Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Conflicts in Lyme
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What Is Herxing?
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( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH
Marnies......... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1
Part1 Long over Due
Part2
Part3
Part4
Part5
Part6
Part7
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If the links treepatrol gave you don't cover everything, then just ask.
Go to www.ilads.org & read "Basic Info".
Print "Diag Hints & Treat Guidelines..." at www.ilads.org/burrascano_1102.html
It's 32 pages of excellent info on LD & other Tick-Borne Diseases (TBDs).
Dr B recommends that antibiotics be given for 1 month after all symptoms have disappeared.
Some are now saying continue treatment until 2 or 3 months of no symptoms.
This is a complicated bacteria to deal with.
Sounds as if your hubby is still sick.
Do you know how much treatment he had for late stage Lyme a couple years ago?
There's a good chance that he didn't receive adequate treatment and/or he has other TBDs like Babesiosis, Ehrlichiosis, Bartonella.
Your symptoms sound like LD, but many of them could also be symptoms of TBDs, especially Babesiosis.
My recommendation would be for both of you to be evaluated by a Lyme Literate Med Dr (LLMD) - ASAP.
Go to "Seeking a Dr" here on LymeNet & put your location in the title.
Info will be e-mailed to you.
Info about drs is not given here unless they have given permission.
How long do you think you've had Lyme?
How old are your children?
Again, welcome to the LymeNet Family.
Ask as many questions as you need to.
I'm probably the last one on here that should be giving or offering advice, but it has helped me to sign on here almost every day and read other people's questions and answers. Even though I've never met anyone from here and probably never will, I feel a lot less "alone" now that I've found this community.
Please let us know how things progress.
I am a nursing student also. What an outrage! Especially because I have seen nursing students who obvously have a drinking problem continue.
I have been and it has helped. I now have an appt. with the doc who was treating me for the MRSA on the 27th. My pcp gave me the standard 100 mg doxy bid.
Kara,
You're probably right but I really feel I need the break right now. I'm too tired to fight. I have a sick husband-a gastric bypass disaster-and a 15 year old unstable bipolar daughter. Do you think I should still say something even though I could use the time off?
I understand how you feel. It is so overwhelming..and not a simple situation. There are very helpful people here, caring and compassionate.
I have spent the last week reading everything I can about this, however I can only tell people what I see in my mother's progress.(she has also been diagnosed with LD and co-infections)
About 3 months ago she was diagnosed with ALS, before that it was MS for 20 years. After watching her choke while she ate, not being able to walk, not speaking properly (she just turned 50 yrs old in Sept.) my sister and I decided that we should start talking about 'the end of days' issues for her.
We both had the 'feeling' just by looking at her that she would not be here for long.
I am in nursing (palliative care) so I have seen this before.
She found a Dr. who started treatment and although she is not 'cured', she is soooo much better. She is alive and happy. Walking and talking are better.
Although there is much contraversy in this take what you can from the info. I wish you and yours all the best. Take care.
[This message has been edited by Sweetrhapsody (edited 04 January 2005).]
So sorry to hear of your symptoms but rest assured............it is normal with lyme disease and herxheimer reactions to antibiotics. The toxins make symptoms worse as the bacteria die.
Aword od concern regarding your daughter.......PLEASE have your daughter tested tru IGENEX LABS for Lyme Disease and all co-infections ESPECIALLY Bartonella.
Bartonella can go straight to the brain and cause symptoms of bi polar disorder. Did you notice that your daughter got worse symptoms a few days before Christmas??Combative, over emotional, very easy to upset?? My daughter. also 15 called me names I never realized she knew.Ran outsie screaming hiw she hatedme. Thenext dayshe was a sweetangel again.
The full moon affects lyme disease patients and the co-infenction Bartonella will be worse prior to the full moon or menses asthat is when the Bb bacteria muliply. Once a month, Bb multiply as this is a slow growing bacteria and also why it takes an average of 4 years to treat lyme disease that was not immediately discovered and treated.
You all will have a LONG and Bumpy road to recovery. First you need a LLMD and proper Lyme Testing and Co infection testing thru Igenex or MDL Labs.
aunty
I spent a good week just reading, and studying all the info these wonderful people put out. It's helped me immensely in getting adequate treatment, and knowledge for my lyme infected son.
The LLMD is the most important step. Educating yourself is second. Good luck, and I'm new to this too, so I share your apprehension, but these folks sure make it a lot easier.