my symptoms started back in july, numbness, tingling , doc said i was classic acute lyme . i still drive and work. but hand has been stiff since july . neck is stiff tonite . i have a erlichiosis also and am taking minocycline. i have been on oral abx's since july . i had a relapse in december after trying to get off meds for 10 days . it took a month to recover. i feel like going to iv's may penetrate deeper into my brain and central nervous system and give me a better shot at kicking lyme . in other words i started off with a few symptoms but in 6 months time the disease has progressed thru my body . i feel like i am running out of time to kick this disease, thats why i am considering to going to IV's. i would like to kick this disease out of my body in the next 6 months. has anyone known anyone who has actually kicked lyme disease and gotten off antibiotics? jake
Posted by Beverly (Member # 1271) on :
Hi goldenjake,
I'm sorry you had a relapse in December. It can time to get rid of lyme..or go into a remission. I do know of people who are off abx, some of them do not post here anymore.
Hang in there and good luck to you.
Posted by Lymetoo (Member # 743) on :
Sure, it happens all the time! but don't expect too much too soon. You need to continue the meds until you are symptom-FREE for at least two months.
IV may be what you need, but orals can get you well also. I've had Lyme for 46 yrs and wasn't dxd until 4 1/2 yrs ago. I was treated with orals only and have been off abx since November.
I had lyme, babs and bartonella since 1991. treated for 2 ands 1/2 years with orals only....plus acupuncture , and herbs, and cranialsacral work...
I feel i'm about 95% better now...it can be done...6 months isn't that long ...
hang in there..it will get better. find a good lllmd and make sure to treat the coinfections...stiff neck, sounds like babs to me????
Lisa
Posted by liz28 on :
Hi, just seconding the "co-infections" theory. I sat around like a dope for four years on the wrong abx treatments, including seven months on IV rocephin which were useless while I had babesia. With the addition of babesia treatment, and now bartonella treatment, as well as the use of ketek in place of macrolides, the whole thing is changing overnight.
Also, I am finding that LLMDs, from the best to the worst, get battle fatigue with patients after about six months. If I had to do this experience over, I would not have bothered with IV (although it may be right for you) and would have immediately done the strongest possible abx combinations.
oops! 