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Posted by tricita (Member # 7372) on :
 
My 5 year old daughter was just started on antibiotics today for possible lyme disease. She was bit by a deer tick two weeks ago and yesterday she started flu like symptoms. No EM but tick was attached for probably 48 hrs. I am new to lyme disease and have been reading a lot about it, but I would like to hear from your experience what I might expect and whether her treatment sounds adequate.
She is on 1000 mg amoxicilan a day given in two doses for 21 days.
How long should her flu like symptoms last and will she most likely experience other symptoms. I am hoping that since we caught this early all will be well in 21 days. Am I wrong? Please let me know your experiences.

Also, my two other children, age 20 months and 8 years old each had ticks attached and removed at the same time as their sister. They are not showing any obvious symptoms as of yet. Would you recommend treating them as well just in case?

Thanks for any advice and information you can provide.

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Posted by lou (Member # 81) on :
 
I don't think 3 weeks is long enough, but this is what is currently considered to be adequate treatment by most docs. The lyme specialists say 6 weeks for an early catch, and maybe 8 weeks.

Sometimes ticks transmit more than one kind of germ. Amoxicillin will hit lyme but not the others.

If these were my kids, I would want to have them all treated. But this might be an uphill battle with most docs. They would say to wait for symptoms. Not all ticks are infected, so maybe your other kids didn't get any diseases, but who knows? People on this forum got here because they were not caught early or were treated inadequately, so they tend to advise proactive treatment, rather than wait and see.

It is my understanding that WI does have some doctors that know Lyme better than the average doc. One thing you could do is check the support groups listing, call one in your state and ask for a doc referral. Or you could scroll thru previous posts and find one by NP40 or someone else from WI and email them.

You want to knock this thing down now, the early stage has the best cure rate.
 


Posted by pattiecake (Member # 6424) on :
 
My son had a scenario just like yours 3 years ago and Dr. J put him on zithromax and amoxy for 60 days. He got better. I would definately treat all kids. I know it may be hard to find a doctor to help profalactacly (sp?)but I would try my hardest.

I believe ALL ticks carry lyme.

good luck
pattiecake
 


Posted by DeniseBunty (Member # 6559) on :
 
I have not seen alot of talk of children having Lyme, what are most parents seeing with children that have lyme, my son has hyperness, behavior problems, seizures, nose bleeds, headache , vomiting, weight gain,tics,attention problems, sleeping problems, please speak out so I don't feel I am alone. thanks , and if you have seen these problems are they getting any better?
 
Posted by fatigued15 (Member # 6437) on :
 
Welcome. So sorry you are part of the lyme world. If your 5 year old daughter is showing symptoms I would not mess around. I would call Dr. Charles Ray Jones in New Haven, CT. Perhaps he would do a phone consult. I would not wait. If it were my children I would treat them all. Lyme is a nasty, debilitating illness. My daughter has been very sick for 2 1/2 years. Don't wait call a llmd.

Feel free to email if you would like.

Good luck!
 


Posted by NP40 (Member # 6711) on :
 
Hi Tri,

I'm from WI. also. You can click on the envelope above my post, and my e-mail will come up. Let me know where you live and I'll see if we can steer you towards a lyme literate doc.

My son's lyme went untreated for two months. He ended up missing 5 months of school, has done 6 months of IV abx, and is still doing oral abx. If you're going to error with your children, it better be on the side of caution.

I'd have all of your children on abx now, take no chances. Beg, borrow, or steal, but make sure that doc gives them 6 weeks worth of treatment
 


Posted by Mo (Member # 2863) on :
 
Hi there --

Well, you have a good head start.

AsAp I suggest reading Boctor B's Guidelines for Diagnosis and Treatment (article can be found at www.ilads.com .. this is the International Lyme and associated Disease Society, a medical socoety of Doctors who devote theor careers to treating tick-bourne disease)

Go there, and you will find Doc B's Guidelines.

Within that, you can read about Lyme and all possible tick-borne co-infections..
as well as check a chart on dosages and length of time according to symptoms, ect.

( Ie: with flu symptoms showing, it should be longer than just a known tick attatchment..and known tick attatchments are 30 days with no symptoms )

Another very excellent option is calling Doctor Charles Jones at 203.772.1123 to get advice as to how to proceed with treatment.

He has treated 5000 kids with Lyme, and the best thing is if you can get there..
he is in CT and many travel from around the country to gain treatment..

but if you cannot go there for treatment and eval..
then he may be able to provide phone consult for proper treatment.

Now is a key time for you all.

You have the opportunity in this window of time to erradicate the bacteria.. if adequately treated asap. Should it disseminate further and be innadequately treated, the illness could become very difficult to treat (tho still treatable)

You should look at the symptom list on Doc G's Guidelines..to get an idea.

Often the disease is gone undiagnosed, Docs will think Lyme is gone and not connect many symptoms to the disease.

You would do best to become familiar with the possible symptoms and seek aggressive treatment as per a knowledgeable specialist.

Anyone else just doesn't have the experience.

You're in a good place, your child is on abx..and if you pick up the research you can advocate for and seek the best care so that it may be treated.

IMO, the Guidelines should be your Bible even beyond this should anyone else get infected.
(and stick around here, we can help with questions and adjunstive care like taking pro-biotocs for intestinal health on abx and things like that)

Best,

Mo


[This message has been edited by Mo (edited 27 May 2005).]
 


Posted by Lyddie on :
 
My daughter, aged 12 but wt. 70 lbs., did 6 weeks of 2000mg amoxicillin. I would check w/Dr. Jones or another LLMD.

Three weeks is definitely not enough! I did 3 weeks after a bite, got sick a year later, and have been on antibiotics for 4 years.

Younger people seem to do pretty well though (although my feeling is that hormones in adolescence complicate matters).

I would also see if Dr. Jones would treat your other children.
 




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