LymeNet Flash: Nighttime "attacks" of icy feet and hyperactive bladder

This is topic Nighttime "attacks" of icy feet and hyperactive bladder in forum Medical Questions at LymeNet Flash.

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Posted by Sue vG (Member # 3143) on :

Anyone else get this?

My hands and feet have been warm since going on thyroid 2 years ago, but lately I've been getting these "attacks" after I get in bed wehre my feet turn ice-cold, I start to shiver (not feverish) and my bladder goes into hyperdrive.

I have get up and put socks on, and keep having to get up to pee. Seems like I have post nasal drip too at the time. This has been happening about twice a week lately.

Some possible causes that have crossed my mind include
- lyme by itself,
- thyroid or adrenals being off,
- my lower back nerves acting up from a ruptured disk,
- menopause coming on (I'll be 50 this year).

Any ideas?

Thanks,

Sue

Posted by Biting Back (Member # 6018) on :

I vote for the adrenals and peri- or menopause. Just my two cents worth.

Posted by Lymetoo (Member # 743) on :

Hi Sue! Could very well be hormonal. I get chilled right before a hot flash comes on. UGH! So maybe there's a connection with the menopause and the chills.

Also, you could be low in aldosterone. Frequent urination is a clue. But then, it could be one of several other hormones being out of balance.

A good book on the hormones is The Hormone Solution, by Thierry Hertoghe, MD.

I have Interstitial Cystitis....do you have any trouble during the day? or any pain??
www.ichelp.org for more info on IC

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Lymetutu

Posted by Laurie362004 (Member # 6928) on :

Hello...guess what? thes symptoms are not for ladies along.........my 39 yr old husband has very very cold feet and has to have socks on at night...i bet he gets up to pee 5 times a night even though i cut him off liquids at 6 pm....he also suffers from hot/cold flashes.one minute he wants covers on nexthe doesnt.so im not sure that these are syptoms of menapause withlynme unless there is something about my husband i dont knwo.hehehheee////////////good luck!

Posted by hatsnscarfs (Member # 6562) on :

I had the icy feet, need to pee too many times a night thing for as long as I can remember.

Over the last 3 months I have had dramatic improvement. The improvement began when I started using podi patches. When I use them I only get up once a night or even make it through the whole night.

Other things that may be contributing to my improvement are: anti-yeast diet, no more coffee (tastes like tetracycline) and almost no caffeine.

Try putting on socks before you go to bed so you won't have to get up to get them. I sleep best with fleece socks. I used to have an extra blanket over my feet but now I don't need it any more.
h&s

Posted by JillF (Member # 5553) on :

i have cold hands and feet through-out the day but the feet get worse after going to bed

this is with socks on all the time

i also have the chills or night/day sweats. either i'm freezing or i'm burning up (doesn't matter if i'm awake or asleep) - yet my hands and feet usually stay cold.

i'm not yet 30 and hope to have another child, so i sure hope it's not menopausal (sp?)...

i've had cold hands and feet and the night sweats for years now. but the chills and day sweats are new to me this year.

Posted by long2bbetter (Member # 6792) on :

Yes. My husband experiences these same symptoms. His feet are usually ice cold while in bed, he often wears socks or heated slippers. He does get up to urinate more than once through the night. He also gets the whole body sweating one minute, then the next minute he gets the shivering thing.

Posted by Sue vG (Member # 3143) on :

Thank you for the replies, folks!

Hats, I just bought some fleece socks and like them a lot.

I've always made several trips to the b-room during the night, and my hands and feet could get cold until I went on thyroid. Then I was fine, though by that time I had lyme.

The thing about these "attacks" is, I'll have to get up maybe 5 times in 45 minutes, each time with great urgency, but only sometimes with great volume as well.

I've been getting hot flashes for about 3 years and have had lyme for 3-1/2 (negative babs test), but these "attacks" just started coming regularly. Last night again. I've had a few in the past.

Just thinking out loud here, are cold flashes part of peri-menopause too? That wouldn't explain the men having this.

My sister has Raynaud's. I wonder if this is something along those lines. Anyway, sorry for quacking. I'd just rather ask y'all than a duck because now I know who knows more.

Posted by ping (Member # 6974) on :

hello sue. I've had all that you describe from time to time and its for a combination of all the reasons that you listed. something that helps me very much is moderate regular exercise. I'm not talking killer aerobics but needs to be just enough lo impact stuff to make you break a sweat. I sleep much better, pee less and it seems to regulate my body temp a lot. Still have occasional attacks but nothing like i used to have. also, do you have co-infection like Babs or other protozoa? may want to consider treatment even if you tested neg. treatment for babs should be 4 to 6 months Mepron. ping

Posted by Lymiedad on :

Yes. I had this and still do some. Babesia treatment helps. Right Laurie not just ladies.

Posted by Poochini (Member # 3534) on :

I've had this and my LLMD thought it was related to neuropathy. Neuropathy, much to my surprise, does not affect just the feet and hands. It can be in various parts of the body, range in severity, and sometimes will improve and then worsen.

The cold icy sensation has also an opposite, which is a burning sensation. I had this only in my hands--icy then burning. And I had the urgency that was really annoying. I was given a medication that some use for incontinence.

The problem would go away then come back. No amount of cutting back on liquids stopped it completely. But then the problem went away as I got better and also starting taking other meds that dampened the neuropathy --that neural firing that kept things riled up.

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by Poochini:
I've had this and my LLMD thought it was related to neuropathy. Neuropathy, much to my surprise, does not affect just the feet and hands. It can be in various parts of the body, range in severity, and sometimes will improve and then worsen.

Very good point. This is probably the key.

I have Raynaud's too, and it definitely results in very cold hands and feet. Mangosteen helps ALOT.

Sue...you need to be treated for babs. Many people in treatment for Lyme, later find out babs is in the picture. Sometimes it takes awhile to show up.

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Lymetutu

Posted by Sue vG (Member # 3143) on :

Thank you all for the additional replies.

Poochini, neuropathy makes a LOT of sense. I have a ruptured disk at L4-L5 and I have all sorts of cramps and neuropathies in my legs and feet as a result, which I would have even without lyme. This may just be a "new" one. These nerves also affect the bladder.

I've wondered about Babs too, esp. due to the night sweats, but the one test I had was negative.

At the moment I can't even get treatment for my lyme due to happenings in my local medical community, so it may be a while before I can press for a Babs test, but I agree that it is also something to consider.

Thanks again!

Sue

Posted by zuzuu (Member # 6826) on :

just my input to this thread - I had persistent bladder problems during the 3 years before I was diagnosed with Lyme - went to 2 urologists, thought I had Interstitial cystitis, lingering bladder infections, etc. One urologist finally gave me a vague diagnosis which basically was overactive bladder and put me on Detrol. It actually helped quite a bit but then after Lyme diagnosis and ABX my bladder problems almost totally went away - just acts up once in a while. I've been off ABX for 3 years though am considering additional treatment for neuro problems.