IgM western Blot IND
18 kDa +++
22 kDa -
**23-25 kDa IND
28 kDa -
30 kDa +
**31 kDa IND
**34 kDa -
37 kDa -
**39 kDa +
**41 kDa IND
45 kDa +
58 kDa +
66 kDa +
73 kDa -
83 kDa -
93 kDa IND
Thanks very much,
Spitz
+++ definate
+ there not as strong
By all that I would say welcome to the club.
Spitz
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A copy of this is stored in computer Help section.
Updated 04/12/2005
[This message has been edited by treepatrol (edited 13 April 2005).]
robi
Spitz
Therefore band 18 and 39 are the ones I am most interested in, Any opinions?
Thanks
Spitz
According to conversation with nurse at the J clinic in NC: 23,39,41,and 49 are signifiicant bands.
So yes, it looks positive to me .... but I am not a doctor.
robi
So I'm not sure of what I have. Lyme, maybe. The LLMD doesn't take my insurance.
This is getting old.
Spitz
Yes.. there are. Unfortunately, none of them are practicing LLMD's .. sorry. None of us are able to diagnose Lyme or rule it out... test or not. We can only share experiences and literature for you to think about... and share opinions. It would be up to a LLMD to treat you for Lyme or not... or to determine if your history, symptoms, and test results add up to make Lyme a clincial diagnosis.
"The test says at least two bands need to be positive for me to have Lyme, I have one positive and three Borderlines. Can you sort of have Lyme?"
Can you sort of be pregnant? Probably not. But if you argue your tests results with what we call an IDiot duck.. you will most likely never convince them of anything... and they will give you the standard.. "I don't know what it is... but it isn't Lyme". You know.. the A.B.L.S.- Anything But Lyme Syndrome. They still haven't read the CDC info that states that negative tests are NOT to be used to rule out Lyme... and that Lyme is a "clinical diagnosis".
Plus.. you said you only have one band positive? Maybe I am not seeing it correctly here.. but don't I see 6 positive bands? And 4 equivical?
A band does not have to have multiple "+++" signs to read positive. If IND is equivical.. then one "+" shows reactivity. If there was nothing showing on that band.. it would read "-".
"I went to the infectious disease doctor today, he said if I had Lyme the Western Blot would have spelled it out, it would have been obvious."
He is full of bologna.
And he has misread the tests. But that isn't anything new. He told you several things that were wrong... sorry.
"He said he would guess my chances of having Lyme is about 20%, not enough in his mind to give antibiotics."
And a dope too... hmmmmm.. sounds about normal for that kind of duck. We have maybe 4 ID doctors who know ANYTHING about Lyme. They are VERY good. The rest are so stinking rotten even the local dump won't allow them within 200 miles of the place.
"So I'm not sure of what I have. Lyme, maybe."
Did the ID duck bother to run tests for coinfections? That would have helped. Did they do a CBC, ANA, or any other tests? If it isn't Lyme.. what did they say your problems were from?
My bet is they didn't say what you had.. just that it wasn't Lyme. Am I close?
By the way... This doesn't look like an Igenex test. Was it done by another lab?
"The LLMD doesn't take my insurance."
Blame that on the ducks and insurance companies.
"This is getting old."
Yes.. thousands before you have thought so also. Please be sure to let the health departments, CDC, medical boards, etc. know how you feel. THEY can do better and not make it so hard for folks to get diagnosed and treated.
You said you were concerned about the 18 band and the 39 band because you feel those are the best indicators of having Lyme.
Since they show positive on your test.. what exactly is the question you still have?
Also.. what were the results of the other half of the test? The IGG? Any bands there?
Try reading some literature by Tom Grier for better Western Blot explanations. Then perhaps it will be clearer for you.
The Wilder Network has a collection of Tom's articles.
------------------
If you get the choice to sit it out or dance...
robi
I believe the 39 band is positive later than the 23 and 41 bands, so it usually means the Lyme has been around a little while- but I'm not sure on that.
Your 41 band is indeterminate..it wojld be strange to ahve a positive 39 and a negative 41, but it isn't negative.
