You could post it here or email me at

[email protected] I don't have a lot of strength right now to sit at the computer too long.

but would like to hear something good if that's possible......the zman

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Just last week I was going to post with the heading "Oh Yeah, Ketek Rocks!"

I have been doing so much better on Ketek. I've been taking it for 2 months now. I take 2 pills once a day. I can't remember if they're 300mg each or 400mg each.

I had my LLMD appointment last Monday (Dec 27) and we took away Ceftin 500mg bid and added Minocycline 100mg bid.

I had actually stopped the Ceftin 2 weeks before my appointment because it was making me really tired. About 1/2 hour after taking it, I felt like I had to sleep no matter where I was or what I was doing.

I've now taken 3 minocyclines. The first 2 were in one day and I got really dizzy. I also had a spell of 4 days of dizziness on Ketek and Ceftin about a month ago. Stopped the mino and just started again last night. I'm going to take one a day for a bit and ramp up.

While I was feeling good, my dog wanted to run around my apartment complex and I was able to keep up the whole way. I got all my holiday shopping done with no problem. I was able to keep track of what needed to be done really well. I drove up and back to my mountain property in one day (5 hours).

Right now, I'm herxing again. I've had a head and neck ache for about 3 days plus a lot of fatigue. I may be getting a cold/flu type illness but I'm not sure. I've found headaches are very common with Ketek. Fortunately, ibuprofen takes care of it.

I've been ill for many years and have been in a constant degraded state. I only had 3 good spells in 2.5 years of treatment. I've tested + for Bb, HME, Babs, Bart and M. Fermentins.

Prior to starting Ketek, I was treated 6 months for babesia with Mepron and Zithromax. I can't say if that is the basis of my feeling better or not

When I started Ketek, I felt bad for about 3 weeks then I had a week of feeling good. After that, 2 weeks bad and then 3 weeks good. That puts me to now where I'm on day 5 or 6 of feeling bad again. I consider my current situation excellent.

So, best of luck to you. I'm assuming that you will be starting or have started Ketek. Let's hope you have good results too.

Take care,

Corgilla
 

I would like to know if someone else have the same foamy reaction.
 

It also uncovered two untreated co-infections, by reducing Lyme symptoms to the point where I could tell them apart.
 

[This message has been edited by WildCondor (edited 08 January 2005).]
 

I stopped taking Augmentin along with the Ketek about 3 weeks ago. My blood tests showed an increase in my pancreatic enzymes, so my LLMD wanted to reduce my med load.

With Ketek as my only abx, I have no visible signs of yeast. All thrush is gone. I'm on diflucan and probiotics, but still had thrush until I stopped the Augmentin.

I added Artemisinin about a month ago. That definitely added lots of vertigo and lightheadedness, which my LLMD takes as signs of babs. My LLMD said that some doctors think the Ketek may actually kill babesia. I'm kind of her guinea pig on that - my babs regiment is Artemisinin, Ketek and Plaquenil.

Don't know if WildCondor will be back but if so, are you taking Ketek with food? I've also seen it suggested to take 400mg in am and 400mg in pm.

I really wanted to add that I've had graying hair since I was 32ish. Lately, my gray hair has been disappearing.

I thought that was a tremendous step in the right direction.

Take care,

Corgilla
 

I may have to take this stuff only in the PM.

[This message has been edited by Foggy (edited 06 January 2005).]
 

Seems there is little info about this drug on the web. Even at ketek.com (under construction.)

Are there any reports on the long-term effects of this drug yet (i.e., >1y after termination)?

Michael

[This message has been edited by cmichaelo (edited 06 January 2005).]
 

I had a herx immediately with the Ketek combination...but it's hard to say if it was the Ketek or the Rocephin as I started them on the same day.

Now I'm on my third week of Ketek and I'm having more good days than bad. I've had Lyme for 2 years (that I know of) and mostly have joint/muscle pain, brain fog, headaches and yeast issues.

Ketek seems to be gentler than the Flagyl as far as gastro stuff.

Not to say that it won't work for someone else tho....
cootiegirl
 

I'm on my second month. Haven't had a noticeable herx or significant improvement yet.

(I'm also on rocephin...month four...and while I did herx at the beginning, no real improvement.)

Not sure what you can tell from my experience. I've been on lots of different abx and have proven to be 'treatment resistant' so far. I think my LLMD may pursue babs next.

monkeyshines
 

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Lyme Disease Help
http://www.wildcondor.com
 

She takes it at night w/ dinner. She's reported no tummy probs w/ it at all but, her fatigue is still quite bad.

Prior to Ketek, she'd been on Mino/Zith for about 13 months and before that, Zith alone for 12 months.

She also takes a prenatal vitamin, ADP (Oil of Oregano), Acidophilus, and anti-inflammatories as needed. Since beginning school, her reactive airway began acting up and she's using the inhaler once a day.

Upon beginning Ketek - we always start things very slowly, she developed a cough. I reported it to the company as it wasn't a common side effect. After about 6 weeks on the med, the cough subsided. We (Dr. J, our PCP, and us) feel it was related to the med.

On a positive note, she seems much better able to think. Her cognitive problems have subsided somewhat and her grades are maintaining - even w/ her fatigue and CP which also contribute to her probs!

Now, today she isn't doing so well and stayed home from school complaining of pains in her arms and legs. Not sure but, could be soreness from the activity associated w/ returning to school Wednesday as she basically slept thru her whole Christmas break!!

Hope she feels better soon. We see Dr. J in March - so far, I think Ketek has been good in our situation. Perhaps, it needs a chaser tho!!

Take care and good luck,
Sherry

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I can't believe some docs are still prescribing anti-inflams to any of we lymies...I at least in my case have had nothing but a continuance or worseening of my symptoms whenever given any type of anti inflam.....

well good luck folks....let's hope there is a positive outcome with this cell entering antibiotic...I wouldn't want to feel this lousey for nothing.........zman