LymeNet Flash: M.S. or Lyme?

This is topic M.S. or Lyme? in forum Medical Questions at LymeNet Flash.

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Posted by 2MUCHLYME (Member # 4492) on :

Hello Everyone!
I am feeling very off balance and I'm very scared that this is NOT Lyme Disease and is M.S.! I will be very appreciative to any one that has gone through or somewhat the same thing! I think I do everything I'm supposed to do! With shots and oral antibiotics!

Posted by Lymeblue (Member # 6897) on :

When I asked the same question to my LLMD he prescribed Mepron for babs it worked!!!

Posted by 2MUCHLYME (Member # 4492) on :

Thank you Blue! I am on Mepron it does seem to help maybe it's also because I'm tired! Late night last night!

Posted by Aniek (Member # 5374) on :

I get vertigo sometimes, where I need to hold on to something or I feel like I will fall. This worsened when I first started taking Artemisin, so I'm pretty sure it's from Babesia.

I also think I have some circulation problems that may be related to low blood pressure.

I know a lot of people have gone through MS testing. The cause of MS is not known, so all they can do is treat the symptoms.

I'm considering seeing a neurologist for some of my neurological issues, just because I don't think my LLMD is best suited to know if any are signs of damage or another disorder. But I won't stop Lyme treatment.

Posted by islandgirl (Member # 5914) on :

HI...Off-balance and dizzy are the signs that eventually ground me to a halt, to seek medical care. CARE...what an oxymoron.

I had an MRI that showed numerous lesions on my brain. Was diagnosed with MS, then they decided I was too old for MS, and the neurologist dropped me like a hot potato.

Got another neuro, another MRi, lots of lesions thought due to possible 3 strokes. NOPE, eventually decided it wasn't due to stroke or clots from the heart, so they dropped me.

Now I am seeing an infectious disease Dr. (to see about getting a picc line and IV) who is intrigued with the lesions, and is ordering, guess what, another MRI!!

None of them can deal with my symptoms, they are not part of their speciality after all, but of course, it could NOT be lyme!! What gives with these jerks??

I would suggest you get an mri, just to see how the brain looks and eventually, if there are changes. But stick to your guns and your antibiotics anyway!! My LLMD and the 9 months of rx are the only things that are DOING something positive for me.

Medical specialists do nothing for ms except treat symptoms, and nothing for stoke except put you on warfarin and lipator, which screws up any sort of healthy eating and living.

Hats off to LLMDs and family doctors who stick with you!

Posted by suki444 (Member # 18960) on :

Hi
I've been through the M.S. V Lyme quandry...I had a lot of early onset M.S. symptoms - l'hermittes, high WBC in spinal fluid and optic neuritis, electric shock sensations, tingling etc however what I realised through talking to LLMD's is that M.S. IS LYME in a lot of cases (if not all).

I did have a known tick bite 15 yrs ago and recently got microscopy done on my blood and a Western blot, Babesia tests and was positive on all. Feeling off balance can be a Babesia symptom (see Dr B's 2002 guidelines - it mentions Babs symptoms).

The danger is if you think you have M.S. and then take the conventional treatment - steroids, as they supress the immune system and the Lyme could become incurable. Your LLMD should be telling you stuff like this.

There are tons of research docs in Pubmed that link M.S. to Lyme and instances of spirochetes being found.

BW
Emma

Posted by Kara Tyson (Member # 939) on :

You can have both MS & Lyme disease. MS can be caused by Lyme. It isnt necessarily an either/or situation.

Posted by CaliforniaLyme (Member # 7136) on :

I lost balance and fell over all the time also progressive weakness- and "rolling" beneath me and "earthquake" feelings when I walked sometimes as well as full body jolts that would make my whole body do a spastic jump and knock me off my feet if I was unfortunate enough to be standing when it hit- all Lyme. All gone with 9 months of IV Rocpehin, all was still there at 6 months Rocephin-

Posted by 8crow on :

Can you get a referral to a major research neurology clinic? It sounds like you have something going on if lesions are showing up on MRI. Have you had any skin biopsies done for neuro conditions? MRIs are not the only definitive neuro tests. Other tests like skin biopsies can show a myriad of diseases and conditions.

Posted by Lymetoo (Member # 743) on :

Lesions from MS look the same as lesions from Lyme. I think the only difference is in the location of them in the brain.

Try doing a search here on lesions. Be patient, as the search function is very slow.

You can access it by clicking on the little blue word "search" in the upper right hand corner of this page.

and YES, make sure you continue your treatment for babesia. It caused alot of dizziness for me too.

------------------
oops!
Lymetutu

Posted by 2MUCHLYME (Member # 4492) on :

Thank you for everyone replying! It was just real scary yesterday! I haven't felt like that in awhile! Late night the night before!

Posted by treepatrol (Member # 4117) on :

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