I went off all of my antibiotics the other day

lo and behold

no symptoms at all
i feel WONDERFUL

went to the gym. no dizziness. no headache.
no painful glands.

it may not last but after a year of ABX I am just DONE and need to move on.

i know i may be setting myself up for a relapse. BUT

i felt like i was in a catch 22 - LLMD was waiting for me to be symptom-free, but if the symptoms are side effects, that would never happen. i'd just make him rich!

 

I don't know what symptoms you had that were actually reactions to antibiotics.

Every time I go off antibiotics I get sicker, so obviously you and I don't have the same problem.

Let us know how you're doing.
 

i had joint pain, and don't get me wrong - it is still there - but it had been lessening over the months and i've decided i can live w/what is left

if my head doesn't hurt and i can see straight, i'm fine with some residual joint pain!

 

Good Luck!
 

But I plan to take antibiotics for two months every year after. If I herx I will know that I have it and have to stay on them forever (perhaps pulsing will become my option).

If not, that will likely keep me healthy longer.

I was having such excruciating pain in the back of my head and in my arm that I finally stopped everything because my husband feared that the abx were creating side effects and I could get no support from any doctors.

Now a few months after stopping abx I can't say that I feel 100% better-I still have the same aches and pains but not to the degree that I had when I was taking the abx. I have been waiting to feel "good" again and like my old self but that hasn't happened either.

It's so unfortunate that we have to wait until our bodies go completely haywire for anyone to listen...I have Igenex test results that say that I'm positive for lyme but no one finds them credible so I wait until the next symptom arises and then maybe someone will take me seriously.

I'm sorry that I can't give you more advice, but I can tell you that I understand and I'd love to keep in touch and hear how you're doing.

Take care!
 

i exercised for 45 mins for the past 2 days and was able to stay up til 11pm and even wake up before the alarm.

i am sure something will burst my bubble but i am enjoying my reprieve :=)))

JESS

 

if YOU HAVE gained ANY weight from lyme disease- remember this- toxins are stored in fat cells

when you shed the weight, you MAY experience very lyme like symptoms, all over again.

Its horrible and livid to go through and it CAN feel like a relapse.

Make sure you keep detoxing, or mark my word- you arent going to feel too pretty come soon.

Maybe ya will though.

Were you on doxy by any chance? I felt like ABSOLUTE crap the entire time on that, and I mean ENTIRE TIME on it ( 3 straight months) and as soon as I quit, I felt like a million bucks.

Unfortunately, I ended BACK on abx, took them for another 5 months, and just stopped abx four months ago AGAIN only to relapse

( or not relapse, but have ) undiscovered bartonella rear its ugly head.

ALOT of lyme patients go off abx, think they have relapsed, go back on and the whole cycle starts over again.

Some patients really do relapse!

Wish you the absolute best.

Have fun feeling fabulous

i was on Zithromax, Cefzil and Mepron, though I had stopped taking the Mepron.

The difficult thing to figure is what is from lyme and what is just wear & tear on my body. I did Triathlons, swimming races, ran for 9 years, took martial arts. I think ANY body would have joint pains after all that!

I know i am taking a huge risk, but I'm just ready and i've always liked livign on the edge anyway

:-)

thanks for the support
Jessie
 

So if you find your symptoms sneaking back, there may be ways to make sure they don't stop you in your tracks, until you find a good doctor.
 

It sounds like you hit the co-infections straight away. I think that makes a big difference.

Hope things continue to improve for you. Keep us posted.

Bc