[This message has been edited by pippy (edited 21 July 2005).]
 

Somtimes I will notice success with the new ABX, and sometimes I don't. If I switch and don't notice improvement, then we swap it out for another ABX. It takes a lot of patience, but I always have hope that the next ABX choice may be the key to my cure.

My best,
Jewl
 

Now I'm on ketek with cedax.

Sometimes it is necessary to switch around, but unfortunately I don't know anything about mepron.
 

I talked to you about my recent rough time, thought I would let you know what I ended up doing. I stopped taking the Mepron, as there was just absolutely no evidence of any improvement.

I have just started taking Tinidazole with the Zithromax. This keeps both me and the LLMD happy. This combo is supposed to treat babesia, according to Dr. S in SF, and it also treats Lyme, including the cystic form, which may be part of your trouble.

Now, this may or may not be your answer. Tinidazole, like Flagyl, can increase depression. However, for me it has been worth it, because it also gives me measureable improvements. I take it pulsed, giving myself time off when the side effects get to be too much.

It DOES cause herxing, headaches, heart stuff, depression, but in the inbetween times I feel SO MUCH BETTER. This may not be the combo to do that for you, but something will. I've been miserable for six months, and am finally getting some relief.

As the other folks suggest, there are other orals to try, as well as the possibility of the IM and IV. On warning on the IM. My son has found that IM Biccilin LA is back ordered right now, and he is having to use the CR.

BTW, I saw What the &*%**% Do We Know? the other day.While it has some very interesting points, how seriously can you take a movie whose main speaker is a 35,000 year old chanelled entity called Ramtha? Some interesting ideas here, but no secrets on how to heal Lyme disease.

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Sonoma County Lyme Support
[email protected]
 

I really use the information and questions provided here to have the ammunition/education to bring to the docs attention.

I still have the tingling thumbs, EVERY A.M. It's such a minor thing in the scope, but I'm waiting for it to disappear. I've actually felt more vertigo the past week and I havent felt that in about a year.

I think I forgot about the vertigo because I had so much back and body pain.

I will get back to you after my appt. Let me know what happens.

Yes, it is frustrating and when you feel you've got to do something NOW, make the appointment. It's what I did last fall and I'm certain that I would be hospitalized right now if I hadnt.
 

It's good to hear other stories to know this is not unusual in Lyme treatment. I feel funny about bugging my doctor but I got the courage to say something because of the support here.

One of the worst sx for me right now is depression. I dont know if its because i have been going backward or if its a reaction to disappointment (having gotten my hopes up with how well i was doing) kind of reality setting in, or mostly the lyme. the doc thinks it is the babesia....but i just do not want to take any chances...

we'll see what he says...i'll let you know how it goes!
Thanks!

PS. Do other people find that the depression that comes with Lyme is not easily treated with meds? that is what i am finding....no antidepressant meds can break through it. that is by far the worst part of the disease for me.

Thanks everyone!
 

I feel like that a lot...especailly when i have to interact with family and people who are "on the other side" like i live in a whole other world....i just don't want to have to explain myself or bother with putting on a happy face and looking good so they think everything is fine when its not...my mom said that i looked so good and everyone was happy to see me smile and look good...uuuuggghhh i know she means well! that is the hardest part...family gets sick of it and you find yourself losing support. it goes on and on....they can't relate so they just get more distant. i know i would not know how to help someone with this problem...

That is the worst part of this for me....may be a vicious cycle with the depression too....my family does not know how to help me. i can't say that i blame them...i get sick of my tired complaining a** also! ;-)

Thanks for being here...this is a life saver having you guys to lean on when the family is running out of patience (i can't say i blame them) I dont tell freinds about it (except lyme friends here) because that would really be a great way to chase them off!

pip

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oops!
Lymetutu