I've heard this discussed before and how its help but not sure what people take for it.
I believe they referred to it as ORTHOSTATIC INTOLERANCE and NEUROCARDIOGENIC SYNCOPE.
My fatigue is really bad and I feel like I can not even sit up at times cause my body is so heavy and tired and light headed and I have numbness in my head at times, and feel like I'm going to pass out.
Could you please share what has helped any of you.
Below are my test results and some venting should you like to take a look at it.
TEST RUSULTS>>>>>>>
INDICATIONS: Syncope
IMPRESSION: Positive tilt table test for relative bradycardia, hypotension, and pre-syncope.
Baseline electrocardiogram demonstrates sinus rhythm, without evidence of infarction or ischemia. Systolic blood pressure is 130.
The patient underwent a tilt table test. She was put upright for 15 minutes. She became tachycardic at 13 minutes to a rate of 108.
She suddenly became relatively bradycardic with a heart rate of 63 and then her blood pressure dropped from 130 to 86. She became nauseous and pre-syncopal. The patient was then put in the supine position with resumption of symptoms.
[[If I understand this report right does pre-syncopal mean I almost passed out?
Cause they said we are sorry we just needed to have you pass out for the record, before we could bring you back down.]]
I have though for 3 years now my test was positive and my cardioligist told me it was neg. and I always have disagreed, finally I went and got my records at the hospital and sure enough in black and white!
I'm very angry that this Dr. lied to me and that I got his office notes and follow up letter to my PC etc. (did all my homework except for the hospital records).
He insisted I had a neg. test!
I've had a lot of good Drs. but boy I have had my share of AS@#oles! and I have to wonder if they have made me sicker than the illness itself sometimes!
I remember arguing with my husband all the way home that he was wrong.
My husband of course took the Drs. side saying he's the DR. and he knows more than me!
[It's been a long 3 years!Glad I finally got to the bottom of this, almost wish I was wrong cause I'm so damm mad now!] Will this ever end?
Thanks for any help you might be able to give me.
Swiss
That's pathetic! What's the matter with drs these days? Why would he tell you it's negative when it was positive?
It's not like he had to treat you for Lyme or anything!
I "passed" my TTT because the stupid nurse didn't tell me to stop the Inderal LA for a long enough time. The dr said I should have stopped it for 3-5 days, not one day as she told me!
I take atenolol now for the tachycardia. I don't know if it would help you or not. Do you have tachycardia often? I have it constantly without the atenolol.
I can't remember the other med you could take. Go to Wild Condor's site. She has NMH and talks about it there. www.wildcondor.com I think that's it.
editing to add....florinef is one of the drugs. It drove me crazy because it made me ravenously hungry! I quit taking it.
[This message has been edited by Lymetoo (edited 15 April 2005).]
It looks as though I have something called Bradycardia according to my test.
Bradycardia is an abnormally slow or unsteady heart rhythm (usually less than 60 beats per minute) that causes symptoms such as dizziness, fainting, being extremely tired, and shortness of breath.
I improved over time and now take only 50 mg Atenolol and 25 mg of zoloft.
High salt diet is a good idea, and you MUST stay very well hydrated, avoid heat, and take magnesium, lots of it.
Email me if you need help with anything!
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It does sound like you had a positive result and if they NEEDED you to pass out for the results, they shouldn't have brought you back down so quickly. I was left up for 25 minutes and they brought me back down when I was basically in the process of passing out (I didn't actually, but I couldn't see or hear anything when they did bring me back down so I was probably seconds away from passing out). They didn't require me to pass out in order to get a positive result so they didn't put me through that.
I've been put on meds since my very positive test. I was on Inderal for about two months with no improvement and now I've just started Florinef. My LLMD is also trying to get me daily IV hydration to help with it since hydration is a big issue with dysautonomia (dysfunction of the autonomic nervous system - NCS is one of these conditions). So far my insurance is denying coverage for the hydration but we're fighting for it.
Hope you can get some answers and get some treatment for this. It's possible a doctor might want to order a repeat TTT to push you further. It sounds like they took you down rather quickly when you started having symptoms so it's possible a longer test would be helpful. Not sure, though, just a thought.
--Annie
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