In my opinion, yes, LD can be dormant. I was bitten a bunch of times as a kid--but I think my immune system fought it off. It wasn't until I had my babies that my body just fell apart. I got hashimotos thyroiditis and active ebstein barr. I just thought i was going to go into a coma.

My doc thinks that after you get bitten over and over and over your body just succomes to the bacteria.

Please get the Lyme test, that usually results in false negatives, through a LLMD who knows that a negative test should be evaluated in the context of symptoms etc.

In fact, your immune system canharbour it in the synovial fluid of ...your left knee, until one day you land on it and ...boom, out comes the Lyme.

I'm so sorry you're facing these challenges. It takes a lot of energy and we have to be our own advocate and each others advocates. This is a great place to get the info and support needed in a situation like yours.

If there is a possibility of MS then there is a very strong possibility of Lyme. Good news.....there IS treatment for the cause of Lyme! With MS, there is no definitive test or known cause. The only treatment is treatment of symptoms for. MS is a cluster of symptoms which could better be called a syndrome.

I was not faced with your dilemma but I will take a diagnosis of Lyme over MS......just because there is treatment for a cause with Lyme.

Yes, Lyme can be dormant and as the others have said can be kept at bay by the immune system for many many rears. It was true in my case. That's what makes a diagnosis so misleading. Often the tick bite or bites are long forgotten. Life goes on and out of the blue, bang....strange and unrelated symptoms start to crop up. Or for some of us.....the symptoms crept up on us gradually. Bottom line....there are lots of different presentations for Lyme.

My only concern in reading your post is, who is doing the Lyme testing, what lab???. It's important to be completely evaluated by an LLMD (Lyme Literate MD). Lyme is first and foremost a clinical diagnosis. That's why I said if presenting as possible "MS".....there is a strong possibility of Lyme.

If you haven't already seen the links for new members, here ya' go..... http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

You can read about testing, LLMD's, misdiagnosis and much more with the link above.

Good luck and keep asking questions and reading, reading, reading!

Healing thoughts.....lightfoot

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]

"A friend is someone who knows the song in your heart
and can sing it back to you when you have forgotten the words".
Unknown

Get the test done from a LLMD-best of luck!!

My Lyme was sort of dormant for about 20 yrs then I was dxd with Fibromyalgia 25yrs ago....then Interstitial Cystitis, then finally discovered it was Lyme 4 1/2 yrs ago, over 45 yrs since I got my first tick bites.

So by that time, it had really ruined my life. Get proper testing NOW!

Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines http://www.ilads.org/burrascano_1102.htm

Rose's 15 Facts for Newcomers http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Camp A and Camp B http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Success Stories http://flash.lymenet.org/ubb/Forum1/HTML/022173.html

Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

The cause and spread of Lyme http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info: http://www.ilads.org/

Lyme Wars http://www.wildernetwork.org/Lyme_Wars.html

Lyme Disease State Info http://www.lymeinfo.net/support.html

http://www.anapsid.org/lyme/matthewgoss/index.html

------------------
oops!
Lymetutu

This is good for anyone to watch, and can be suggested that doctors watch to learn about lyme.

I got mine in Virginia too (and/or Pennsylvania). Had a short case of classic first-stage Lyme (without the bullseye though), got over it in spite of insufficient treatment... then 3 years later, neuro symptoms.

It took me over a year to get to a doctor who would treat me. That's before I found Lymenet.

Go get yourself to a LLMD, and get treated - now. No time to mess around with doubts and misdiagnoses. We call that the Duck Carousel - and it's better just to never get on it. Someone else may want to explain that term! (I wrote a long piece a while ago about this, but it fell off- it was post #011064 and the earliest post now is #020512!)

Good luck.

Newbies List 2005

WELCOME To LYMENET


Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. "Lyme literacy" means, first and
foremost, knowing how to diagnose the disease accurately. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Lyme Disease symptoms 2005
Lyme Symptoms 2005
Post for a LLMD in
Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Support Links LLMD's

Lyme State Info Cheryl's
LYME DISEASE TREATMENT & DIAGNOSIS
Cheryl's LDT&D
Lyme Disease Misdiagnosed As ...
Art Doherty Misdiagnosed
Art Doherty Lots a Links

Conflicts in Lyme

How to Search Courtesy of Danq
TC LymeNet Links for New Members
TC 50 Questions

TC Warning To Posters

Lida Mattman

DISEASE INFO - COINFECTIONS

Newbie's Lingo

Links for family members

Lyme Disease Audio Network
Dr B's Treatment Guidelines

Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society

Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B

MP Controversy
MP 2
MP 3
MP 4

Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

Labs
MDL
Igenex Labs
Q-RIBb
Western Blot Info

FDA It is important that clinicians understand the limitations of these tests

Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test.
- = Not Present
+ = Low
++ = Medium
+++ = High
+/- = Equivocal = Indeterminate its there but not as intense as low) )

