I've recently been experiencing heart palpitations and an episode of SVT. I am investigating possible heart problems with a cardiologist, etc., but in the mean time, my Mom and I have started putting 'two and two together.' She has had lyme/been successfully treated. Over the last 10 years I've had incidences of heart palpatations, recurring undiagnosable throat infections, various rashes (all diagnosed as allergy or 'dermatitis'), a few weeks of intense 'itching under the skin' which got worse when exposed to the sun, knee pain, pain in my jaw joint, tingling in my hands and sometimes feet, and floaters in my vision that I've never noticed before especially in the light. all of these things only lasted a short period of time and never seemed like much on their own, but some, like the heart palpatations resurfaced years later. I've also noticed lately a feeling of an adrenaline rush that only lasts a few seconds but happens when i'm merely sitting at my desk. I was tested once for Lyme and it was negative - but it was just a regular blood test ordered by an allergist b/c I asked for it when i was investigating one of the weirdo rashes I get. I've also been tested for thyroid dysfunction numerous times and have obviously had regular blood tests done. all were normal. Like I said, between my Mom's experience and the list of symptoms when I put them all together, it seems like a possibility?? If so, how do I find a good doc in my area/get tested? (My Mom is in a different state and I'd rather find someone closer to home)
Posted by patdetweiler (Member # 7030) on :
Sounds Lymey to me. Ask (insist) your local doc to order a Western Blot (not a Lyme titer or Lyme ELISA-useless test) and get a copy of your results. Come back here and tell us which bands are positive if any. Check out support groups and find one near you. Phone them and they'll help you find a doctor.
Posted by Lymetoo (Member # 743) on :
Welcome!
and get that Western Blot done at Igenex Labs in CA.... www.igenex.com
You don't say where you are located. You can tell us here, or go over to Seeking a Doctor and post your location so someone can help you find an LLMD.
Here's the list of Lyme symptoms. You need to also be checked for babesia. It is notorious for causing heart symptoms.
1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
------------------ oops! Lymetutu
Posted by Lymied (Member # 6704) on :
I say skip the traditional labs and go with IgeneX Labs. I tested negative twice with conventional labs.
Don't forget to get tested for coinfections. You not only need to know if you have them but treat them appropriately. Typically you want to get those out of the way first then go after the lyme.
Good luck finding your LLMD and I hope you feel better soon.
Posted by kelkirsten (Member # 7129) on :
Thanks for the help and insight!! I'm in Baltimore if anyone knows of an LLMD in the area. I will begin my search and come back when I have test results to share.
Posted by okie lyme (Member # 7130) on :
[QUOTE]Originally posted by Lymetoo: [B]Here's the list of Lyme symptoms. You need to also be checked for babesia. It is notorious for causing heart symptoms.
I'm new here, and sure am glad I found you all. I haven't been tested yet, but most of these symptoms I have or have had in the last 20 some years, the newest is a few seconds of double vision at times, and arthritis with tons of muscle weakness especially on the right side. Bell's Palsey I've had on both sides in 95 & 97. I'm lost, confused, I hurt, , I've been ridiculed, told I'm getting old ((only 53 thank you))and truly miss walking, tae kwon do, and the daily homemaker thing without pain. There's no insurance. so i'm saving up to pay for the test. I the I gen X or waht ever it is lab one of the more reliable ones?? The doc I have now is a great lady, and willing to help me any way she can with the limited knowledge here in Oklahoma. Thank you for being here
Posted by HaplyCarlessdave (Member # 413) on :
Your symptoms sound classic. ind a "Lyme Literate" doc right away, and get on some hard-core antibiotics.! The tests are often not conclusive, even for those who have had the ticks with the classic rash around the bite site (the ultimate test)- I'm one of those! Yeah, you might have positive tests later on if you wait. But then, the lyme will have gotten deep into your system, and probably deep into your brain. You don't want that. Lyme is nastier and nastier the longer it remains untreated. Meanwhile, it might be good to start grapefruit seed extract and olive leaf extract, 250mg of each twice a day. Not to mention, to start chokomg down mountains of garlic. And anything else that seems reasonable to try, based on others' reports and on your thinking it through. DaveS
Posted by lou (Member # 81) on :
Okie lyme - Have you discovered other forums on this website, like general support for instance. Just recently someone posted a notice about a new OK support group, which I am putting here for you. Just click on it. http://flash.lymenet.org/ubb/Forum3/HTML/012312.html
oops! 