I am in misery from all these nerve spasms. I got a bad fever the 1st of January and 6 days later it was at 103.7 when I went to the ER. I thought I was having a herx and never took my temp till day 5. I had broncitis. The bad thing was these spasms. I was getting about 6 a day. I thought it was muscles, but the blood tests came back fine for that. these have continued and I went to my neurologist, who suggested they may be nerve spasms because I was not having the muscle cramp. They just felt like charlie horses, some the pain lasts for days. Some take my breath away. I got one on the home from the Nuerologists and realized it was so deep and a straight line, a nerve, this one in my arm. He increased my Neurontin to 2400mg a day and said it should help...but I am in pain. I get these all over my body...neck to feet. When I move too quickly they are worse, but even with slow stretching or slow reaching I get them, I can pull back and they do not hurt as bad or as long. This is really getting difficult to carry on a normal day. I have had Lyme for 29yrs and have been infected 3x. I have been through much treatment, now just good rest, stay active, eat well and take all my meds, no antibiotics anymore, and 1000mg of b12 injection 1x a week. does anybody understand the mystery behind this sudden pain following my fever? PS we live in the desert, no ticks around here! I would appreciate your repsonses. Thank you very much.
Posted by treepatrol (Member # 4117) on :
You probaly still have lyme. Posted by bg (Member # 46416) on :
Shar, I've had something like this but where I felt my hip joints popping out of place. I was told it was muscle spasms. Eventually after years of doing it, it quit.
Shar, I'd like to suggest you EDIT your long post and break it up into paragraphs of 6-8 lines only of text. Then hit the return button twice between paragraphs.
You'll find that with our severe brain fog, it really helps us so we can comprehend better and NOT miss something of importance.
Thanks Shar for helping us all help you and all others online.
Betty G.
Posted by Lymetoo (Member # 743) on :
My opinion....fwiw....your virus or whatever stirred up the keets that are probably still in your body. Maybe you need a round of abx to put them back to sleep??
My last episode with sciatic nerve pain felt like nerve spasms. I really didn't know there was such a thing, but I knew it was somehow different from past episodes. Truly a nightmare!
Do you have an LLMD?
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Posted by Shar (Member # 2619) on :
Thank you for your replies everybody, and sugestions! Very helpful.
I do somehow feel the high temp is related to stirring up something. I went to my reg. dr. this morning and he suggested back to the neurologist.
I have heard you can get MS from Lyme. Does anyone know if there is truth to that?
My body feels like tight rubberbands inside it. YUGH! I know it will get better...always have hope.
Thank you all and God bless, Shar
Posted by Lymetoo (Member # 743) on :
I'm not sure about Lyme causing MS, but I do believe MANY people dxd with MS actually have Lyme.
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Posted by JillF (Member # 5553) on :
Yup, I sometimes get charlie horse pains everywhere - head to toe. Hurts very badly.
May be more painful than the twitches, spasms, stabbing pains, joint pain, stiffness and electric shock pains all combined.
The times I have gotten the charlie horse pains, it was the only pain at the time.
My LLMD asked me if I had the charlie horse pains through-out my body on my very first visit with him. He said it was definitely a Lyme symptom.
He had Lyme - took him 7 yrs to get diagnosed correctly and start treatment. He almost had to retire early because he was so ill. So, I take his word for it that it's a Lyme symptom.
Posted by bg (Member # 46416) on :
Shar, do a search for 300 OTHER illnesses mimic lyme disease and posted by Shelley in medical questions. MS is mentioned; click on it & read all about it.
Betty G.
Posted by BJG (Member # 4723) on :
Hi I too have had severe spasms.
You can call them muscle, nerve or whatever, but they occured all over my body.
Spasms, or what I call my body feeling like an electrical circuit gone haywire is my second lyme symptom. My main symptom is skin burning.
I took 3600mg Nuerotin, did not touch the pain or spasms. I started taking large doses of Magnesium. Spasms have lessened. Mag did help the spasms. Still looking for something to help the skin.
It sounds as tho neurotoxins are an issue for you. Do some research on toxins. Don't use artificial sweeteners.
Can your doc give you questran or take charcoal to bind the toxins? Spasms are a part of Lyme. Good luck and you are welcome to email me. Peace, BJG
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