LymeNet Flash: Is there anybody on amantadine?

This is topic Is there anybody on amantadine? in forum Medical Questions at LymeNet Flash.

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Posted by kare (Member # 5041) on :

My LLMD just put me on this in addition ti IV Zith Any experiences?

Posted by Areneli (Member # 6740) on :

I also would be interested in it.

Also if anybody took hydroxychloroquine (Plaquenil) that does about the same as amantadina with a macrolid.
I know that many people did the last combination, but did addition of hydroxychloroquine really make a difference comparing to macrolid alone?

[This message has been edited by Areneli (edited 26 June 2005).]

Posted by lymie tony z (Member # 5130) on :

Yes I am presently on amantadine.
I believe I am experiencing a mild herx...although I have'nt got a lot of info on this antiviral...a lot of llmd's have it in their regimen...

From a laymans outlook....I have a lot of herpe's positives that could be crossreferenced lyme disease due to the bacteria acting or mutating it's protein structure to act like a retrovirus...

This is why I suggested to my doc to try it and also cuz I've never been on an antiviral in the eight or so years of treating this bug....

I am experienceing some tightness and dry type cough...this may be due to the effect amantadine has dealing with lung diseases or it may be killing off chetes in my lungs and my body is ridding itself of the toxins in the only way it knows how....coughing and sneezeing....

I am also experienceing sweats more often........
How about you two???
Anyone else out there.............zman

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Posted by Lyddie on :

I've been on amantadine for at least two years now, and like being on it. It take it in a syrup form howver, because the 100mg pills caused side effects for me. With the syrup, I can take the dose that I can tolerate.

Amantadine helps with the pH in the cells so that macrolides work better (like Plaquenil). Amantadine is also an anti-viral. It is used w/MS to combat fatigue. And I believe it is also used for Parkinson's, as it raises dopamine levels.

Anyway, I have better energy on it. Since September, I have been on zithromax and minocycline wiht the amantadine, and my neurological symptoms have gotten quite a bit better.

Posted by kare (Member # 5041) on :

Thanks -
Lyddie - what side effects did you have that made to Doctor switch you to the syrup?

I am experiencing insomnia and slight paranoia

Posted by kare (Member # 5041) on :

up for Lyddie

Posted by Lyddie on :

I only took the capsules a few times. I got dizzy and anxious, pretty uncomfortably, at 100 mg.

The doctor has suggested avoiding taking it in the pm in the first place due to possible insomnia from it.

Anyway, I contacted my LLMD and he immediately prescribed the syrup. I take the same amount but split it up into 50mg at at time. No side effects at all this way.