This is topic IVIG in forum Medical Questions at LymeNet Flash.


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Posted by winsomme (Member # 5623) on :
 
i am having trouble getting the search feature to work, so i was wondering if someone could help me locate a website that was posted here in the past.

it was posted by someone who is using IVIG, and the site is for IgG deficiencies, and has a forum where they talk aboout IVIG treatments.

could that person, or someone who knows what i'm talking about give me the link to this site?

thanks
bill
 


Posted by spitz (Member # 7023) on :
 
Bill I'm new here so I can't help, you with the site however I can possibly help you with some IVIG questions. I was originally diagnosed with CIDP; the first line of attack is IVIG. It looks like I probably have Lyme now, but I have first hand experience all about IVIG's. Please ask away if I can answer anything for you.

Spitz

 


Posted by yankee in black (Member # 4309) on :
 
Hello Winnsome,

I use IVIG--- I have a primary immune deficientcy--


The site you are looking for:
www.primaryimmune.org

you can read the postings without knowing the **code**, but to post, you must contact patient advocancy--# listed on the site--to recieve the password to post questions
 


Posted by winsomme (Member # 5623) on :
 
thanks for the replies.

yankee
yeah that's it, thank you.

spitz
i'm not sure what info i need right now, but i will probably drop you a note soon. thanks.

bill
 




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