LymeNet Flash: Looking for someone to interview that has been diagnosed with lyme disease

This is topic Looking for someone to interview that has been diagnosed with lyme disease in forum Medical Questions at LymeNet Flash.

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Posted by Reecester (Member # 6726) on :

Looking for someone who has been diagnosed with lyme disease. I am writing an empathy paper on lyme disease and would like to ask a few questions regarding the effect lyme disease has had on you.

I am a nursing student in nebraska. Each student was diagnosed with a disease and had to research the disease and write an empathy paper. The following are a few questions?

1.When were you first diagnosed?
2.What were your signs and symptoms?
3.What types of diagnostic tests did they perform to diagnose you?
4.What types of medications and treatments have you tried for your disease?
5.Hows has this disease affected your life?
6.How have you learned to live with your disease?

IF their is any other information that would be helpful to me please write those too... IT IS GREATTLY APPRECIATED !!!!!!

[This message has been edited by Reecester (edited 04 January 2005).]

Posted by zipzip (Member # 6226) on :

what is the paper for?

list your question outline.

[This message has been edited by zipzip (edited 04 January 2005).]

Posted by Reecester (Member # 6726) on :

[This message has been edited by Reecester (edited 04 January 2005).]

Posted by riversinger (Member # 4851) on :

You might try checking with some of the support groups. I looked to see if there is one in Nebraska, but no luck.

People might feel more comfortable being interviewed if they had more contact than via an anonymous internet connection. There are support groups in Iowa and Kansas that might be able to hook you up.

Just go to the support group link at the top left.

In the meantime, I'm sure you could learn a lot by browsing posts. One thing you'll find is that many have the illness for years before being diagnosed, and that treatment can be very difficult.

It is also a very politically controversial illness, so some may hesitate to answer your questions if they don't know who you are.

Try reading Camp A and Camp B.

Or watching California Senate Hearing on Lyme Disease
Scroll down to February 25, select Health and Human Services Committee, Lyme Disease. Scroll past the first ten minutes or so, it is blank. Amy Tan (author and patient), Ron Keith (Marin/Sonoma Vector Control and patient), Dr. Steven Harris LLMD, Dr. Raphael Stricker, LLMD, and others testify.

Good luck with your project.

------------------
Sonoma County Lyme Support
[email protected]

Posted by bg (Member # 46416) on :

Did I read this correctly that YOU have lyme disease so were assigned your illness?

Also printing off Treepatrol's NEWBIE LINKS.
Testing: read the WESTERN BLOT!
Good luck on your interviews.
Betty G., Iowa

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Posted by kam (Member # 3410) on :

Riversongs suggestion about listening to the hearing in Sacramento is a good one.

Amy Tan's presentation will just about answer all your questions for your report.

I know you most likely need a one on one with someone but listen to what she has to say and then see if you can't work something out.

Although the presentation is in CA, the information is good anywhere and the stories are the same.

I don't think you will find such a wealth of information in one place.

Posted by kam (Member # 3410) on :

I also have heard rumors that ILADS will train you if you are interested in specializing in lyme after receiving your NP or a MD.

Posted by Kara Tyson (Member # 939) on :

I have a story for you. I have emailed you directly.

Posted by Kara Tyson (Member # 939) on :

Betty,

I dont think she is saying she has Lyme.

They assign you certain diseases. This last semester I was assigned Myasthenia Gravis.

Posted by tickedntx (Member # 5660) on :

Have responded by email. Please let me know if you have any more questions.

Posted by bg (Member # 46416) on :

Kara, thanks for clarificaiton that she does not have lyme. Betty G.

I don't understand too that when I copy Treepatrol's NEWBIE LINKS that the blue does not stay there, but goes black, and can't click on it. Just go to Treepatrol's actual post here on medical questions.

Posted by believe3 (Member # 6216) on :

You can interview me. You can also click on my profile to get my email.

I feel that emailing would be easier.

I think it is great that other nursing students can hear what lyme disease is all about. It will give them knowledge and empathy for their future patients.

------------------
~Merrie

Posted by CharV (Member # 5849) on :

Here's another suggestion. Pick up a copy of the book "Coping With Lyme Disease - 2nd Edition" by Denise Lang. This is the best book I've read to date and it really speaks to the impact of Lyme on it's victims. It speaks to all levels in very easy to understand terms (medical, physical, mental, financial, impact on relationships, etc...)

Feel free to email me if you want to. Best of luck with your project.