Anyone out there with this symptom ever had success and what meds did the trick. I am on mino and it just seems to get worse and worse. I am also on mepron/clindy artesimin and nothing so far has helped. I am allergic to penicillin.

Also if you herx so badly on orals, can you even consider an IV.

Do you think vertigo is a babesia thing or lyme? I had a little improvement on babs/clindy alone when I took it for one month, Then added mino and all hell broke loose.

I am totally confused by all of this and at the end of my rope. Would a rife machine or hyberbaric chamber treatment help. I need feedback from those who have had this awful symptom.

Thanks,
Lymelady

[This message has been edited by lymelady (edited 19 February 2005).]
 

Is it with the nerve for you? For me its not they did a test. I just have chemical overload sensitivity as the result of the repeated PVC exposure in the sauna.

Should I have sued?

[This message has been edited by lymeHerx001 (edited 19 February 2005).]
 

Anyways, lymelady:

I hate this symptom for you, and I want to squeeze your vestibular system until it listens to me.

Have you tried that one supplement I think I mentioned to you? Its MediClear by thorne research.

Oddly for me, as you know, my vertigo ended BEFORE I got on abx, so no one really worked for me- as I was already past it.

I sure hope this clears up for you. I Do think vertigo is more commonly so linked to babesia. Have you ordered any artemisinin ?

I get mine at www.organic-pharmacy.org for 17.00 bucks per bottle, no need to pay expenses prices, at all.

I believe in rife, give it a whirl. ( No pun intendd with the word whirl)

I recently just had the vertigo come kick me right in teh butt horribly for about three days in a row. I don't know what caused it, but diflucan and some pau d arco tea took it away very fast.

I hope you feel better with this soon.
Jodie

This morning I noticed my sinuses were clear for the first time in ages; somehow this must all connect. also have some pau d arco
capsules I am going to try and of course the horrible diet.

Antivert doesn't touch my vertigo nor does 5 mgs of valium and it used to early on in the process.

I wonder if artesimin works as well as mepron? I do take artesimin and always have a big hot flash about 30 minutes after taking it so it is doing something.

Again thanks everyone; we dizzy ones nned to stick together.

Lymelady

 

I searched for a long time to find the right combination, this is the only one that worked.

 

He has to dose himself silly with valium if we have to go anywhere far. Far being, not in his backyard.

The weather affects it the most. He has the hardest time when his senses are overloaded.

We have really struggled and prayed with this. Antivert made him mean. We have found that ginger root (the powdered form in capsules) helps a lot.

Now I am big on traditional medicine and believe that it is absolutely neccesary to take bx if you have Lyme, but some of the herbal stuff works! It works well. I have studied it for 20 years and treat a lot of our illnesses with them (herbal remedies).

Another thing that we found that works when it's really bad is a product called Relief Band. That's a trademark, so you should be able to look it up on the internet.

I'm not talking about those stretchy things you wear on your wrist that apply pressure to a pressure point. Those work too, but on a scale of 1-10, the stretchy ones are a 1 and the Relief Band is a 10.

It looks like a watch and you wear it on your wrist and it shocks you at the pressure point that relieves vertigo and nausea.

I swear it really works. It had better it's not made out of gold and it costs a hundred dollars. My husband makes 600.00 a week and we could barely afford it. Actually it was a christmas gift. I'm not kidding it works!
 

My vertigo is coming from the brain or cranial nerves and it has completely taken me down. I can barely leave the bed most days; no sick at stomach, just horrible bouncing up and down with the floor dropping out underneath me, completely off balance. I am losing my mind with it after almost two years of it. Can't imagine working with this, it is what caused me to have to quit my job.

Thanks all of you for great suggestions, I am going to research all of them. I keep wondering if there is some way to disconnect the vestibular system; would you be deaf or unable to have any balance at all?

Thanks again
Lymelady

I have a similar connection between nerological pain on my left side, from head to toe but often worst on the side of my ehad and neck, and my sinuses or nose. In other words, this neurological pain causes my nose to drip on the left side. Using sudafed and/or Afrin actually helps the nerve pain, I don't know why. I knw this pain is neurological, and I have paresthesias along the same neurological pathway, on my left side.

