Memorial weekend last year.

I had my last treatment and full flare up of my rash and herx.

Most of you when I read your names I do not recognize you and you probably do not know me.

However, I am also a notch on the Lyme belt.

Without long explanations of "how did you do it?"................

I want to give you this.....

ALWAYS believe in you, ALWAYS believe in a higher power, ALWAYS forgive, Never EVER give up.

This is a long journey.

What works for one, may not work for you.

What works for you, may not work for another.

We want to help each other so bad and understand each others pain so much we want to give every inch of our soul to help anothers pain and misfortune. Our own government will not help us with testing or treatment.

Unless I missed something very wrong... Lyme & Mycoplasma was a man made disease made to disable people in chemical warfare. The last I looked up Plum Island (for Lyme)& Mycoplasma (separately) the United States was paid by Canada to spray us with this disabling crap to see how it could effect us.

Look up Mycoplasma and see the results of a Government experiment.
http://www.mercola.com/2001/sep/8/mycoplasma.htm

Aside of who to blame why/how we got sick.

It does help to know for those of you that are new to this and scared..........

Many of us do get better or cured. Not by any one certain pill, treatment or regiment.....But by the will to live and to never give up.

For going on 3 years I have watched many come & go. Desperate pleas for help, desperate pleas for the right recipe, desperate attemps to pull all the money a family has out of the bank for the treatment they wish will bring their family member back to them as a "WHOLE" as they once knew them back into their arms.

FOLKS, this is a nasty, nasty bug.

I have not seen any one treatment that works for us all. Many of us have experiments that have worked for us but may not work for you.

Field caution when you are desperate. Also know your strength.

Supplements, minerals, clinics, I.V.'s ect ect...........By all means try what you can with stand and what you know in your heart you can endure.

Positive mind, positive outcome.

I am so very lucky that I am where I am today.

A look at the past.

Sep 2002 Found Lyme Net
Oct 2002 Went to ICHT Italy
June 2003 Went to Italy 2nd time
July 2003 Pathologist for detox until March
May 2004 Last detox treatments

May 2005 All is good. This was like a bad dream I never want to have again.

I do not believe I just happened to have made the right choices (I'm not that smart)......I believe I just happened to be in the right place at the right time. And, I had an extreme amount of a will to live.

I had to finally give into rest.

Oh my goodness.....I use to get 4-5 hours of sleep a night. I worked 6-7 days a week. This HAD to stop. The breaks went on. My husband, my son were my best supporters. I would get mad when they told me I had to stop. How they put up with me I'll never know.

To make the short of this long story.

SLEEP, will help regain your immune system and it will take a while along with a good eating habit.

If you are the opposite and want to sleep to much... then get to exercising and WAKE UP get that thick blood flowing.

Hurdle after hurdle I have jumped with my family in tow.

Cigarettes being the worst and hardest 10 days a go. You can do it too.

Love yourself and your family to push further and further beyound the point of no return.

I do not get to read about you all to much anymore and now that I have 1 year under my belt with no treatment I expect I'll be back less.

Does not mean I love you less, it only means I am back to life more.

God bless you all and hang in there!

You will find your way.

XOXOXO Kat

 

Thats BOSS! Fantastic!

I hope it gone for good.

You know me by another UN which I can not disclose. Haven't seen you on the Bd. in long time.

pq

 

I am also doing very very well.
I am symptom free, rather using that term than remission or cured. I'll take this for as long as it lasts.

I had a ACA looking rash this year and spent a month on Mino (and it cleared), so I can't say that I've been off abx for a year,
But that rash was my only symptom this past year.

SO glad to hear from you.
So glad you're doing well.

Barb
 

Your post also speaks to me about our need for sleep. Sometimes I consider my extended hours of sleep as a symptom rather than part of the cure. I too went for years with few hours of sleep. Our marvelous bodies' attempt at healing.

Hey, what is this Italy thing? I see it every now and then. What is in Italy that we don't have here?
 

bugabooboo, the Italy thing is long over & done. It was a treatment that has been stopped. A doctor lost his life during the treatment and people went to jail. It will most likely never be repeated.

Nancy, pq & Janet good to hear from you.

Everyone keep the faith

Kat
 

We are still in this battle with Dominic (2 years now) but on the way to recovery.... everyday we find out something new and now the Dr's finally think they found something holding his immue system down.

Dominic loves his Dr's..... just like you they keep telling us to stay positive...this disease takes body, mind and spirt!!

I can't wait to tell Dominic how long you have been off treatment and still doing good. We never get enough of hearing the Great news!!!!

Are you staying for a while or just checking in on us??? Either way glad to hear your great news and Thanks for sharing how you did it!!

Starr

 

It is great to hear from you and that you are doing so well! I am so glad that you took the time to say hello to us, you are a ray of hope

You may have mentioned in a previous post, what you are doing for detox...but would you mind mentioning it again?

P.S. Am doing pretty good myself, continuing to use rife and Mg.

Take care,
Ernie
 

I am soooo happy for you!

It's been 5 months for me.....I hope to be able to come back at one year like you have done.

Enjoy every minute of your new life,
Nancy
 

Starr, Staying strong for Dominic will help him just as much as the medicine. I have seen people come on this board that have no support and its heart breaking. I owe much of my success to my family and friends that supported me.

efsd25, I used 6000 to 10,000 daily of non corn derived Vit C. 90,000 mils a day of enzymes and three multivitamins upon going to bed. Q-10 daily and several UVBI, Chelation, Vit C I.V. & Fir Infared suana treatments. Lot's and lot's of rest & daily soaks of Lavender baths for lymphs. I had to completly change my life style.

I do pop in here at least once a month or every few weeks or so. I see so much sadness and many of the same questions we had 3 years ago. Just different names.

