, a lot of equivocals on first two Igenex tests adding up to negative (so they said) on both tests. first LLMD told me I DID NOT have lyme. I have positive bowen test but he ignored that.

Went to J. Clinic which put me on biaxin for 11 days, took urine dot blot (Igenex) and finally got postive lab work on second of three samples. Babesia showed up in lab work at clinic first time around.

I have whopping neurolyme, chronic five year person and antibiotics make me sick as dog. Better than blood work for finding about lyme is:
1.clinical diagnosis
2.taking antibiotics which, if you have it, will most likely send you rapidly (for me, three days) into a herx. Normal people take antibiotics and do not herx.

so if you take meds and get sick, you probably (but not all the time) have lyme.

Hope this helps
Regards
Lymelady

Posted by lymeinhell (Member # 4622) on :

I had two 'negative' western blots from Quest (actually, there were reactives on the IgM, I come to find out, and lots of equivocals). Also 2 negative PCRS.

I had a positive IgG from IgeneX (CDC positive no less), yet blood drawn on the same day sent to MDL turned up 'negative' (they don't report the bands - results just said negative).

Stryker Panel - done by LabCorps. My LLMD has run it 3 times so far on me and did the first one the first day she saw me. Low CD57 is classic marker for Lyme (which she would have used to help diagnose had I gotten a negative or equivocal test from IgeneX).

I had CBC's and other tests up the ying yang before the Lyme diagnosis - I even had a nuclear stress test done. The only thing that kept coming up was markers for an infection - I had the sinus infection from heck that would come back the second they took me off antibiotics.

The demylianated nerve in my eye (which showed up in an eye exam - was seeing spots and floating things) should have been a dead giveaway. Actually it was. When I looked it up on the internet, yet again I was brought back to Lyme.

Sounds like you're searching for reasons not to see an LLMD - am I right? Do yourself a HUGE favor - Beg, borrow, steal - just get to one. You may just save your life.

------------------
Julie G.
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lymeinhell