In a similar way, the vertigo appears to partly stem from neurological causes, but is also related to fluid in my ears, which may be connected to the nerve issues in teh same way a cluster headache is connected to nose-dripping.

Also, I know that there must be drainage issues, since I do not get normal colds, but get extreme vetigo w/vomiting.

It is interesting that someone else mentioned wieather as a trigger. Also, stimulation. A lot of us w/vertigo have problems in big stores, for isntance. For me, book stores are the worst.

Do you have trouble with loud music? This makes me dizzy, sick, and confused and gives me heart palpitations. My worst nightmare is trying to shop with my teens in big stores with loud music.

This is getting off from lymelady's problem, sorry.. just wanted to make the point that there are mysterious connections between brain/nerves and nose/ears/eyes with this vertigo and I have never decided which comes first.

The relief band sounds great...thanks for the info on that!
 

I had extensive, extensiev brain AND ear testing done while I suffered horrible, horrible vertigo. They declared I had NEITEHR ear related vertigo NOR central vertigo ( BUT they did lie and tell me one test was normal, but it wasn't- it showed by brain was overcompromising for SOMETHING)

It can also come from cranial nerve involvement, etc.

I have MCS now symptoms are

post nasal drip allways

sore throat

ears hurt

vertigo

plastic smells dry up my nose and give me more dizziness

perfumes make my drip worse!!

anti histmamines help maybee %20 which isisnt much.

Im going to a neurologist on Tuesday, supposidlly he has helped people with vertigo. Again its from chemical overload, the ent said that the nerve was fine.
 

No brain tumor or stroke and I think at my age I am out of the range for MS, which generally hits young adults.

Again thanks for suggestions, all are so appreciated.

Lymelady
 

and

Do you have multiple chemical sensitivities?

Does the smell of strong perfume bother you?

I used to love it myself and (used to)wear lots of cologne.

[This message has been edited by lymeHerx001 (edited 20 February 2005).]
 

Since your problem is not inner ear, this is probably not relevant to you, but I've had a particularly bad vertigo problem, like earthquakes that no one else can feel, on Biaxin. Was reminded by another patient that like Zithromax Biaxin is an 'ototoxic' antibiotic that can cause inner ear problems in certain susceptible patients, particulary those with a genetic history of these problems.

My mom had Meneire's (sp?) disease with totally horrifying vertigo. The spells were so debilitating it really pushed her close to the edge. Now I understand what she was going through.

You asked about whether someone who has difficulty tolerating oral antibiotics should even be thinking about IV, and I wanted to comment on that as well. I have read quite a few people say they had severe problems with one or more oral antibiotics but not with IV (of course, there are others who find the reverse is true for them).

So I would not assume that you have a broad intolerance due to herxing if one antibiotic is giving you problems. That might be it, but it might well be a specific problem with that drug or class of drugs.

It's good to hear the diflucan might be helpful, and that sinus clearing does sound provocative. Apparently a lot of sinus problems have fungal as well as bacterial causes.

My heart goes out to you in struggling with the vertigo - it's very hard for someone who hasn't been through it to appreciate what torture that symptom can be.

Best wishes,

Paul

I have always had vetigo off and on in the past but when I was put on Biaxin it was terrible. Then it improved and went away while I was still on it.

What triggered me was the PVC mats in the sauna. I exposed myself for a total or 4 hours to toxic levels of PVC and now I have
MCS and a very dry nose and sore throat.

This has been every day constantlly for 6 months.

Good luck again.
 

The clonazopam and gravol did nothing on their own, it only took the edge off, ie vertigo not as severe but still there and a problem. Took them together out of desparation and it worked. I should have, but did not look for drug interations, although I dont think that there was any warning about gravol on the clona.. PDR sheets.

Mepron is said to possibly cause vertigo, but I have not experienced that, although i did have some attacks of vertigo re-appear while on mepron + artimesia. I was on mepron from mar to july. Relapsed and I am now back on malarone... bascially the same stuff.