LymeNet Flash: DOYCYLINE &-BIAXIN ADVISE

This is topic DOYCYLINE &-BIAXIN ADVISE in forum Medical Questions at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/32764

Posted by SUZIE888 (Member # 7054) on :

JUST GOT 3 MONTHS SUPPLY OF DOCYLINE & 1 WEEK OF BIAXIN. WENT TO A DOCTOR WHO IS NOT A LDMD BUT WILLING TO WORK WITH ME. GOT BIT IN JAN AND HAVE SOME SYMPTOMS BUT HAVE NOT BE DIAGNOSED AS OF YET. CAN ANY ONE TELL ME WHAT I CAN TAKE WITH THE TWO ABX'S THE SHORT COMING AND WHAT HOLLISTIC APPROACH CAN I TAKE. I DON'T BELIEVE IN ABX BUT WILL TAKE......WHAT KIND OF FOODS OR ANY ADVISE. THANK YOU FOR YOU TIME.
SUZIE

Posted by bg (Member # 46416) on :

Suzie, welcome to the board.\

Just to make you aware, please edit your post and type in lower case vs. ALL caps means you are screaming at folks, and I'm sure that is not what you meant at all.

Also, while you are editing, please break up your long paragraph to 6-8 lines of text only.

Many of us with late stage lyme can not comprehend things. So short sentences helps our brain fog, and double space between the paragaphs...ok.

I'm on doxy 1000 mg day for 3 days; off 2 days, then I start

biaxin 200 mg day for 3 days; 2 days off; then begin doxy again.

I'm also on benecar 40 mg daily for my high blood pressure although it's used for the lyme itself.

Also, if you go to www.marshallprotocol.com and go to general support ... look for food selections there...ok.

Welcome to this 24/7 support group board!

Here's TREEPATROL's and tincup's combination newbie links.
http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this.

print & read Dr. Barrascono's info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
http://www.lymeinfo.net/lymediseasetreatment.html

The WESTERN BLOT IGM & IGG blood test nos. 189 and 188, are the only accurate tests for LD. They should only be sent to these 2 USA's Lyme testing labs:

IGENEX LAB:
797 San Antonio Road
Palo Alto, CA 94303
1.800.832.3200.

(If the early test, called IGM, is negative; the later test IGG is NOT done!)
Please see their web site: www.igenex.com for their current prices and

to print their REQUIRED form, which MUST be signed by the doctor, DIAGNOSIS CODE NO. COMPLETED!; Medicare's UPIN no., and your FROZEN blood taken EARLY in the week so it doesn't sit in post offices!

Write on their forms you want results FAXED to their drs. Office; snail mail paper copy so it's not lost like mine was!

NON-Medicare patients must PREPAY by check or credit card for the tests since they do NOT handle insurance papers.
Medicare patients do NOT have to prepay!

OTHER LAB: MDL from NJ, www.mdl.net
see their site; they too require their own form. NO prices are listed; you must call their 800 no.

Lyme should be diagnosed clinically using medical history in addition with the Western Blot blood tests as no currently available test is definitive in ruling-in or ruling-out infection with Ld pathogens, or whether these infections are responsible for the patient's symptoms.

NOTE: Please send a copy of your health insurance card to YOUR insurance comany (mine is Wellmark BC/BS, Iowa) for them to submit to BLUE CARD (handles other states) them to FORWARD to California's Blue Shield health insurance company since they will require that, DRS. Diagnosis Code No., and which date of service is correct (IGX has 3 different dates on their paid receipts....use the DATE OF ACTIVITY!).

FYI - mine was returned to me after 6 wks. After submitting; dr./blood lab failed to show DRS. DIAGNOSIS CODE NO. on their form! It went to 7 people to be returned to me! Disgusting!

Betty G, Iowa

Posted by MammaLyme (Member # 1257) on :

Bowen Research Lab is the best around. Your doctor will get pictures of what is in your blood including the lyme, HME ,HGE and babesia. The test costs $250 as a donation but you can deduct it from your taxes. I have a long history of trying the different labs until Bowen finally found out in 2001 that I had lyme, babs and HME and HGE. I was very sick.

They just received their patent for the lyme test. Go to the Pfizer pamphlet to see the pictures of the coinfections in your blood at www.lymediseaseinformation.com

Bowen Research & Training Institute, 1200 S. Pinellas Avenue, Units 11 and 12, Tarpon Springs FL 34689

Phone: 727-937-9077 Call and ask for their serial dilution test. Pictures are worth a thousand words.

[This message has been edited by MammaLyme (edited 27 March 2005).]

Posted by DeniseBunty (Member # 6559) on :

Hi we did the Bowen test on for my son he has Lyme , we paid $250 this was done Oct04 he was a 1.32, he has alot of behavior problems and was having seizures and vomiting, the seizures had stopped with Doxycycline but he is still vomiting

Posted by HaplyCarlessdave (Member # 413) on :

Hi, Suzie. I've always been one to try to do everything herbally, but with lyme I had to resort to the hard-core hi-dose antibiotics.
Yes, I too was at one point on doxycycline and biaxin, 200mg and 1 gram a day, respectively (Betty, I think you reversed the doses- 1 gram a day of doxy would probably completely eat a hole in your stomach!)
Yes, you may need to get a "lyme-literate specialist" that knows about all the tick-borne diseases; with lyme it is common to get "co-infections" such as babesia and ehrlichia, or others. Lyme is really nasty; you may need to be on antibiotics for a long time.
I have posted the basics of my experience and treatment
here, if you want to check it out. I think I list some of the herbal treatments, as well as the abx. Keep up the hope, but it's not a piece of cake, and you need to find a doc that knows what he or she is doing.
DaveS

Posted by HaplyCarlessdave (Member # 413) on :

Upon checking the page i ref'd, I see I in fact didn't say too much about the herbal stuff there.
What I took was:
grapefruitseed extract and olive leaf extract, 250 mg twice a day of each, with at least 8 oz of water, on on empty stomach.

garlic- two or 3 pills of the solaray or greenstar encapsulated formulations and/or several cloves of raw garlic, along with some food, chewed to release the alicin (thththththttt!!),

cat's claw,
colloidal silver,

and, specificly for for babesia, artimesia anua. (I took the pharm stuff for this, atovaquone, in a combi called 'malarone', too.)

Along with this I also took 'nutrijoint', then 'nutrajoint' (with an "a"; a powder)-- keep these well-separated from doxycycline, though!--they interact with it!

And other vitamins to the extent I could find time to choke down a few MORE pills...

Yes, there's lots of stuff to think about. Just stay cool and maximize your chances at every step, and stay in tune with how your body is reacting to it all.

Best wishes for as quick and as complete a recovery as possible!
DaveS