LymeNet Flash: Flagyl dose

This is topic Flagyl dose in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/32360

Posted by robi (Member # 5547) on :

I am supposed to take 500mg flagyl 3 x a day, for one week each month.

DOes this sound right? I eard otheres did it for months straight. I wanna get the little cyst buggers.....is this gona be enough.

Has anyone else done this one week a month schedule?

robi

Posted by Lymetoo (Member # 743) on :

OMG!!!! Whatever you do, please don't begin at that dosage, especially if you've never taken any! You will want to die!

[I am not a dr!]

Most people ramp up the dosage, beginning at 1/4 pill.....1/4 of a 250mg pill!!

------------------
oops!
Lymetutu

Posted by robi (Member # 5547) on :

my LLMD didn't say to ramp up.............but I don't wanna die....wow that's an improvement in and of itself........i must be getting better!!!

robi

Posted by Melanie Reber (Member # 3707) on :

Hi Robi,

I have been pulsing flagyl one week a month for a very long time now...seems to be working.

My dose is only 1000mg a day though, and I started with 500mg for a couple of days first.

However, like Toots, I have heard that many have a difficult time starting this high...so, I would also recommend going slow just to see how you respond.

Good luck,
Melanie

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]

Posted by EZ-E (Member # 6436) on :

I'm takin' 750mg a day. Started at 500mg a day 10 days ago.It hasn't whipped me too bad at all, suprisingly. He prescribed me a months worth. I gotta phone consult in the morning w/llmd.....I'm gonna ask him about cycling it...

Posted by Foggy (Member # 1584) on :

My Rx bottle says the same, but the stuff throws me for a loop if I go up that high.

I'm supposed to take it for 30 days! Yowser!

Posted by Areneli (Member # 6740) on :

Pulsing flagyl one week a month for a very long time is a very good idea. One may avoid many serious adverse events by this approach.

Posted by ping (Member # 6974) on :

quote:
Originally posted by Lymetoo:
[b]OMG!!!! Whatever you do, please don't begin at that dosage, especially if you've never taken any! You will want to die!
[I am not a dr!]
Most people ramp up the dosage, beginning at 1/4 pill.....1/4 of a 250mg pill!!
hey robes,
look, i'm not a dr either, but, i've been there / done that and i'm in complete agreement with Lymetoo. If you have any goodly amount of cyst buildup at all, a fast dieoff could put you in the hosp or a worse place. i'm speaking from experience and no, the worse place is not an improvement, okay...
I must say that from reading the posts on this thread, it sounds as if the drs have once again swung the other direction regarding using this drug. this frightens me because IMHO, it smacks of disregard for a pts wellbeing and quality of life; you can never convince me that these docs are unaware of the horrible affect Flagyl has on many people (1 in 4).
ultimately, you will do as you want, robi, but, if i had it to do all over again, i'd do as Lymetoo suggested.
always wishing you the best,
pingster

[/B]

Posted by lymeHerx001 (Member # 6215) on :

Met with the LLMD yesterday and he told me to stay on the flagyl and we will see what will happen.

I then told him that the flagl can be dangerous and he said well do you want to be better?

I then complained of my dizziness and multiple chemical sensitivities. I have constant vertigo all the time!!

He said treatment is like a high way and your high way is lyme.
There are many exits off this highway and one of them is multiple
chemical sensitivities,
but if we take an exit we
always dont know where it will lead.

He told me that if I stayed on the highway for lyme that the MCS will clear up.

Then he told me that he offers glutothione ivs and vitamin cocktails,, i said I wanted in and then he said "well wait and see what will happen:"

Then I said you always say that~!!

Posted by Areneli (Member # 6740) on :

Flagyl penetrates through blood brain barrier and opens cysts that are there. It creates a lot of new bacteria in the brain and a lot of toxin there. The toxin has to be removed through blood brain barrier that takes time. Some other antibiotic has to kill the bacteria.

That is why you have to be very careful with Flagyl or any other drug that opens cysts. Do it slowly so you can handle the toxin and new bacteria. If you do it too fast you will end up in hospital or worse.

You have to push yourself through the treatment but don't push too hard and use common sense all the time. One week per month mode is mainly used to avoid polyneuropathy caused sometimes by Flagyl.

The disease has to be treated slowly. Rushing can hurt you.

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by Areneli:
That is why you have to be very careful with Flagyl or any other drug that opens cysts. Do it slowly so you can handle the toxin and new bacteria. If you do it too fast you will end up in hospital or worse.
--------------------------------------
One week per month mode is mainly used to avoid polyneuropathy caused sometimes by Flagyl.

I would be cautious with this drug!

------------------
oops!
Lymetutu

Posted by lymeHerx001 (Member # 6215) on :

I seem to be handling 500mg a day fine.

I dont understand,, he said that I would herx at a higher dose.

So are the cysts doing anything to hurt me as cysts?

The answer that Im looking for is yes, but its hard to get that.

Posted by Areneli (Member # 6740) on :

Cyst is a latent form of Bb. When they feel like they will wake up and produce spirochetes.

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by lymeHerx001:
So are the cysts doing anything to hurt me as cysts?
The answer that Im looking for is yes, but its hard to get that.

YES....as areneli said they are a form of Bb. So what dosage are you supposed to go up to?

You can go higher than 500, just do so carefully.

------------------
oops!
Lymetutu

Posted by beachcomber (Member # 5320) on :

I had to take 1500mg of Flagyl a day for C-Diff. I nearly died the very first day. I could not get up off the floor. My MD was out of town and the one on call told me I had to stay at that dose when I compained.

Well, I didn't. I ramped up like the little tutus said and did much better. I never did get to the full 1500mg. Flagyl was evil for me. Getting up to go to the bathroom was a battle. I walked right into the walls.

I think ramping up is a good suggestion. JMHO.

Posted by EZ-E (Member # 6436) on :

I had my phone consult with my llmd this A.M.. He said he doesn't cycle flagyl. Told me to stay on the 750mg a day. I'm on Vantin too. My brain seems clearer after taking flagyl. Seems spacy after the Vantin. Onward & upward y'all!!

Posted by lymeHerx001 (Member # 6215) on :

EZ

My brain seems to be clearer after flagyl too.

I wonder what this means. Thats why im asking if the cyst robs any energy from us or does it just sit there like a latent virus.

Also does the cyst disrupt the immune system?

I mean does the cyst load going down help the body? I keep hearing that it will pop them open and more bacteria will come out making me feel worse (HERx)

however

I have only felt better and itchy while on the flagyl

Posted by lymeHerx001 (Member # 6215) on :

Any more info on cysts?

Anyone else have itching that went away?
Thanks

Posted by EZ-E (Member # 6436) on :

LH001- I've had a bit of itching not much. I did start having alot of flim to cough up, & nose blowing. I had this my first month or so on Vantin also, 5 months ago. I'm no expert, but I think I understand that Flagyl opens the cysts so the other abx can kill the keets...... I'm likin' it so far for sure!!