I hope the rest I no longer see here have moved on with their health too.

When I was told years ago by many on this board this was going to be a long haul I didn't believe it. I thought I could beat it and show the rest it could be done.

Well, I am symtom free for a year but it took lot's and lot's of praying, reading, trial and error of supplements/treatments & numerous doctors.

My family backed me 110% and told me everyday I could do it.

It is hard to believe in this day and age a disease like this and as many people that are infected with it there is little to no help from the CDC, Yale thinks it can be cured in 30 days, and the little children that have to endure this because of the system.

We need all the success stories that are out there to encourage the rest to go on and know that yes you can get better.

(((((((HUG'S))))))))))) to all.

Kat

 

Thank you for giving us hope, wisdom and faith.
BJG
 

I was off abx for 6 months, then got another tick bite last month. Dr thinks the tick "left me a little present" of some sort, even though it tested neg by Igenex for Lyme and babesia.

I'll knock it out soon, though! Feeling pretty good, all things considered!

Keep taking good care of yourself!!

------------------
oops!
Lymetutu
 

Congrats and thanks for the encouragement!

Looks like we are close...I am in Las Cruces essentially. Would like to connect via private e-mail. Will try that right now.

I too had YEARS of symptom free! Enjoy it!
Trails
 

Like Lymetoo, I was just bitten by deer ticks a few days ago. I will keep fighting the fight and win the war.

It always great to hear a success story.

Take care, Pam
 

I really like this new email thing Lymenet has now. It is so nice to know a response has been made to your post thru email.

Ms.Tutu, This is great news (6 months clear) so sorry for another bite. My goodness these critters really like you! You need to wear deet as perfume

Trailsgrl, yes I just moved from El Paso to CA last year. I was comuting back and forth and finally made the move.

The pathologist I was seeing is in Las Cruces. I didn't feel safe moving away from him untill I made it thru the summer with no relapse. I did get your email stay in touch.

Map, you and tutu need to make a deet perfume I would be so frantic if I were to be bitten again. Ohhhhhhhhh I don't even want to think about it. It makes me want to go out and buy a dog coller and wear it.

I wonder.................
 

Speaking of dog collars...someone in the Lyme group here suggested buying two dog collars and wearing one around your ankles when in the grass or woods. So....I bought 2 dog collars, just haven't worn them yet.

Whatever works!

Congrats on your success. You've encouraged all of us.

lifeline

[This message has been edited by lifeline (edited 31 May 2005).]
 

I have to laugh

You never know.................

My husband always laughs at me when I freak out about any bug around me. He says with all the treatment I have had the bug would bite me and die.

Trailsgrl, I tried to email you and it came back to me. Is your mail box full?

Kat
Kat
 

I remember reading your posts when I would pop in here and it's great to hear of your success. A full year without symptoms is truly a blessing!

My goals are slightly lower.....I'm going to try to go for a full year without a tick bite!! LOL! I'm hoping my new LLBEAN "Buzz Off" duds will help me. (They should have paid me to test market them because I am the qunitessential tick magnet!)

Good health to you and thanks for giving us all hope!

~~ Spotted's jockey
 

Great to hear that you are doing well.. I remember back when you went over to Italy for the ICHT therapy and it was still kind of new for us lymies... I remember you being very sick, so its just a blessing that you are where you are today, and an inspiration to others that are very sick also. I'm doing alright... much better than a few years ago, still on maintenance meds... but I am thankful for the health I have compared to where I have been... been actively sick over 8 years now... and probably carrying it for about 30...(am 42)...

Hope that all continues to go well for you.. keep in touch with the board! I'm not here too often anymore either.....

Stephanie
 

Also to lifeline, I heard somewhere that animal collars might be toxic ot humans..Be carefull..lymemomtooo
 

I have been fighting for a year and am getting better. I love your post above:

"Field caution when you are desperate. Also know your strength.
Supplements, minerals, clinics, I.V.'s ect ect...........By all means try what you can with stand and what you know in your heart you can endure.
Positive mind, positive outcome.
I am so very lucky that I am where I am today."

Well said ......... thank you for this! It touched me.

Peace and continued health to you,
robi

[This message has been edited by robi (edited 01 June 2005).]
 

Your courage and example of going "outside the box" proves there is more than one way to cure this disease.

May you have a long and happy life!

 

A few of the oldies (Lymies, not age friends......hee hee) did come out of the woodwork

It's so nice to see familiar names and know you are still kick'in.

The few that also joined me in the ICHT treatment and the few that stuck by me and held their breath while I posted.

The new guy's & gal's....thank you for caring enough to wish me and all of us well.

I always find allot of love on this board.

From the begining.......of what felt like the end.

To the end that feels like a new beginning.

You all were always there thru my journey.

Love,

Kat
 

A rash that almost toook her eye sight...she moved quickly to smite that foe and teach us all a GOOD lesson...

To fight...is to win.

God Bless You Hun....Man I miss talking to you.

Trout

PS...Saw Dr Crist today...yep...I am on my way out of this darn mess...will join the crowd soon.

he, he
 

Thanks for stopping by and sharing this wonderful news! They were just asking about you at Dr.M's office last time I was there. I'll pass your news along to them. I think LLMD's offices need to hear success stories as much as us lymies.

Have a great life

------------------

 

Sorry to hear you are still struggling. I hope it gets better for you real soon! Thank you for stopping by

Lyma Bean, I always loved your screen name! It was great meeting you too. Please let Dr. M know it wasn't a cake walk I went thru. I took lot's of supplements, detox and such for 9 months after that second ICHT. I just stopped the abx Dr. M had me on.

Semper Fi, You are the best. Thank you.

[This message has been edited by Kathy Boss (edited 02 June 2005).]