See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Western Blot
Blood Brain Barrier

ABX `s Cross Blood Brain Barrier
Flagyl,= List of ****dazole's that I have found
Cyst's Treatment
ABX= Antibiotics

ABX'S Poll
Drug Interactions and Other Drug Info
Drug Digest & Interactions
Drug Interactions
American Medical Women's Association
Tiscali Reference Encyclopedia

Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction

Herxheimer Reaction Explained

Candidiasis

Quote Lida

Ilads

Yeast Problem Diet too
Oral Yeast
Oral Yeast
ZIPZIP Thanks

IntestinalFlora

Parasites
Put word Diarrhea in Search
Morgellons
Infestations

More Tick Disease
Infections by Bugs Ticks Mosquitos Lice Etc
Infectious Disease List

Coinfections 1

Coinfections 2

Bartonella Rash's

RMSF

RMSF Tree

RMSF Spotless=HME

Tularemia
Tularemia

Tularemia Rabbit Fever

Mycoplasmal Infections
Mycoplasmal CDC

Mycoplasma

Autoimmune Debate

Alzheimer's

Elderly Alzheimer's

ALS

Another Story

Lou Gerhrig's ALS

Lida M
Good Article ALS MS And More Etc
Good Article ALS
ALS
Lou G ALS
M S
MS
Danette MacDonald
I'm not giving up
ALSO trigger MS
Lyme a hidden danger
The saga continued
Tom Grier
Links

Lupus Lyme
Lupus Lyme Misdiagnosed
Lyme Disease Misdiagnosed as Fibromyalgia
Fibro Lyme

Lyme Misdiagnosed as other disease's
Lyme Disease Misdiagnosed As ...
CFS CFID
CFS CFID
CFS

Antibiotics Poll
Abx's Poll

Garlic Proper way to eat it
Garlic

Check Diet Link Atkins Diet

PORT-A-CATH (catherter)
Abx's Port

Prolotherapy

Transmission Lyme
Transmission Fleas Mosquito's Food Etc
Transmission Etc

Transmission Art Doherty

Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections

Good Site Canadian Lyme Disease Association
FDA on Lyme Testing

Legal Help
InsuranceLaws
Medical Records Privacy
Legal Help
Legal Help
Legal Help
Legal Help
Legal Help

MatthewGoss Site
GreatSite
MedicalDictionary

Cheryl's Site

MorphologySimplified

Tonsils crimson crescents

Killing Lymphocytes By Spirochetes

Wealth of Info

Support
USA Support

SupportGroups Canada
Canada SupportGroups
Associations, Foundations, and Support by Country

Marnies...... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1

In a Nutshell P2

Part1 Long over Due
Part2
Part3
Part4
Part5
Part6
Part7

Updated in a Nutshell
For My Friends

Canlyme MAG
Silver Discussions
Silver Treatments
Tom Grier on Silver
Grier

Help Free
Help with Meds
Help! Free Meds
Vitamins you should Know
Tests Synonyms Guide
Lab Tests Looky

Blood Donor Info
Pain Info
Pain Info

Female Related Problems

Female Issues
Unplanned Pregnancy
Pregnancy
Pregnancy?
TC Link Pregnancy
Insurance
Insurance SS
Disability Help Minoucat Bunches of Goody's
Permethrin
How to apply Permethrin
How to apply Permethrin Pic
Permethrin Site
Discussion on Repellants
ALDF Four Poster Coup
Tick Testing
Tick Testing
Herbs
Herbs Be Careful
HerbsCancer Center

Psychiatric Lyme
Fallon & Tager Report
Duramater NeuroPsych Info Kids&Adults
Neurologic Lyme
Neurologic Lyme

Dirty Truth
Sporadic Schizophrenia
Psychiatric Manifestations
Columbia Lyme
Schizophrenia & Lyme Disease
Sunra links

Scans & How they Work

How Cat Scan Works

How PET Scan Works

How MRI Works

How XRAY Works

How UltraSound Works
Explains LD50 Chemicals Toxicities
MSDS SITE
Silver

Interested in what Trolls are?
1.

2.

Remember This
Rules
Success Stories
Success Stories
Chat
LD Chat Room Links
Spirochetes Pics Link
SPIROCHETES FORMS 1
SPIROCHETES FORMS 2
SPIROCHETES FORMS 3
SPIROCHETES FORMS 4
Conspiracy Theories
US Patent Pathogenic mycoplasma
CDC CITATIONS
Citations

A copy of this is stored in computer Help section.

Updated 04/22/2005

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