This is topic How can you be sure you have Lyme? in forum Medical Questions at LymeNet Flash.


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Posted by Tnagel (Member # 7328) on :
 
My symptoms are mild, I have TMJ and allergies and trouble sleeping, but if I excercise and take allergy med,I usually feel a lot better.
My western blot came back pos from igenex and coinfections were neg, but does this really mean I have it? When I read all of your stories I feel am unsure if I do real have it.
I am about to strat docy. but really wnat to make sure I have it before I put my body through it.Any thoughts would be appreciated.
 
Posted by janet thomas (Member # 7122) on :
 
positive western blot=lyme
 
Posted by Tnagel (Member # 7328) on :
 
Even if the Quest is neg right? Also is Doc the best if you have no cooinfections?
Thanks!!
 
Posted by krazykt1 (Member # 3739) on :
 
My God, don't fool around with this. You've got a + test, treat it and get rid of it. I had the same symptoms as you at the beginning for years, now I'm in a wheel chair and wish to god someone had given me a blood test for lyme back then and could read it.
 
Posted by Monica (Member # 224) on :
 
SOMETHING sent you to the doctor to find out what was wrong didn't it? You didn't just wake up one day and decide to get tested for Lyme Disease, did you?

As the others have said, your test is positive. Treat the illness before you lose ground.

Quest doesn't know how to test. Neither does Imugen.
 


Posted by Tnagel (Member # 7328) on :
 
Thanks for being adamant it makes taking this first pill easier!!!!
 
Posted by Kara Tyson (Member # 939) on :
 
You either have Lyme or in the case of a false positive spirochete...syphilis. And either way, the treatment is the same.

And just think when you take that pill, there are people in this world who would literally give one of their kidney's just to have medication.

[This message has been edited by Kara Tyson (edited 02 June 2005).]
 


Posted by Tnagel (Member # 7328) on :
 
Really a false positive always means you have something it just may not be Lyme?
 
Posted by Kara Tyson (Member # 939) on :
 
The test is picking up something. You are making antibodies to something.

There are bands that are sensative to other spirochetes (lyme and syphilis) and then there are bands that are specific just to Bb.

If you are positive on Bb specific bands..you have Lyme. You dont make antibodies to Lyme, if you havent been exposed to Lyme.


 


Posted by cafe67 on :
 
I'm pretty sure it's not syphilis. You would notice the sores.
http://www.cdc.gov/std/Syphilis/STDFact-Syphilis.htm#symptoms
 
Posted by groovy2 (Member # 6304) on :
 
Hi Tnangle
LymeED -- said it perfectly--
- also Time is not on your side.
--act now -
read my post on Doxi and Sun-
-Jay--


 
Posted by Tj33 (Member # 7214) on :
 
What result does the syphilis test give when used on a known Lyme patient????
It seems testing can't tell the difference????


 


Posted by Bill ATL (Member # 7817) on :
 
Tnagel...

You are not alone in your thinking. I have second-guessed this all along, but as the others have suggested, am going through the ABX treatment with an LLMD. The risks of not doing it are greater than potential upset of your digestive system...WHICH btw, you can mitigate with Probiotics, and eating right. I am starting my second month of abx, and have very little digestive issues...no yeast, etc. You can manage this...have faith in yourself! Our bodies are tough...and will recover...especially if you caught this quick, which I think you have.

Bill
 


Posted by Michelle M (Member # 7200) on :
 
Tnagel, boy, do you echo my worries! I was (am!) so scared to commit to starting! I SO put off taking that first pill. Even though I SAW the tick. I SAW the rash. However, living in an area where it's not very accepted (northern California), I didn't pay attention at the time. My EM rash was not very impressive, not much larger than, say, a big grape. So I brushed it off, didn't see a doc when the rash stuck around for a few weeks. Now, a few years later, with brain lesions and migraines and a host of other stuff, the LLMD pretty much diagnosed me even before the IgeneX results came in CDC positive. And STILL I doubt!!!! Yes, it's true -- I'm a freak!

Part of it, I think, is THIS: We grow up, if we're normally healthy non-doctor oriented people, thinking that if there's nothing on us hanging out bleeding or sticking out at a wrong angle (like a compound broken bone or something), then WE MUST BE JUST FINE. It's very hard to accept that a foreign organism you can't see has invaded your body and your body hasn't been able to HUNT IT DOWN AND KILL IT!

However, at some point, especially with positive tests in hand, you have to let go and trust your LLMD, and "take your medicine." Even though you can't see it, and it's not bleeding, broken, or sticking out, you really do have Lyme disease. :-)

Now, take that pill. I just did. :-)

Michelle M. (world's worst doubter and doctor-avoider!)
 


Posted by pq (Member # 6886) on :
 
Hi Tnagal,

If it were me, and given the Sympts. and signs, plus Igenex report, I'd assume that I do have it, and go from there. Waste absolutely no time getting antibiotic into your system.

Bb is stealthy; there are sublte, and extremely subtle manifestations that occur, and which, are indicative of a well established infection. Signs and symps. easily written-off as something else.

There are subtle mental(cognitive), emotional, and physical manifestations, that vary in intensity, degree, extent...blah blah blah.

For theses See Robert Bransfield,MD head 'expander/shrinker' for subtle manifestations at http://www.mentalhealthand illness.com Exceptional phenomenological and objective descrptions of lyme.

See studies, and descriptions by Brian Fallon,MD, at Columbia U.

Get hold of as many check-off lists as possible, and complete them.

For links for newcomers, find TreePatrol's links and Tincups links for excellent start.

[This message has been edited by pq (edited 04 June 2005).]
 


Posted by janet thomas (Member # 7122) on :
 

Somebody correct me if I'm wrong--

Syphilus-early lesion may be missed in women because it's inside, however, in men there is a lesion on the penis so it would be difficult to not notice.


 


Posted by suz9601 (Member # 6968) on :
 
Tnagel

I know how you feel..I too was amazed that my Igenex test came up positive after 9 years of illness. I am still unsure to tell you the truth, but I have started low dose abx. I can't tolerate the high doses because of diarrhea, except doxy and it didn't herx me or help me so I moved on to the next one.


I think at this point I am just going to try abx and see where I get. I have a very good Dr LLMD and I do trust him. I would love to treat it alternatively but I dont know that you can, from all my reading it seems like it is a very tough thing to get rid of. If you really ever can. Anyway, I tested pos in March and am still having doubts, but must try to treat it. Good Luck.
 


Posted by Kara Tyson (Member # 939) on :
 
Janet,

You are correct about the signs of syphilis. However, it is also true that usually if a person has an STD they have more than one--so the person would know if they were 'at risk'.

Take for instance, most people who are infected with HIV sexually also have herpes, clamydia, syphilis, genital warts and various other things.


 


Posted by Kara Tyson (Member # 939) on :
 
Tj,

The standard ELISA cannot tell the differance.

But, the treatment for syphilis is antibiotics. And since syphilis can now be antibiotic resistant (not a problem being recognized in the medical community), a patient can be on long term antibiotics with no insurance or AMA problem.
 


Posted by Tnagel (Member # 7328) on :
 
Thank you all for the thoughts after reading them I started on abx Thursday evening. It is comforting to know that others have had doubts also, I guess it can be wishful thinking!!!!!!!
 
Posted by Lymeindunkirk (Member # 7118) on :
 
Tnagel, what doctor are you seeing?
 
Posted by Tnagel (Member # 7328) on :
 
Dr H in Hyde Park,NY I started seeing a Dr in DC first
 


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