Hello everyone, I was wondering if anyone else is experiencing random twiches throught their body. These can occur anytime during the day. For history: I have been on biaxin XL since December 04 and my doc just added cefdinir 300 mg. While I still suffer from the symptoms you have all described, my legs are the worst and some days I have balance problems. I walk (when I can like a cripple and other days the pain is so severe it is intolerable and want to go to the ER just to get some relief.
Thanks for your help, Lynne
Posted by janet thomas (Member # 7122) on :
Was the ER any help? I know where I'd put my money.
Posted by hiker53 (Member # 6046) on :
Are your twitches small--like when an eyelid twitches when one is tired or are they large.
Small twitches are called benign fasciculations and mine were relieved with magnesium supplements.
Larger twitches or muscle jerks are called myoclonus and I take seizure meds to control those (keppra and klonopin).
I, too, have trouble walking and am off balance frequently. Physical therapy balance exercises helped a lot. I recently added in minocycline and it seems to help, too. Best wishes.
Posted by Stephanie (Member # 5941) on :
I have been twitching all over for 2 1/2 yrs. It seems a little better while on Biaxin. I have big & little twitches, myoclonus, single twitches & repetative, along with the "bugs crawling on skin" feeling and tingling. I was diagnosed w/ benign fasiculation syndrome. It may or may not be due to Lyme. Check out www.aboutbfs.com. There are over 1,000 members who twitch.
Posted by DR. Wiseass (Member # 6777) on :
Sometimes when I lie still in bed, trying desperately to relax and go to sleep, the muscles in my limbs (& sometimes even my stomach) start to twitching and tremoring like I'm part of some Vaudeville act or something -- all I need is the music!
I'm still a relative newbie myself, so I've yet to get ALL the associated diagnoses that come with Lyme - altho my neuro did say I was having temporal lobe seizures. Yipee.
I know it's scary, and you should definitely talk to your doc about it, but unless you're in a LOT of pain, I'd try not to waste energy worrying too much about it.
Blessings,
------------------ DR. Wiseass - not a real doc - just a real wise ass. www.twistoflyme.blogspot.com
Posted by betsy (Member # 7105) on :
Hiker, How long did it take for mag. supplements to make a difference with the fasciculations? And are all fasciculations as a result of lyme benign? How were you assured that they were benign? I have them and they scare me to death! Thanks for any info.
Lynn, you are definitely not alone...many folks have these!
Posted by LynneR (Member # 7024) on :
bETSY, thanks so much for yor reply and encouragement. some days i just want to give up but i canno becaue of my two girls (14 and 23 in law school. They are all i care about. take care and god bless.
lynne
Posted by duke77 (Member # 5051) on :
I get the twitching too never can tell when or where it happens. I too have noticed that when I started taking a separate Magnesium supplement the twitching is few and far between now.
Posted by Mathias (Member # 5298) on :
I have twitched for 20 months now. First it was caused by lyme, then a CNS mycoplasma infection.
I've been treated with 11 different antibiotics and/or combinations and increased my magnesium. It has improved but it is still there.
Just started Cat's Claw this month, we will see if that helps.
PS - I don't believe in BFS. That was my original diagnosis along with anxiety!
[This message has been edited by Mathias (edited 25 April 2005).]
Posted by LarsFN (Member # 6738) on :
I have been twitching for about 15 months now and don't know the cause of it. It could be benign fasciculation or perhaps Lyme which I am looking into now. Seeing a LLMD in about a months time.
I think a lot of people twitch and it is very scary when you don't know what is causing this. I am scared to. I have been taking Magnesium supplement for about a couple of months and this has reduced the twitching.
Like many others I have been given the "diagnosis" Anxiety perhaps along with BFS though neurologist and doctors has never accepted the I even had twitches because they could not see them.
[This message has been edited by LarsFN (edited 26 April 2005).]
Posted by LynneR (Member # 7024) on :
Bryan, thanks so much for your response. I will certainly chech out the reference materials you recommended. So much to learn about this disease but I will do anything to get my life back. Lynne
Posted by wrotek (Member # 5354) on :
All the time man. Since the beggining of my disease ,have this twiches since 4 years. The worst are in heart ,than i am scared that they will stop my heart.
Posted by hiker53 (Member # 6046) on :
Betsy,
Sorry to be slow in my reply. It took less than one week for the magnesium to work and get rid of the twitches. I took mag glycinate and zinc at the same time. Hiker
Posted by electric (Member # 6572) on :
i have twitches all throughout the day. mostly small. (thumbs, back,thighs,eyelid,arms, anywhere i guess)
they always make me wonder whats going on down there.
electric
Posted by MI51951? (Member # 7212) on :
Ive had twitching like youve described for about 15 years. Had lyme for about 30 years. The magnesium definately helps a lot but you have to take the right kind. One kind (slomag?) builds up in your system over a two week period and them WHAM you have the screaming s's in the middle of the night. Other types of magnesium (calmag??) didnt do this in my experience.
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