What will I achieve by doing it?

Can neurally mediated hypotension harm you if it is left untreated?

Is it really unpleasant?

Any input appreciated.

Take care,Sue.

which has greatly put a big old damper in my treatment. Trust me.

TO answer your questions:

Has anyone had this done.I have low BP and the doc wants me to have it done.

Yes, I had it done. However, I only had the six lead test done and not the 12 lead test done, and I wasnt given the second part of the test.

What will I achieve by doing it?
HELP! ALOT OF HELP! Even alot of lyme patients do NOT realize what NMH or OH or POTS can do to you. For starters, it can make you barely unable to take ANY medications.

Not to mention the dizziness, headaches, head and shoulder pain, getting sick after eating. I could go on.

Can neurally mediated hypotension harm you if it is left untreated?
Yes, it can. You could pass out and crack your head open. You can end up with other problems, - the biggest one of all? Reacting to ALOT of medications. ( tis what happened to me)- wasnt reactions as much as it was gut blood pooling in my stomach each time I took a pill, further taking away blood and O2 from my brain. Im also now hypoglycemic.

It put a real big halt in my lyme treatment, in a REAL big way.

Is it really unpleasant?
If getting sick when walking around, not being able to go into stores, or walking across the yard without getting dizziness, headaches, neck and head pain among blurred vision and an inability to concentrate,

YET those symptoms retract when you lay down, toppled with not being able to take medication to treat your lyme

is the end result of : is it unpleasant, then yes.

But is the tilt table test unpleasant?
Nah. It brought out my symptoms, which was unpleasant, and I near fainted.

The morons then stopped the test.

YOU HAVE TO MAKE SURE YOU ARE GETTING THE TWO PART TEST. I would even call to make sure they are using the TWELVE LEAD and not the SIX lead ( electrodes) they NEED twelve electrodes to test all the various sites.

The idiots up here used six on me. Well whoopidy ding dong!

Research the doc you are being sent to, if you can, to have this done. Or the hospital, etc.

I really thought I was going to have my tilt done the RIGHT way. INstead, I didnt.

Now I have to retake it just to get the medications that I need to control my blood pressure.

Id also suggest you buy a digital blood pressure cuff and measure your blood pressure as best you can.

I had the tilt table test done about a month ago after at least six years of pre-syncope episodes. Other doctors didn't take it seriously since my BP is normal when I'm sitting down and even standing up for a short period of time.

During the test, I did okay for the first 20 minutes. Then I started having symptoms - dizziness, nausea, difficulty breathing, vomiting, seeing spots, etc. The nurse scrambled to get a BP on me so she could bring me down and that was the worst part. I took what seemed like a long time to get my BP (the machine was acting up) but she did get it. It was 51/26.

Once I was brought back down to lying position and pumped full of saline, I started to feel better.

The test wasn't fun but I think, for me, it was worth it. It took me a good week to recover from the test (I was more tired and had an unrelenting headache) but now I know for sure what it is I have.

The validation is so nice. I can tell people for sure what happens to me if I stand up too long and can plan accordingly. It will also help me to get disability as it prevents me from working most jobs that require standing.

Hope this helps you and that you go forward with the test. It's nice to know what's wrong and be able to try to do something about it.

Peace and healing,
Annie
 

bettyg,Iowa

[This message has been edited by bettyg (edited 15 March 2005).]
 

I think this is the link you were trying to put up.

Tilt Table Test Search Results

--Annie

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Click here to join Lyme Pals.

Click here to see my Lyme journal.

Lyme Out Retreat Information Webpage

 

[This message has been edited by WildCondor (edited 14 March 2005).]
 

I had a hysterectomy in November...my body was placed in the trendelenberg position...feet raised higher than head to suspend abdominal organs for easier access....after twenty minutes my BP bottomed out and my heart rate went to 12....Yep, that's Neurally Mediated Hypotention all right! Scared the heck out of my doctor, but I fortunately had a brilliant anesthesiologist who pulled me out of it without making it worse.

This is not the preferred method for finding out that you have this condition....It frightens surgeons no end and if you don't have a great anesthesiologist, you may not be treated properly quickly enough. The natural thing to do is to raise the feet higher and force fluids...treat for shock....This guy lowered my feet and gave me atropine, then fluids. Smart guy.

I feel kind of like a jerk as I had suspected that I may have had this condition but didn't persue testing it. My surgeon is a friend, so I felt pretty badly about that. Fortunately all turned out well...
 

I had it done at a very good hospital. The Dr. was supposed to be in the room while it was being done, so I was told, but he was not.

The people who were doing the test stopped the test, right after I passed out (I kept saying I needed a bucket, I was going to vomit and they said its almost over, we just need to let you pass out, then I did and they woke me right up right away.

They said I was one of the worse cases they have seen and they didn't bother doing the second test.

When I went to the DR. (Dr. STUPID we will call him) for the results he said I never passed out and there was nothing wrong with me.

Before this my Rhuemy. was telling me Oh just take your Valuim when you fell like passing out.

Do you ever feel like your being ignored?

Well good luck! Hope this test gets you somewhere or at least futher than it got me.

Sometimes I feel like some of the @^* medical feild out there is like a bunch of
###$@ing spirokettes that escaped from my brain working undercover. WOW! What a MOVIE that would make ha!

For me, I don't understand this way of links; too much brain fog to get thru my brain.

Betty g
 

For me, the Hypovolemia and POTS are bigger problems than the Lyme right now. At this time I cannot tolerate a high enough dosage of meds to treat Lyme b/c of my Hypovolemia.....

Its important to get checked for it.

I had to make some important adjustments to my life such as Drinking electrolite drinks instead of plain water, taking salt, and monitoring my BP...
Also there are meds to take to help combat it.... I am still in the process of finding one that works.

The tilt test is nothing..I have had 2....they are very easy and you will get some info from it.

Good Luck
 

Thanks,
sara
 

I am not sure of you have any of these problems along with your high BP?

I have fluctuations all the time I can go from 90/50 to 145/95 in a matter of an hour.....

Have you had any autonomic testing?