Thanks
 

Good luck if you try.

Cigi
 

------------------
Lyme Disease Help
http://www.wildcondor.com
 

b
 

I had had 5 foot tall bottles of oxygen delivered to my home. I used 10-12 liters per minute for one hour every other day. I was supposed to do it twice a day, every day, but the herx was to significant.

You must use a rebreather, as canulas/nasal prongs won't do it. A rebreather covers your nose and mouth and has a bag attached at the bottom which inflates and deflates as you breath.

Oxygen therapy was just one of the things that I had in my arsenal, but believed it to be very useful and would definetly do it again.
 

And also where do you go for this treatment?

Thanks,
Swiss
 

Sounds like hbot is good for Lyme. I tried it when I was dx with MS and I actually felt worse and haven't recovered since. I don't know how that works...

Maybe it was all the stress of travelling to the place that had it? All I know is that I am in a worse physical state because of it.

Perhaps going to the right depth for Lyme would yield better results.

------------------
SAK
(formerly ssaakk123--
but it was too long!)
 

If you where Tx for MS and you became worst you should consider the following:

The protocol for MS is 1.5 ATA ( atmospheres)
babesia will thrive in this enviroment.

The treatment Protocol for Lyme is 2.4 ATA, which will kill the lyme bacteria and babesia as well. It should be taken while on Abx to be must affective.

I have found that lymies will reach a plateu where they will maintain "wellness" with HBOT given as maintanance weekly to bi monthly.

best regards

My LLMD in NY is considering getting a HBOT chamber.

How much does a chamber cost?

I have trouble clearing my ears and cannot go very deep underwater (5 ft) without discomfort-does that mean I can't do HBOT?
 

I haven't found this with my home chamber (1.3 ata).

I haven't seen any data on 1.5 stimulating babesia, BOEJR, have you got actual data? I'd be careful before saying that. It doesn't make biological sense to me because our hemoglobin always has a certain amount of 02. HBO is pushing 02 into the tissues. Babesia lives in red blood cells, bone marrow, and perhaps the liver in some dormant form. I don't see how extra 02 in the tissues would stimulate babesia.

I have a mild portable chamber and cannot survive without it, no ifs ands or buts. It was out for repair recently and I really started to do poorly without it. Before then I had gotten to the point where using it every 4-5 days was fine. Now, I am using it every other day to try to regain my former state.

[This message has been edited by oxygenbabe (edited 03 July 2005).]
 

It could be because of Babesia as BOEJR noted. Thing is that I've tested negative with Igenex and Bowen for Babesia, so if those tests are at all reliable I don't know...

Only other thing I was doing at the same time as oxygen was rife. Maybe that caused it???
 

Nobody has ever proven this. And for what reason does BOEJR say that 2.4 ata will kill it while 1.5 will stimulate it? This is unfortunately sloppy scientific reasoning. Show me in vitro and in vivo studies. Show me infected blood samples before and after 1.5 and 2.4 ata. No such studies have ever been done. And it doesn't make a lot of sense either.

Lyme Ed about the candida--makes sense for the reasons I said. HBO will indeed kill anaerobic bacteria, esp in the gut, imo. THen candida being a facultative anaerobe has more room to grow. Etc. NOw, some people can take abx for YEARS nad never have a candida problem. Others are far more vulnerable (myself included).

Re: ears and eyes. Well, earplanes usually assist most people to pressurize their ears, and doing it slowly. Re: eyes, yes keep your eyes closed to protect the lens if you're in a monochamber that pressurizes with oxygen.

I don' tknow why you did worse and didn't recover. I do know I can't handle rife. But it seems odd you would get permanently worse. I'm sorry to hear that.
 

OxygenBabe: Where and how much is you portable unit.

Jelly Belly: Did a doctor prescribe the oxygen rebreather. Does insurance pay for it and if not, how much does it cost.

(We go to J Clinic, they are putting in their own chamber in the fall, but it will still be too expensive and far for us to use.

Thanks!
 

YOu can email me for more details if you like. Not sure I should be posting phone #'s etc on the board.

Its good your doctor is getting one. Its bad that most insurance won't cover.
 

had to pay for and then submitt to insurance

paid about $300 for 2 hr sessions

always herxed after for a couple hours

unable to do more than 20 sessions so cant say its a cure

for those who say symptoms re-accured shortly after treatments were stopped - might have been cuz you hadnt killed off all of bacteria, only some of it so it would multiply and come back!

this is always also true with antibiotics aswell
 

So BOEJR got her own chamber--real chamber--

My former hyperbaric doc (where I did it in clinic)--I asked recently how various lymies I dove with were doing. One did 2-3 months of daily sessions, 90 m (no antibiotics, and had had lyme and probably babesia many many years. Was very ill. Had done zithromax for 8 months at one point. I say probably babesia because I recall she was infected on Martha's Vineyard, I think that's what I recall, and its epidemic there AND she had fevers those many years,daily). Then she apparently went twice a week for 45 minute sessions for the next YEAR. Yep. So she's held her remission.

