What is this symptom due to? I've heard this is common in MS; is it part of an auto-immune process?
Posted by Lymetoo (Member # 743) on :
I don't know, but I have it!
------------------ oops! Lymetutu
Posted by lla2 (Member # 2364) on :
not sure...think it depends where the keets are bothering you...I love the heat adn the heat loves me..it doesn't bother me at all, I just think it means that the keets haven't bothered by hypothalamus which controls my heat/cold mechanisms in my body....
sounds simple enough right?
lisa
Posted by trueblue (Member # 7348) on :
quote:Originally posted by Lymetoo: I don't know, but I have it!
Me too! What she said.
It flares me and so do things that generate current. Like muscle stim, it hurts on the lowest setting and makes me much worse.
Sorry, I don't know either. I'm curious to see, though.
[This message has been edited by trueblue (edited 19 June 2005).]
Posted by arg82 (Member # 161) on :
I don't do well with hot humid weather. I think for me it's a combo of the Lyme ('keets don't like the heat, either) and Neurocardiogenic Syncope (a form of autonomic nervous system dysfunction) that is very badly affected by hot weather. So, I try to find cool places to rest when the temperature rises!
I too, have literally become a tree hugger at outdoor occasions.
yeah, yeah, da hypothalmus ting... that's it!
I have difficulty in humid weather because the air feels so heavy that I feel like I'm breathing a lot slower and heavier. It also makes me nauseous.
I'll have to research this a bit.
Posted by lymeloco on :
quote:Originally posted by ibrakeforticks: What is this symptom due to? I've heard this is common in MS; is it part of an auto-immune process?
I was told by my llmd that some people have different sensitivities to either or.
Even before lyme was diagnosed, did my best work in hot/humid weather.
I had problems 2yrs. ago in St.John when we took a taxi into town, and had to come right back to hotel because of tremors.
I don't think there is rhyme or reason why it happens!
M.S. usually will weaken your muscles. I don't believe they have joint pain. Rhonda
Posted by Monica (Member # 224) on :
I can remember as a child (back when dinosaurs roamed the earth and we didn't have a/c)being flattened by hot,humid weather.
I have never done well in the heat and humidity and now it is even worse because of the LD.
In the h/h/h weather I don't go out except to go from one air conditioned place to the next.
Posted by Rianna (Member # 11038) on :
Does heat intollerance improve over time?
Before lyme I loved the sun/heat and now I am totally heat intollent, it gets even more severe during a herx, anyone know why???
It seems to make me wesk and I have terrible burning skin (not from the sun) just skin burning in my legs and bot - and my legs hurt soooooooo much
I was told the ketes hate heat and it unsettles them??
Rianna
Posted by tailz (Member # 10014) on :
lymeloco - Click on the link in my signature. I get tremulous when I drive into more heavily populated areas. At first I thought it was the air pollution, but when it happened on crystal clear days, I got confused.
I read 'Cross Currents' and 'The Body Electric'. These bugs we have aren't the real problem here - cell phones and wireless are.
I would do a search at www.antennasearch.com to see if you tend to get tremulous in areas with higher concentrations of cell phone towers and antennas.
But I sweat so much I cause flooding. This author's EMF theories would explain why the sweating/tremulousness is more severe in humid or damp weather, too - the iron and copper in our bodies 'conduct' with the water vapor.
Posted by kitkat32 (Member # 9682) on :
I feel terrible after being out in the heat.
Sometimes I force myself outside with the kids..if hubby is at work..and then I pay for it.
It makes my brain fog much worse...and I have an all over yuck feeling.
I use to love the sun. Now I can't stand to be out in it.
kit
Posted by ibrakeforticks (Member # 6785) on :
One explanation of heat intolerance in the context of CFS:
I don't know if everyones heat intolerance is caused by the same thing but mine is caused by dysautonomia according to extensive studies that I had done years ago at an NIH funded facility. This is the same mechanism that affects many with CFIDS and FMS and I assume Lyme as well. Dr. B. mentions the blood pressure problem in his treatment guidelines and that is part of this as well.
When it is warm, the blood vessels dilate. Blood pools in the legs which means there is less blood being circulated to the brain and heart. This will cause brain fog (not enough blood to the brain) and a fast pulse (the heart is working harder to cirucluate less blood). The sphincters in the legs that are supposed to push the blood back up don't work right and the blood vessels are leaky. AND to top this off, some of us (me included) have a low blood volume. Mine is caused by a low red blood cell mass.
That's my understanding but I'm not a doctor.
My heat intolerance was much better this summer after 15 months of treatment. I don't know if the majority of improvement happened since starting mepron but I suspect that my problem is related to babs more than lyme. Babs infects the red blood cells and may be the reason that I have a low red blood cell mass since it bursts red blood cells. Hard to know for sure though.
Terry
Posted by charlie (Member # 25) on :
....both lymies in this household thrive on heat humidity and sweatiness.
It's cause for grieving around here when the annual couple of months of cool weather set in. I get very lethargic below 70 degrees and sleep most of the time, below 60 forget about going outside.
everybody's different I guess....
Posted by 5dana8 (Member # 7935) on :
Hi ibrakeforticks
I have heat intolerence. Can't do hot baths anymore. Makes me feel like a limp rag. Wasn't always like this. Pre-lyme I loved a good hot bubbly soak.
As time ticked on & my lyme got worse so did my tolerence to heat. And also to cold.
It is a little better after treatment but normal heat still wipes me out. I need to stay cool but not too cold.
If you go out in the heat make sure to replace your water & electro-lites. This is more important if you have lyme than ever.
Hope this helps
and stay cool Dana
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by charlie: ....both lymies in this household thrive on heat humidity and sweatiness.
Good thing since you get plenty of that where you live!!!
One reason I'm still in MO is the HEAT in the Great State of Texas!
I LOVE IT when it's below 75 degrees. LOVE IT.
Posted by lymednva (Member # 9098) on :
I know my heat intolerance is due to dysautonomia. It is at the root of many of my problems.
Posted by dontlikeliver (Member # 4749) on :
I have always had this really bad, especially when heat is combined with humidity.
But I have just had the oddest experience. I have been away on vacation for 10 days and it was about 90F every day and I felt almost normal and was able to be pretty active and do a lot of stuff. Maybe it was because I was sweating a lot?. This has never happened to me before. Maybe because it wasn't humid.
oops! 
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