LymeNet Flash: If not Dr D in Boston who else is in the area?

This is topic If not Dr D in Boston who else is in the area? in forum Medical Questions at LymeNet Flash.

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Posted by IBelieve (Member # 6834) on :

I'm not getting a real warm and fuzzy feeling about Dr D in Boston. If anyone else in the New Hampshire area uses someone else locally, could you e-mail me please?

Posted by IBelieve (Member # 6834) on :

[email protected]

Posted by lla2 (Member # 2364) on :

there is NO one in the area that I considered going to after my fiasco with dr. D....I finally went to dr. H in Hyde Park , Ny which was a 4 our drive for me. I think there is also dr. P in Ct. and Dr. B and Dr. L in LOng island , Ny that come highly recommended by this board and Ilads as well....

you're going to find that most of us here on lymenet have to travel MANY hours to see an llmd if we want proper treatment...I know I drive four hours, and take my kids to dr. Jones in Ct., a pediatric lyme specialist..and a different 2 hour drive each way for me....

and i KNOW There are many others on this board who travel by plane to get to a good llmd...I only drive...

Hope this helps...As far as northern New England...I don't believe there are any llmds that follow Dr. B\s protocol.

Lisa

[This message has been edited by lla2 (edited 06 March 2005).]

Posted by giftoflife (Member # 6748) on :

Curious..What was your problem with Dr. D..?Very concerned because my son is being treated by him at this time.

Posted by Lyddie on :

We still use Dr. D . Many people start off with him and get initial help w/Lyme and then move on for help with co-infections. Dr. D. doesn't do long evaluations the way many of the LLMD's do, or a lot of testing. He is stlll in the insurance system, unlike other LLMD's. This makes him affordable but I believe it limits him in terms of what he can do: he needs to stay under the "radar."

If you have had a "fiasco" with Dr. D, it would be great (though I know painful) if you could give us a clue about what it was about.
Dr. D is always a controversial subject here. There have been times when we sought other LLMD's opinions but they have never differed from Dr. D's so we have stayed with him due to the fact that this saves us travel and money, and he is knowledgable, nice, and available (though not always) by e-mail for help.

The use of other LLMD's has given us a lot of information about our cases that we wouldn't have if we had just seen Dr. D, so another course of action you can take is to get started with Dr. D., see others for evaluation and testing, and then bring that infomation back to D. to augment your treatment with him.
oops! edited name out- I have Lyme and forget!

[This message has been edited by Lyddie (edited 06 March 2005).]

Posted by lpkayak (Member # 5230) on :

what lyddie said is what i have heard

there is a new doc in kennebunk-on rt 1 near health food store-i didn't recognize the name but would really like to hear from anyone who has gone there-this will be a big help to all of us in the north if they know what they are doing

doc L is in westchester ny-not LI and much closer-(probably 3-4 hrs from boston)he got me better-more medical less alternative

doc H in dutchess cty has helped a lot of people-more alternative

doc B on LI is probably the best but hard to get to and long wait for appt

doc R in ct has helped a lot also-good with neuro i've heard

doc J in ct the best for kids-everyone knows this

there is another doc in westchester..mt kisco..but i don't know much about him

i live in southern maine -if you want to talk more email me at [email protected]

good-luck

Posted by Foggy (Member # 1584) on :

No fiasco, just no improvement after a year of his 2 protocol fits all treatment.

I had all the clinical signs of Babs. When the Babs was treated, I made progress. Nuff said.

Posted by Lyddie on :

After 18 months with Dr. D, he began using a lot of different combinations for me. If I ask for an abx combination, he also considers and often lets me try it. He still doesn't prescribe mepron or mallarone, or flagyl, but he is more flexible than his reputation says.

I am glad to hear of improvement w/babs treatment, which gives me pause. Ont eh other hand, amy of the people in our local support group, who were very critical of Dr. D, havn't oimproved that much w/babs treatmenet elsewhere and are still unable to get off abx without rapid relapse.

Posted by hatsnscarfs (Member # 6562) on :

I'm emailing you some info.

Posted by SunRa (Member # 3559) on :

my email to you got bounced back. I've heard some good things about Dr H in Newton, MA.

Posted by hatsnscarfs (Member # 6562) on :

My email got returned too. Is the address you gave correct? Please verify and I'll resend.
h&s

Posted by lla2 (Member # 2364) on :

my eamil got returned also....suffice it to say that he wouldn't test or treat coinfections as I have said before...I continiued to get sicker and sicker..to the point of having seizures etc...

finally found an llmd, dr. H , recommended by this board who would test adn treat the coifnections i had, both bart and babs....fianlly i started to feeel better and THEN we could treat the lyme as well....now i'm about 95% better after 2 and 1/2 years.

he uses the same protocol for everyone as he is an excellent researcher. WHat this means is that he is always testing to see is these med protocols work on people /keets etc...so you can't take vitamins or alternative therapies with themm, or you scew his results...he doesn't taylor his treatments to your symtoms like other llmds...

so he's a great guy, excellent researcher..just doesn't believe in coinfections, and if you have them you tend to keep getting sicker nad sicker..

that was the problem with me. I wasted , 8 months getting sicker instead of getting better. that's a long time in lyme language....