The problem is expense--I'm pleased to hear a PPO covered even some of it--anyway, expense, and that docs who recommend it give 20 or 40 treatments. This is not enough. Its a longterm treatment. With abx and with a strong immune system, some go into remission or get well or whatever you want to call it. Others, without abx, if they do it longterm, may hold steady with very improved health.

Getting your own home chamber--there is debate about what pressure is needed--I like the mild pressure, I've always been highly responsive to the hbo, and very unresponsive to drugs and sensitive to them anwyay.

The expense, unless you have a doc with one in your home town, and even then, is so high with relocation, food, lodging etc. And really it is a LONGTERM treatment.

Mine is my lifesaver, and when it was gone I was desperate. However, it is not a cure, for me anyway. It buys me time, a huge amount of time, gives me much improved quality of life, while I figure out a cure.
 

Yes a doctor does have to prescribe, primarily because of the oxygen. It was very highly concentrated. It's been about 2 1/2 years so I don't remember the cost, but it is WAY less then hyperbaric and you can do it whenever or has often as is needed.

As far as insurance, I think it should be covered at least in part if you have a fairly decent insurance which is hard to come by. Some compaines bill direct to insurance if I remember right.

The company I was dealing with didn't handle insurance though because they don't usually dispense tanks as large as the ones I had to private homes. Thses tanks were huge, like the ones you would expect to see at the hospital feeding many rooms. The tiny little in home tanks would be gone in a matter of 15 or 20 minutes at the amount of oxygen I used.

One of the really big tanks was goood for maybe 7 hours at 10-12 liters oer minute, maybe less, can't remember. You would just have to call around after you get a doc to prescribe in the first place.

I believe it was definetly worth the trouble though.....still a lot less trouble then going to a hyperbaric chamber in another location other then your home.

The rebreather is better able to saturate with the oxygen then regular canulas, so the rebreather is a must.
 

amk
 

You should do at least 8 weeks. I think you mean 5x a week, not 5x day!!! LOL. I personally think once a day is fine, remember, the protocols, depths, and frequency is not from solid clinical trials, just sort of shoot from the hip, hey, this sounds good and should work... (imo)

You increase partial pressure for hours after a dive, so doing it 2x a day stresses the system, again imo. In GBarrington we did 1x day 90 minutes, I personally feel 1x day 60 minutes is fine and thats what I did in Brewster

The whole problem with hbo is that people do NOT DO IT LONG ENOUGH. That's why I have a home chamber. You need longterm care. Thats why BOEJR got her own home chamber (not portable, hers goes to deeper depth than mine but requires all kinds of other certification, safety measures etc). So if you are starting now you only have 2 mos so plse do the whole 2 mos. Unfortunately you are still fairly likely to relapse over time, if stopping. It would be good if, after Brewster, you could find a monochamber. Maybe contact BOEJR about hers. You could do it once or twice a week to maintain your gains. Or else, if you've got the funds, buy a home portable chamber and use THAT fairly often. THAT is the way to use hbo, to keep gains.

[This message has been edited by oxygenbabe (edited 05 July 2005).]
 

The multi I use is 2 years old and they told me they paid about $200,000 for it. Very nice though. A lot of people with Lyme have jaw bone death or other bone death and insurance covers that because it's one FDA approved area. There are other creative ways to get insurance to cover it as well.

[This message has been edited by 24bit (edited 22 July 2005).]
 

quote:

---

Originally posted by Charles05:
Has HBOT ever been subjected to clinical testing for that purpose in treating lyme?

HBOT is an experimental treatment for Lyme disease I read. At worst, it is a big waste of time and money. I guess if you have the funds and time you can try it, or try a roller coaster and at least have fun.

my 2 cents on the topic

---

Before you give an opinion on something, you need to spend some time gathering all the facts. Otherwise your opinion means nothing.....such as in this case.

Yes, Texas A&M (Fife) did a study on Lyme and HBOT a few years back, and it was a major success.

Here are a few links that should help in you decision to do HBOT. I believe in a higher pressure some do not. It has worked for me and may not work for someone else. Thank God we are all different : )

In my opinion that is a personal decision and I can not, and will not, argue with it.

I use the protocols that where developed by Dr fife and Dr Neubauer.I can only point you in the right direction and you make your decision.

As to the question of Babesia at lower pressures. I posed the question to Dr Eric Kindwall md a pioneer in hyperbaric medicine. And the person I took my training from. He will readly admit that he believes in HBOT only for approved conditions.

However he reluctantly admitted that babesia will die off at higher pressures and thrive at lower pressures.

Be well and stay safe,

Boejr
http://www.mentalhealthandillness.com/tnaold.html
http://www.lymetreatment.com/HyperbaricOxygen.html
http://www.oxytank.com/how.htm
http://www.hbotoday.com/treatment/lymedisease.shtml
http://www.hbot4u.com/lyme.html

(A list of providers courtesy of miracle mountain)
http://miraclemountain.homestead.com/Providers2.html
http://lymesupport.com/hbot/

As for lyme, THAT is one where you can debate pressures. It dies in air, in a partial pressure of 02 that you *can* achieve in a mild chamber, but we don't know if that is achieved in all the tissues of the body especially bone AND one study showed a few strains more resistant or hardier in terms of oxygen.