A good Lyme doctor could interpret all this for you. Presumable you are having symptoms, since you had the test in the first place.
If you go on antibiotics, your Western Blot mayb ecome much more definitely positive. Mine did.
My son had only the 83/93 band positive and I am taking him to Dr. D in Boston today. Three of us have Lyme, he's had classic symptoms in the past, but is fine now (most of the time). I am still having him checked out by an LLMD.
Tincup thanks for your reply please see below:
Spitz "Come on, there are a lot of Lyme literate people on this site."
TC Yes.. there are. Unfortunately, none of them are practicing LLMD's .. sorry. None of us are able to diagnose Lyme or rule it out... test or not. We can only share experiences and literature for you to think about... and share opinions. It would be up to a LLMD to treat you for Lyme or not... or to determine if your history, symptoms, and test results add up to make Lyme a clincial diagnosis.
Spitz Understand, after my last three doctors, I don't have much faith.
Spitz "The test says at least two bands need to be positive for me to have Lyme, I have one positive and three Borderlines. Can you sort of have Lyme?"
TC Can you sort of be pregnant? Probably not. But if you argue your tests results with what we call an IDiot duck.. you will most likely never convince them of anything... and they will give you the standard.. "I don't know what it is... but it isn't Lyme". You know.. the A.B.L.S.- Anything But Lyme Syndrome. They still haven't read the CDC info that states that negative tests are NOT to be used to rule out Lyme... and that Lyme is a "clinical diagnosis".
Spitz I asked him about the CDC and what they state, he dismissed that.
TC Plus.. you said you only have one band positive? Maybe I am not seeing it correctly here.. but don't I see 6 positive bands? And 4 equivical?
Spitz Igenex states that two of the five double** must be positive, they do not count band 18 which really confused me with Dr. Jones'statement about band 18.
TC A band does not have to have multiple "+++" signs to read positive. If IND is equivical.. then one "+" shows reactivity. If there was nothing showing on that band.. it would read "-".
Spitz "I went to the infectious disease doctor today, he said if I had Lyme the Western Blot would have spelled it out, it would have been obvious."
TC He is full of bologna.
And he has misread the tests. But that isn't anything new. He told you several things that were wrong... sorry.
Spitz "He said he would guess my chances of having Lyme is about 20%, not enough in his mind to give antibiotics."
TC And a dope too... hmmmmm.. sounds about normal for that kind of duck. We have maybe 4 ID doctors who know ANYTHING about Lyme. They are VERY good. The rest are so stinking rotten even the local dump won't allow them within 200 miles of the place.
Spitz "So I'm not sure of what I have. Lyme, maybe."
TC Did the ID duck bother to run tests for coinfections? That would have helped. Did they do a CBC, ANA, or any other tests? If it isn't Lyme.. what did they say your problems were from?
Spitz He said the first two doctors did not run enough test. The first two were neros so they ran only nero test, this doctors was an infectious disease doc so he ran infectious disease test, 9 of them, waiting on results.
TC My bet is they didn't say what you had.. just that it wasn't Lyme. Am I close?
By the way... This doesn't look like an Igenex test. Was it done by another lab?
Spitz It was Igenex, by the way I had the Western Blot done a month ago by LabCorp, band 41 was the only positive one on that.
Spitz "The LLMD doesn't take my insurance."
TC Blame that on the ducks and insurance companies.
Spitz "This is getting old."
TC Yes.. thousands before you have thought so also. Please be sure to let the health departments, CDC, medical boards, etc. know how you feel. THEY can do better and not make it so hard for folks to get diagnosed and treated.
TC You said you were concerned about the 18 band and the 39 band because you feel those are the best indicators of having Lyme.
Since they show positive on your test.. what exactly is the question you still have?
Spitz Why Igenex dismisses band 18.
TC Also.. what were the results of the other half of the test? The IGG? Any bands there?
Spitz I didn't include because if I have Lyme it has been for over a year however band 18,41 & 58 were positive and bands 30,31,39,45,& 66 were borderline.
TC Try reading some literature by Tom Grier for better Western Blot explanations. Then perhaps it will be clearer for you.
The Wilder Network has a collection of Tom's articles.
