Anyone else have this??Scared I am getting MS or Motor Neurone ???
Anyone??
Thanks ,Sue from Downunder.
I experienced this quite a bit during recovery. Sometimes my muscles would be so sore and weak that I couldn't lift an arm or a leg.
I'm sure it was Lyme.
This would often happen in the evening, though I did experience it in the morning too.
When I think back, Lyme presented such strange symptoms that I never even told anyone about all of them for fear no one would ever believe me!
Hang in there....
Nancy
This could be from Lyme or a co-infection. I get it as well, mostly in my legs and feet.
I find it is better if I activate the muscles by using them. I usually do very light strengthening.
I have the same problem. However, my muscles are sore to touch on the upper part of my body too. Especially my arms.
What I found is if I touch the inner part of my knee and press with my fingers as I slowly move up - it is ladder like and very painful.
I asked my doctor what this is and she told me nerves.
I have had it for years and do think it is part of the neuro symptoms of lyme. I found that when I took very high doses of doxy and amoxy it lessened. Which is why I feel it is neuro. However, my doctor switched me to zithromax at that point and I feel I lost all I gained. I decided since I have been on abx for 2 1/2 year to take a break with samento for a month and get back to abx that cross the bb.
It is scary to always have this sensation. But, knowing it is lyme related helps me.
I wish I could give you more but hope this helps a little.
Pat
i used to lift a lot of weights and was a triathlete. it seems the chetes got in all my muscle and caused a lot of inflammation and stiffness and cramping.
that's my theory anyway.
massage helps me tremendously but it sounds as if it would be terribly painful for you.
:-((