LymeNet Flash: Do you know a Medical Doctor who has Lyme?

This is topic Do you know a Medical Doctor who has Lyme? in forum Medical Questions at LymeNet Flash.

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Posted by cmichaelo (Member # 5873) on :

I'm curious to find out if there are any Medical Doctors who have Lyme disease.

Do you know one?

Are there any MD Lymies on LymeNet?

It's OK to just say that you know one. I'm not looking to find out who they are.

Of course, if you are an MD with Lyme and don't mind letting us know, by all means reveal yourself...

Michael

Posted by riversinger (Member # 4851) on :

I know of two, and one who's son had Lyme.

Posted by robi (Member # 5547) on :

I know one.

robi

Posted by caat (Member # 2321) on :

Not exactly in line with what you're asking, but yes, I'm almost certain one of my old docs has lyme but refuses to think about it or take the tests. She has most of the symptoms I have and she lives in a thickly wooded area near a river which is well known for lyme.

Her short term memory is even worse than mine and she is more distracted. Watching her fill out forms was very painful.

She is very pleasant but didn't really do anything for me. ....Or herself.

I like her personally, but being a patient of hers is a very scarey proposition. I'm not sure she should be practicing especially as she is not being treated and will probley get worse.

Posted by needleseye (Member # 6037) on :

I know one who spoke at an event I was at recently.

He had retired after thirty years as an oncologist. Then he became very ill. Was diagnosed with Lou Gerhigs disease. Was so disabled his wife had to turn him over in bed. Was told to prepare to die.

Then someone suggested Lyme. He was tested a number of times and came up negative. But finally got some test (I can't remember what) that showed he did have Lyme.

He started heavy dose of IV Rocephin and made huge improvements. He says he's back to 80% of his old self.

He and another MD friend of his want to help other lyme patients. They are opening a very low key practice and want to do research.

Does that story help you any?

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Wishing you fast healing and good health!

Posted by beachcomber (Member # 5320) on :

The MD who diagnosed me was being treated for late stage Lyme at the time.

Posted by cmichaelo (Member # 5873) on :

Does anyone know how many MDs there are in the US?

And how many are there in Europe?

caat, you like taking risks or something???

eye, that's a superinteresting story. Where's the doc opening up his practice?

And what kind of research? Got a website?

Michael

Posted by Lymetoo (Member # 743) on :

My new GP has Lyme. I chose him in part because he would at least understand my problem! That way if I ever end up in the hospital i won't have to worry so much about DUCKS!

There's a former LLMD in Texas who has Lyme.

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oops!
Lymetutu

Posted by JillF (Member # 5553) on :

My LLMD had Lyme for several years, and was misdiagnosed, before finding out it was Lyme.

He almost had to take an early retirement.

Posted by Cheryl (Member # 75) on :

A LOT of LLMDs either have/had the disease themselves or have a family member with it. It's often how they learned about it. I've seen a number of specialists with the disease and have spoken with plenty of others personally afflicted. There are also plenty of MDs who have been disabled and had to stop working due to Lyme.

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Posted by Cheryl (Member # 75) on :

Physician as Patient:
http://www.ilads.org/sherr2.htm

Outcomes for 3 Infected Physicians:
http://www.ilads.org/outcomes.htm

Posted by Sue vG (Member # 3143) on :

Our only local LLMD who just retired from clinical practice has lyme, as does his wife.

Posted by GiGi (Member # 259) on :

Dr. K., our doctor, has Lyme Disease, which means today - what he refers to as Neuro-Lyme. Neuro-Lyme includes ever infection by microorganisms that he finds in cancer, ALS, and practicaly everything else you have ever heard of bundled into the expression, Chronic Disease. All of them also have Lyme.

It certainly includes heavy metal toxicity and dental infections, chemical toxicity, etc.

That's the only approach to getting people better and eventually well. That's the way I got well. That's the way my husband became a functional person again - out of wheelchair, walking, driving - at the ripe old age of 80.