Lisa

so he's a great guy, excellent researcher..just doesn't believe in coinfections, and if you have them you tend to keep getting sicker nad sicker..

that was the problem with me. I wasted , 8 months getting sicker instead of getting better. that's a long time in lyme language....

Lisa

Posted by LymeinME (Member # 6849) on :

Most of us lymies in Maine go to NY. A few see Dr D in Boston.

Posted by lymebrat (Member # 3208) on :

If you do not feel comfortable with Dr.D or any doctor, you should by all means find a new LLMD. I however have not had a good experience with any "so called" lyme doctors in New Hampshire...

I have been a patient of Dr.D's and thank him for giving me my life back.

I too have heard he didn't test for coinfections, only used tetracycline etc...

But I can only say what my experience has been.

I was tested for coinfections..

I was never given tetracycline.

I was however on Biaxin, Plaqunil, and Minocycline.

I was also given Levaquin for Bart.

In my case, Dr.D was a life saver. When I first met Dr.D, I was unable to walk on my right leg, stuttering, had severe arthritis in my hands, facial palsy's, neuro symptoms, memory problems, sever exhaustion etc..

I was taking vicodin just to help me through my day and spent most days on the couch...

And today, thanks to Dr.D I am doing extremely well. I have been off ALL medications since April of last year and continue to do well.

I still have some minor joint pain and a couple of minor neuro issues, but nothing I can't live with.

I am healthy again, I have energy to play with my kids again and I am happy for the first time in years.

So while I understand some do mot like Dr.D, I can only say that I have had lyme for over 11 years and with his treatment I am now as cured as anyone with lyme can be...And I am no longer on meds.

Sounds like a pretty good success story to me

Good luck in your search..

~LymeBrat

Posted by IBelieve (Member # 6834) on :

my e-mail is [email protected]

Lyme brain...I put my old address.

Sorry

Posted by achey (Member # 6284) on :

There's a LL ND in Portsmouth, and I've heard of a couple other regular MD's on the seacoast that are becoming more LL because of need.

I see Dr. R in Stamford Ct because I needed to address neuro issues w/o wasting time.

Email me for more info..My computer is down, so I can reply to and email via a distance server, but I can't initiate an email.

Posted by bpeck (Member # 3235) on :

LymeBrat:

Hey- So glad your doing better.

Plaq/Mino was one of the best combos for me too. (matter of fact I'm on a months course of this combo for a rash that nothing else helped)

What doses of plaq and Mino per day were you on?

Thanks,
Barb

Posted by giftoflife (Member # 6748) on :

Up. More stories anyone?

Posted by tickedntx (Member # 5660) on :

My mother is currently being treated by Dr. C in Tampa area but will be returning to Cape Cod in a couple of months, considering switching to Dr. D.

My concern is that while my dad just tested positive for Lyme, my mom also tested positive for Babesia and Ehrlichia.

Dr. D is very convenient, only 20 minutes from their home. My father is not well enough to drive up to Boston for medical appointments and will only see doctors on the Cape. My mother is not well enough to drive and so is dependent on him at this time.

Will Dr. D really not treat co-infections? How can anyone who treats Lyme not consider co-infections?

Are there any LLMD's on Cape Cod who treat co-infections?

TIA,
Ticked

Posted by Lyddie on :

Your parents could still try Dr. D. Some people have posted that Dr. D did in fact test and treat them for coinfections if asked. Given your parents' difficulty with getting around, I'll bet he would consult with Dr. H in NY on their behalf. Since Dr. D is so convenient, with offices on the Cape and in Boston, I don't think you should give up on him until your parents have tried an appt. Just my thoughts...

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by tickedntx:

Will Dr. D really not treat co-infections? How can anyone who treats Lyme not consider co-infections?

Beats me.

Posted by nannie (Member # 5250) on :

I saw Dr. H for a consult. I liked her, and found her staffer helpful.

Anne

Posted by tickedntx (Member # 5660) on :

Lyddie:

Thank you for your encouragement. You are right. It would also seem that they have no other options. If he doesn't work out, they could always revert to their current LLMD in FL.

Thanks again,
Ticked

Posted by lymebrat (Member # 3208) on :

Hi all,

I can only speak for myself and those that I personally know, who have gone to Dr.D...

He did test me for co-infections and he did put me on levaquin..

and, I just sent someone to see him 2 months ago and he was also tested for co-infections.

So why some continue to say he "won't" test or treat co-infections is beyond me..as he clearly does..(or he did in my case and several others I know....lol )

Barb,

I agree the Mino and Plaq were the best. I think I credit the Mino the most. I honestly feel it gave me back my life..it hit symptoms, nothing else could even touch.

I took 2x100 mg of Mino a day and 2x 200 mg of Plaq a day. I also took Biaxin with these as well. It was a hard hitting trio, but it seemed to work

Best wishes everyone,
LymeBrat