Photo-sensitivity is a new and increasing symptom for me. It is causing me to be more active and awake and feel better at night. During the day I can't face the daylight, esp. with the spring.

Anyone else with this? What do you do? Some days I don't want to open my blinds, and then I don't get any sunlight.

I am not on doxy or any of the tetracyclines.

Thank you for any suggestions!
 

Very common lyme symptom, most on here have experienced this. My son often wore sunglasses in the house, or we kept shades pulled, etc.

As treatment progresses the light sensitivity should be less pronounced, and not as frequent. Our son is on the tail end of tx and he still gets it occasionally. For us, I think light sensitivity, stiffness, and fatigue are three of the last stubborn symptoms of this disease.
 

"lunesta", a sleep aid by prescription, will enable you to get back on your sleep cycle. it induces deep sleep and smooth transition into REM.

the photosensitivty can be fixed by abx, but the sleep cycle must fit into the circadian rhythm.
http://en.wikipedia.org/wiki/Circadian_rhythm
 

I will ask my doctor about getting Lunesta. I definitely need something like this.

I am starting to feel like a mole or other animal that lives in a dark hole. LOL. I don't mean depressed, just a nocturnal creature. Yikes - not like a cockroach! "In the dark" is taking on a whole new meaning.

Seriously, it is so frustrating. Normally I love the outdoors and we are having some lovely spring days. I will go for the sunglasses.

Thank you for writing!
Warm wishes to everyone to feel better very soon.

Zip zip, thank you for the link. I looked up that one and from there found a lot of links to sleep disorder sites. this is all very helpful!

Thanks
 

DX last year w/lyme after 34 years so I'm on doxycycline which has made them 200% more sensitive than what they were already.

Have you ever had a sleep study done to see if you have sleep apnea & stop breathing while sleeping?

I never had until 12-04 & 1-05; yes, I have that too and it proved I NEVER reach delta, level 4, where my body can heal & I wake up refreshed!

For more good info about your eyesight, here is: www.marshallprotocol.com and look for AUSSIE BARB's "easy finder" grouping many of similar posts together.

Read about NOIR, no infrared sunglasses. I bought the 2% & 10% sunglasses. By ordering online or over the phone, they should give you a discount if you mention the marshall protocol!

They will replace their scratched PLASTIC lenses & broken side parts...sorry I can't think of the word as usual! lyme talking again to me!

bettyg, Iowa
 

Thank you everyone, I am really grateful for the replies.

I do eat a lot of dairy.... have been trying milk and cheese and yogurt when I cannot sleep (because of some ingredient that supposedly hleps you)... I will look up this photo toxic link -- thank you!

I appreciate the responses! I definitely need to get my sleep schedule straightened out because it's affecting everything else.

Great cod and bettyg I will look up the info.

Thank you
Signed,
In the Dark
LOL
 

Happens to those who get too many degrees for a living, lol!

I'm finding Lunesta to be much better than Ambien w/out the rebound or REM depravation.

Now go out into the sun (if you can find any in rainy Beantown), and treat yourself (and me of course) to a 55 gallon drum of Herrell's Lyme Mint chip!