Don't fight it - just learn to look at your problems in a different way. It's never just Lyme.

Take care.

Posted by cmichaelo (Member # 5873) on :

GiGi,

I believe you when you say that it's never just Lyme.

The same is probably true for most other diseases.

Unquestionably, there are other "things" in our bodies that allow Lyme, the flu, a strep throat, a stomach bug, Babesia, etc to get a strong hold.

Otherwise, how come that some people do get sick and some don't when exposed to the same bugs?

Yes, the immune system and genetic makeup are differentiators.

But so is our eating and living habits as well as the particular environment we live in and the exposures we are subjected to.

I for one is definately going to find out how contaminated my body really is.

And I'm strongly considering replacing the four giant amalgam fillings in my mouth, which I've had since my late teens.

Come to think of it, I was about 20 when I started having memory lapses.

Coincidence? Possibly. But I still don't like having all the mercury in my mouth.

Michael

[This message has been edited by cmichaelo (edited 18 February 2005).]

Posted by GiGi (Member # 259) on :

Michael, you are right on. You said it better than I have said it in 2000 plus posts.

Don't forget to also have a look at your wisdom teeth sites - whether teeth are gone or still there. Lingering infection there (without pain) is equally as bad (or worse) as the possible mercury in your brain from amalgams and/or other exposures, i.e. from your Mom.

Take care.

P.S. I will be back later re the DMSA challenge, hair test, etc. I have a conference to go to entitled "How to create a Healthy Home" -- that's another "hairy" subject that makes many people sick.

[This message has been edited by GiGi (edited 18 February 2005).]

Posted by caat (Member # 2321) on :

>>caat, you like taking risks or something???

LOL. Michael you have no idea how ironic that is. Heck no, I hate risks. that's why I treated myself with animal antibiotics for the past 2 or 3 years. I have neuro-lyme. I've finally got an LLMD. Had to save up $$ to see one- couldn't afford it till now. Actually till 3 months from now...

If I had relied completely on any of the docs who were "treating" me I'd be dead 3 times over by now or have severe brain damage. I'm very serious when I say that.

At least that one was nice. Honest too- she said she didn't know how to treat it. Most of the others just lied and looked scared.

Posted by caat (Member # 2321) on :

Oh, BTW, a couple researchers have it. An epidemologist who works for the state of Montana and another one of the rocky mt lab researchers (besides Burgdorfer) have what is now known as "lyme like disease". It's a "new" disease in Montana and Wyoming. It doesn't have a name yet.

Because the epidemologist (MR we-don't-have-lyme-in-Montana) got it they are now researching it. It is probley another strain or species of borrelia.

I really am at the point of saying I hope more of the people who have refused to treat or consider get lyme. That seems to work better than evidence or logic...

[This message has been edited by caat (edited 19 February 2005).]

Posted by lymiecanuck on :

Maybe I am wrong, but I thought Dr. Burrascano has it since childhood. Is this right?

Lymiecanuck

Posted by bg (Member # 46416) on :

Cheryl, thanks for posting those 2 sites of drs. w/lyme...very educational. Betty G.

Posted by Health (Member # 6034) on :

Yes, I read in a book I borrowed from the Library about Lyme Disease, that Dr B has lyme disease. He has had it since a child, in his knees and other places.

It was with experimenting on himself and seeing and finding out that he needed long term antibitoics that he felt comfortable treating patients.

WOW! that is what you would want in a Dr/MD, someone that has lived the disease.
No wonder he is so good, he has felt the pain of lyme disease, living so many years as a child with pain he thought others lived with too. How was he to know, that others did not live the way he did, in pain?
That was written in the book, something like this.

I think it was Karen Vaderhofs book>? cannot remember the name.

Trish

Posted by GiGi (Member # 259) on :

Wishing evil on others brings it right back to us, sooner or later.