LymeNet Flash: Up all night with vibrations...need advice

This is topic Up all night with vibrations...need advice in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/33888

Posted by Bill ATL (Member # 7817) on :

Hi everyone...thx in advance for your input/advice.

I'm 1 week into Abx (Mino & Zithro).

Last night my vibrations returned in my arm and face so bad that I got MAYBE 1hr sleep. I also had sporadic muscle twitches in my leg and arm (left side as has always been the case). This does not seem to be a herx-type of reaction. This morning after getting out of bed, it seemed to feel like my face was numb, and when I smiled, it seemed like it took more effort than usual from my facial muscles. As I continued to check the mirror, it seemed like the skin on my face was sagging more. It's not one sided, and has been fairly gradual. Not sure that I'd say Bell's palsey right now, because it's been gradual.

Could this be a reaction against the Mino/Zithro?

Has anyone had this before? I think Bell's is treated with anti-malarial ABx...is Mino an anti-malarial?. Do I need to have my LLMD get me on them...just in case? Will it work with Mino/Zithro? or replace?

Thx for your replies!

[This message has been edited by Bill ATL (edited 09 May 2005).]

Posted by hatsnscarfs (Member # 6562) on :

Hi Bill,
I had Bells Palsy last Summer. I have some days now where my face feels 95% normal. Other times parts of my face get numb and it feels harder to talk because my tongue is semi numb. It takes extra effort to smile or have normal facial expressions. The inside of my nose goes numb. Most of the numbness is on the left side where I had BP but I do get a little on the right side now too.

It gets worse when I am tired, stressed or in sunlight.

I had intense vibrating feelings in my hands and feet for many months. It is milder now and I do have periods when it stops. For me the most useful thing for stopping it and also sleeping through the night is podi patches from www.akgnaturals.com. The original patches are better for stopping the vibrating, the new Heaven Patches don't smell as much but don't seem to work as well on stopping the vibrations. Discount detox pads from other sources do not work as well.

Soaking in Epsom salts also helps. 1 or 2 cups per tubful and drink lots of water first.

The other thing that helps me keep the vibrating under control is eating on a regular schedule. I do best if I have many small meals each with some fat. If I get hungry or skip a meal my face goes numb and the vibrating increases. I follow a strict anti-yeast diet. I read that the fat helps release bile which binds toxins. I associate these symptoms with toxin buildup.

Hatsnscarfs

Posted by ivebeentricked (Member # 6944) on :

Wow, that is so wierd to read because I have experienced things so similar to those you described. When my LLMD asked me about facial paralysis, I said no but I have had numbness in my face, teeth, nose, also in addition to the numbness there is a kind of painfull tingling. I too get those twitched in my back arms and legs, primarily on the right side.