Thanks and kind regards
Jeannine
 

Tis late.. quick note.

Malerone has been used by many.. seems to work well from what I have seen. I haven't used it myself.. but others say it helps.

I have had breathing problems with babesiosis. Treatment with mepron helped me a lot.

Hope that helps?

Off to bed for meeeeeeeeeeeeeeeee...

Good luck

quote:

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Originally posted by jocon63:
Hi All, Jeannie here again.. My LLMD wants me to start Malarone for my breathing problems. I was suppose to start it 4 weeks ago and hesitated due to just starting the Rocephin. I've been on the Rocephin for 4 weeeks now and have notice some improvements neurologically. My breathing is still the worst.. Day or Night, even when I'm sleep I have rapid breating like I'm gasping for air. Been the pulmanary route and of course they see no problems other than the fact I flunked the breathing test for an unknown reason. The Dr wants me to start of with 4 tablets of Malorane the first day, 3 the second and then one a day. He thinks I have a co-infection...Does anyone have any good things to report on this drug? Does anyone else have breathing problems, worse when it is that time of the month?. I wish of all my symptoms this one would go away, it is driving me nuts.......

Thanks and kind regards
Jeannine

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Don't take this for more than it is, it's only my experience, but both drugs seemed to temporarily increase my breathing difficulties. They're different from what you describe, I just feel I can't get enough air when I'm lying down flat on my back.

My LLMD seems to feel that this is to be expected, as part of the die off. You hear people say you don't herx from babesia die-off. It may not be the conventional herx associated with gram-neg bacteria endotoxins, but something happens when these protozoan blood parasites die, that seems to register in my respiratory track and also trigger migraine.

You might want to ask your doc about it, I'd be interested in hearing what he or she has to say. You definitely want to take my experience with a grain of salt, I'm extremely ill with late-diagnosed Lyme and figuring out what is causing what is just about impossible. My respiratory troubles could turn out to have nothing to do with Malarone at all.

On the upside, after the first week I actually felt better on it, energy and alertness-wise. Again, cause-and-effect are shaky, but that's how it seems.
 

Jeannine...I know what you mean about the breathing thing. Am in a relapse with babesiosis and it is back again. I don't like it one bit!

I did the malarone and it helped and I tolerated it well. However, it was the Mepron that really made me feel better and stopped the breathing thing. Am back on the Mepron again.

I think the mepron is stronger than the malarone. But you may do well on the malarone...everyone is different.

Good luck!
 

I've taken malarone for babesia, but it didn't do much. I found better results with clindamycin/quinine.

I herxed from here to Mars and back on clind/Q. You can't tell ME that you don't herx on babesia meds!

Hope your breathing problems let up soon. Babesia is hard to clear.

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oops!
Lymetutu