LymeNet Flash: Can Lyme be dormant for a while?

This is topic Can Lyme be dormant for a while? in forum Medical Questions at LymeNet Flash.

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Posted by Momofthreeunder3 on :

I am asking because I came in contact with a lot of ticks when I lived in Virginia. I live in cali now and poss have MS but am getting tested for Lyme.

Posted by Linda LD (Member # 6663) on :

Mom of Three Under Three,

In my opinion, yes, LD can be dormant. I was bitten a bunch of times as a kid--but I think my immune system fought it off. It wasn't until I had my babies that my body just fell apart. I got hashimotos thyroiditis and active ebstein barr. I just thought i was going to go into a coma.

My doc thinks that after you get bitten over and over and over your body just succomes to the bacteria.

Posted by brainless (Member # 6771) on :

Yes.

Please get the Lyme test, that usually results in false negatives, through a LLMD who knows that a negative test should be evaluated in the context of symptoms etc.

Posted by troutscout (Member # 3121) on :

Absolutely.

In fact, your immune system canharbour it in the synovial fluid of ...your left knee, until one day you land on it and ...boom, out comes the Lyme.

Trout

Posted by lightfoot (Member # 2536) on :

Hi and welcome to Lymenet!!

I'm so sorry you're facing these challenges. It takes a lot of energy and we have to be our own advocate and each others advocates. This is a great place to get the info and support needed in a situation like yours.

If there is a possibility of MS then there is a very strong possibility of Lyme. Good news.....there IS treatment for the cause of Lyme! With MS, there is no definitive test or known cause. The only treatment is treatment of symptoms for. MS is a cluster of symptoms which could better be called a syndrome.

I was not faced with your dilemma but I will take a diagnosis of Lyme over MS......just because there is treatment for a cause with Lyme.

Yes, Lyme can be dormant and as the others have said can be kept at bay by the immune system for many many rears. It was true in my case. That's what makes a diagnosis so misleading. Often the tick bite or bites are long forgotten. Life goes on and out of the blue, bang....strange and unrelated symptoms start to crop up. Or for some of us.....the symptoms crept up on us gradually. Bottom line....there are lots of different presentations for Lyme.

My only concern in reading your post is, who is doing the Lyme testing, what lab???. It's important to be completely evaluated by an LLMD (Lyme Literate MD). Lyme is first and foremost a clinical diagnosis. That's why I said if presenting as possible "MS".....there is a strong possibility of Lyme.

If you haven't already seen the links for new members, here ya' go..... http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

You can read about testing, LLMD's, misdiagnosis and much more with the link above.

Good luck and keep asking questions and reading, reading, reading!

Healing thoughts.....lightfoot

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[This message has been edited by lightfoot (edited 16 May 2005).]

Posted by Nal (Member # 6801) on :

Yes it can!!! I broke out in miserable neurological symptoms 6 years ago. I was also living in VA at the time. However my LLMD has a theory that I could have contracted it as a kid-I had a very severely infected tick bite when I was 6. This lovely disease can do whatever the heck it wants to!!

Get the test done from a LLMD-best of luck!!

Nancy

Posted by Lymetoo (Member # 743) on :

Be sure to get tested by a lab that specializes in doing Lyme tests. I recommend Igenex. www.igenex.com

My Lyme was sort of dormant for about 20 yrs then I was dxd with Fibromyalgia 25yrs ago....then Interstitial Cystitis, then finally discovered it was Lyme 4 1/2 yrs ago, over 45 yrs since I got my first tick bites.

So by that time, it had really ruined my life. Get proper testing NOW!

Tincup's Links for new members
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Dr. Joseph J. Burrascano's Guidelines http://www.ilads.org/burrascano_1102.htm

Rose's 15 Facts for Newcomers http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Camp A and Camp B http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

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http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Success Stories http://flash.lymenet.org/ubb/Forum1/HTML/022173.html

Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

The cause and spread of Lyme http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info: http://www.ilads.org/

Lyme Wars http://www.wildernetwork.org/Lyme_Wars.html

Lyme Disease State Info http://www.lymeinfo.net/support.html

http://www.anapsid.org/lyme/matthewgoss/index.html

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oops!
Lymetutu

[This message has been edited by Lymetoo (edited 16 May 2005).]

Posted by timaca (Member # 6911) on :

Dr. F at Columbia University Medical Center states on his web site at www.columbia-lyme.org in his slide presentation, that lyme can be dormant for years.

This is good for anyone to watch, and can be suggested that doctors watch to learn about lyme.

Tina

Posted by cootiegirl (Member # 3216) on :

Yep.
My llmd said that in learning about my case there was a strong possibility this bugger could have been asleep in my system for about 30 years before rearing its ugly little lymie head....
cootiegirl

Posted by Lymetoo (Member # 743) on :

I think alot of people on this board have had Lyme alot longer than they think.

Posted by danq (Member # 2126) on :

Yes, definitely.

I got mine in Virginia too (and/or Pennsylvania). Had a short case of classic first-stage Lyme (without the bullseye though), got over it in spite of insufficient treatment... then 3 years later, neuro symptoms.

It took me over a year to get to a doctor who would treat me. That's before I found Lymenet.

Go get yourself to a LLMD, and get treated - now. No time to mess around with doubts and misdiagnoses. We call that the Duck Carousel - and it's better just to never get on it. Someone else may want to explain that term! (I wrote a long piece a while ago about this, but it fell off- it was post #011064 and the earliest post now is #020512!)

Good luck.

Dan

Posted by treepatrol (Member # 4117) on :

Yes it can and it dose way more than lay dormant it hides fron the immune system .

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Posted by beachcomber (Member # 5320) on :

You bet! I too was eaten alive by ticks as a kid. We lived next to a defunct farm that was loaded with them. I also had a great big bullseye 15 years ago that was dismissed as a black fly bite by an MD who was cranky that I had called him on a Saturday. I was ok for quite awhile. I attribute that to exercise, youth and a good spirit. As time went on I started putting on wieght and basically hitting middle age where everything gets a little screwy. Wham! I tested very positive for full-blown late stage Lyme. Don't wait to be tested and treated. I waited too long. All the signs were there: arthritis, tendonitis, pneumonia 3 times, fatigue, brain fog, allergies, etc.