Spitz OK Thanks
Robi, thanks for your input.
Lyddie, please see below:
Lyddie Our LLMD would say you definitely have Lyme with a positive 39 band, which is specific for Lyme and cannot be cuased by anything else (I have researched this myself, to see if, for instance, autoimmune illness coud cause a positive 39 band but the answer is no).
Spitz I was under the same impression.
Lyddie I believe the 39 band is positive later than the 23 and 41 bands, so it usually means the Lyme has been around a little while- but I'm not sure on that.
I was positive on band 41 on the IgG and on both on the last western Blot
Your 41 band is indeterminate..it wojld be strange to ahve a positive 39 and a negative 41, but it isn't negative.
A good Lyme doctor could interpret all this for you. Presumable you are having symptoms,
since you had the test in the first place.
Spitz Yes, weakness and numbness in hands and legs, a lot of the classic Lyme symptoms, only thing I don't seem to have is any pain.
Lyddie If you go on antibiotics, your Western Blot mayb ecome much more definitely positive. Mine did.
My son had only the 83/93 band positive and I am taking him to Dr. D in Boston today. Three of us have Lyme, he's had classic symptoms in the past, but is fine now (most of the time). I am still having him checked out by an LLMD.
Spitz Good luck, I hope it turns out well
Thanks everyone
Spitz
quote:
Originally posted by spitz:
For those of you out there that are Lyme literate, here are my IgM test results, I've read about the Western Blots on this site and it seems that band 39 is the clincher but I would be appreciative of your opinions as to weather I have Lyme or not.IgM western Blot IND
18 kDa +++
22 kDa -
**23-25 kDa IND
28 kDa -
30 kDa +
**31 kDa IND
**34 kDa -
37 kDa -
**39 kDa +
**41 kDa IND
45 kDa +
58 kDa +
66 kDa +
73 kDa -
83 kDa -
93 kDa INDThanks very much,
Spitz
I'm sick of these stupid freakin doctors who sit on their fat asses all day doing nothing! They don't know anything, they're medically incompetent and they get paid to sit there and say " I DUNNO". EHHHH.
A lot of docs also think that the more bands you have, the sicker you are.. and those who have less positive bands are healthier. THIS is incorrect: The sicker ones have less bands because their immune system's not fighting the illness ; they're usually the chronics with the defected immune system.
DON"t LISTEN TO THESE DUMB ASSES: don't know where they finished med schools, in the ponds"QUACK" .SO please just follow your instincts - find a good doc and stop wasting your time. I saw 365 docs last year , now I can write down every foolish answer the'll give me and I don't even have to go see them!Go get a real LLMD . Do your test in IGENEX. Lastly, I took abx for 5 months before I did my testing: It really activated my Lyme and my results were positive. Keep your chin up. In our cases, we have to be our own advocates .
Lynn xoxo
I'm sick of these stupid freakin doctors who sit on their fat asses all day doing nothing! They don't know anything, they're medically incompetent and they get paid to sit there and say " I DUNNO". EHHHH.
A lot of docs also think that the more bands you have, the sicker you are.. and those who have less positive bands are healthier. THIS is incorrect: The sicker ones have less bands because their immune system's not fighting the illness ; they're usually the chronics with the defected immune system.
DON"t LISTEN TO THESE DUMB ASSES: don't know where they finished med schools, in the ponds"QUACK" .SO please just follow your instincts - find a good doc and stop wasting your time. I saw 365 docs last year , now I can write down every foolish answer the'll give me and I don't even have to go see them!Go get a real LLMD . Do your test in IGENEX. Lastly, I took abx for 5 months before I did my testing: It really activated my Lyme and my results were positive. Keep your chin up. In our cases, we have to be our own advocates .
Lynn xoxo
Thanks very much for your reply Lynn, it seems as though you have been through a lot to finally get help, how are you feeling? I'm having another Elisa test ran and also a Rheumatoid Arthritis test. It seems relatively sure with band 39 positive that I would be able to get a Doc to say its a high likelihood that I have Lyme. I sure am glad you seem to finally be on the right path, I hope you are feeling well.
Spitz
Spitz