One of the primary little annoying things that is still lingering is the edema around my eyes. They are really puffy when I get up every morning. Like I cried all night. It seems to take all day long for the puffiness to go down just in time to go back to bed and get puffy again.
I think it is actually fluid. I can push on my eyeballs and here sqeaking as if fluid is moving.
I have seen this edema on some symptom lists, but what I want to know is, has anyone had this go away completely?
Posted by divemedic (Member # 7010) on :
WOW I am glad you asked that! I thought it was just me. I have cut out salt, I drink lemon juice each day, etc to try and reduce the swelling.... someone even said try Prep H under the eyes to reduce puffiness no luck so far
Posted by bpeck (Member # 3235) on :
Is it the eyelid itself swollen, with the space between the eyebrow and the top eyelid crease ok ? OR is the swelling in the space between the eyebrow and the top eyelid crease, and the eye lit itself is OK? OR both swollen.?
Barb
Posted by Pocono Lyme (Member # 5939) on :
JB
I just complained about this to my LLMD as it is not only annoying, but also affects my vision. The swelling goes from top eyelashes to eyebrows.
It extends to the bridge of my nose also. The right side is worse than the left and often pulls my right eye causing visual difficulties.
I got no response with this complaint but had med changes. I have some improvement since the med changes but not sure what is responsible. Now on Omnicef instead of Amoxi., increase in Diflucan, Vit C added. Shortly after, I felt sinuses draining and some improvement with the edema. Hope it continues.
Definitely an annoying symptom.
Posted by divemedic (Member # 7010) on :
for me it is mostly under my eyes like I have eaten too much salt or cried all night it usually takes all day to resolve no matter what I do
Posted by divemedic (Member # 7010) on :
mine seems to be more under the eye like I have eaten too much salt or cried all night takes all day to go away Posted by Gabrielle (Member # 5329) on :
Since two years now I have a swelling in the space between the eyebrow and the top eyelid crease. Sometimes it's better, sometimes worse but never going away.
Have been on a lot of different abx but nothing helped so far. When it's worse I have also more pressure on the eyes. At least it's not getting worse.
Is this Lyme, Bart, Babs or what?
Gabrielle
Posted by bpeck (Member # 3235) on :
I had swelling between the eyebrow and the crease in the top lid. Both eyes. On bad days it looked like a puffy half-moon above the eyelids... for over 15 years .. they hardly ever looked ok. (I thought it was some sort of food allergy). If I tipped my head upside down, they'd even get worse.
It was swelling of the LACRIMAL GLANDS (and mine were chronically infected) see this picture:
The good news, is that after having the problem for over 15 years, it went completely away during Lyme antibiotic therapy.
You just haven't gotten the right antibiotic yet.
Barb
Posted by pq (Member # 6886) on :
could be related to the thyroid gland. I would wake-up in the a.m. with swelling around the eye. http://www.arthritistrust.org, I believe has a list of thyroid symptoms from which I got this symptom and attribution to the thyroid. In my case I believe this is the cause, related to the thyroid, and caused by lyme, and/or other TBDs; other symptoms on the list seem to confirm that,for me, its thyroid related, as well a lab-confirmed lo t3,hi t4, and hi tbg(= 4.0, I think).
Posted by Jellybelly (Member # 7142) on :
Mine is mostly under my eye. I do feel like my sinuses never drain. This may also sound very odd, but for years, my sinuses produce nothing. I have been able to get them to drain a little using hydrogen peroxide and water in the past year.
It is not the lid particularly and the skin is not swelled(my daughter has had that). If I actually do cry the night before......look out, I look like I've been punched except they aren't black and blue.
PH didn't work for me either. I hope the right ABX will do it eventually.
Posted by Carol in PA (Member # 5338) on :
I have periorbital edema, which I know is a symptom of low thyroid. It never really goes away. When I wake in the morning, gravity has pulled the fluid to the lower side of my eyes. So, if I slept on my left side, there is more swelling on the left side of each eye.
I was watching the finale episode of "Star Trek Enterprise" last week, and I noticed that Jonathan Frake now has periorbital edema.
Carol
Posted by pq (Member # 6886) on :
Periorbital edema is what I had--swelling around the eye. In my case it was the left eye. there for months,gone for months, and return. i would awake with it, it would go down over the course of the day, and i would awake again with it.
Months ago, i awoke with a slight swelling, and sensation of feeling the prescence of my eye and entire left side of my face, and neck and i always 'conscious of the physical prescence' of the left side of my face, and esp. my neck, it varies in intensity.
Posted by Gabrielle (Member # 5329) on :
Hey Barb,
Thanks a lot for this link. That's exactly how my eyes look like. Finally I know what it is! Makes some sense now: I have problems with dry eyes, too so inflammation of the lacrimal glands goes with that.
You don't happen to know which abx did the trick for you?
Gabrielle
Posted by Lymeblue (Member # 6897) on :
I had the same on my eye and sinuses. I mean, pressure in my sinuses and fluid retention in my eyelids. I dont know if that was bartonella or neurotoxins, but I can tell you that 100% disappeared while on levaquin +questran. I had this for 12 months.
Posted by Jellybelly (Member # 7142) on :
