LymeNet Flash: Headaches and facial pain

This is topic Headaches and facial pain in forum Medical Questions at LymeNet Flash.

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Posted by SteveInMinnesota (Member # 6661) on :

My LLMD told me last week that I couldn't take anything with Acetaminophen for my headaches and facial pain. I'm trying Naproxen and Asprin and it doesn't seem to do anything at all. This pain is making it almost impossible to do anything. I sit at my desk and hope no one notices my eyes watering from the pain.

After 3 months of oral antibiotics, I'm switching to an IV on Thursday. I'm meeting with my boss in 2 hours to tell her what's going on. I'm worried that I'm going to get fired over this.

Damn, I hate LD. I guess I'm not looking for any feedback here, just needed to vent a bit. (And to look like I'm working)...

Anyone else working 8-5 with Lyme? How do you do it?

Posted by treepatrol (Member # 4117) on :

Did 7am to 3:30pm everyday hang in there.
Motrin, aleave helped.When really bad vicodin.

Posted by hatsnscarfs (Member # 6562) on :

Im curious, why no Acetominophen? Tylenol with codeine saved me when I had horrible facial pain after Bells Palsy. Getting pain under control is key for me to function.

In my experience when I have had severe pain (now from Lyme and in the past from Ovarian Cysts) that made it very hard to work or concentrate I was able to function best by taking small amounts of strong pain killers every few hours. Taking a large dose would kill the pain but would also make me fuzzy and unproductive. Codeine works best for me. I don't know if it available without acetominophen.

I was always surprised how much more productive I was when taking painkillers that when trying to just tough it out through the the pain.

Aspirin, tylenol, advil never did much to help me with pain.

Fortunately my work schedule is flexible and I am able to work from home a lot. I don't think I could have kept up a regular schedule in my first months of treatment. Now I probably could.

I hope you have an understanding boss.
hatsnscarfs

Posted by liz28 on :

My headaches came from two different sources: the cyst form of Lyme, and undiagnosed bartonella.

If you also have swollen lymph glands, a sore throat, and ickiest of all, nosebleeds along with the headaches, consider rifampin or levaquin for bartonella.

Flagyl is a rough abx, but it does help with Lyme headaches.

Posted by pab (Member # 904) on :

Steve,

I'm also curious about the Tylenol.

Jake and Jordan have severe, unrelenting headaches. Tramadol/Tylenol helps take the edge off the pain.

Lumbar punctures are the only thing that has helped them significantly.

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Posted by SteveInMinnesota (Member # 6661) on :

I don't know why she told me that I couldn't take Tylenol. I will e-mail her and ask and post the reply here. Advil Migrane and Tylenol sinus relief seemed to help me in the past. Nothing is helping right now.