LymeNet Flash: Anyone do a Rocephin/Mepron/Zith combo, is it safe?

This is topic Anyone do a Rocephin/Mepron/Zith combo, is it safe? in forum Medical Questions at LymeNet Flash.

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Posted by Ruffy (Member # 7146) on :

I'm working with both an LLMD, who perscribed Mepron/Zith and a Infectious Disease doc with a lot of Lyme experience who happens to be a believer in it. The Infectious Disease doc is covered, while the LLMD is not. ID has put me on IV Rocephin for the neurologic symptoms. Would it be safe to take all at once?? Has anyone done it?

Posted by lymster (Member # 5964) on :

have no clue! but UP FOR ANSWERS

Posted by beachcomber (Member # 5320) on :

Hey, Ruffy, you and I might be seeing the same IDMD. My IDMD had me on this combo for many months. I saw great improvement while on it. He switched me to Bicillin/Mepron/Zith when my vein gave out.

As for the LLMD not accepting insurance, I was very put off by that. It seems to be a common practice amongst some of our local LLMDs. It s.....ks in my opinion. Imagine what that IV would cost if it were not for your IDMD????

Anyway, yes the combo works and is not dangerous. You may not feel great at first but, it could get you to a better place.

Posted by Ruffy (Member # 7146) on :

Awesome Beach. I just needed some clearance. I'm hoping this does the trick with the neuro stuff. I think I am going to cycle it, 3 weeks on, a week off.

And you're right about LLMD's. EXPENSIVE and not covered. Fortunately I do have the ID doc, who is good, despite the stigma on this board.

I think this will be a good combo for me right now. My lone concern is that my bart is still around. My LLMD perscribed Levaquin for 2 weeks, which probably wasn't enough, although my blood results showed that it's clear(albeit Quest). He said Quest wasn't bad with the co-infections, it's the Lyme where it's highly innacurate.

Posted by janet thomas (Member # 7122) on :

If the LLMDs turned our treatment into the health insurance companies, the insurers would cause problems for the LLMDs and then pretty soon- no more LLMDs.

Posted by ICEiam (Member # 7519) on :

My daughter is on the vile Yellow paint, Mepron, and is also on 800mg a day of Ketex pill and I just started giving her injections of Rocephin today. She cried when I injected that stuff into her. She said it HURT really bad. Are you on injections? There was a big lump I had to rub out and now it is swollen at the injection site. I feel SOOOOOOO bad for her. She is 24 and has had Lyme since she was 11, but was just diagnosed the end of this March. Her LLMD put her on all 3 meds so I am thinking it is safe enough. She will probably have a major herx though. Take care and let me know how you are doing with the injections if that is what you are doing.

Good Luck,
ICEY

Posted by beachcomber (Member # 5320) on :

Janet:

I have to respectfully disagree with you. If the LLMDs accepted insurance there would be a more accurate record of just how many cases of LD are actually being treated. It might wake up the CDC.

I, personally, think it is elitist and arrogant for some of the top MDs in this field to not accept insurance. It makes it very difficult for those on Medicaide and those of us who are not wealthy. I could never ever have afforded my LD treatment without insurance coverage.

Ruffy: I have been labeled a troll for questioning those who call IDMDs "ducks". It is a generalization that does not fit all MDs. I can name a couple of LLMDs, right here in CT, who are truly ducks who have taken advantage of patients financially. It is apalling in my opinion. But, I won't name them. And, I won't generalize about any category of MD being ducklike. I think we all can get the treatment we need by finding a good MD, of various specialties, who is willing to treat aggressively, willing to listen to us, and is educated in the ILADS Guidelines. In case some haven't noticed, many of us are still unwell, despite years of tx, using the guidelines. So, who has the cure? Not the LLMDS, not the IDMS, not anyone yet. A good Doc and an open mind is what we need to get through this.

Sorry for the tangent, but this topic always ruffles my feathers. Otherwise, I am a relatively sane, good humored person. And, I am NOT a troll.

Am on my way to a brain MRI so I am a bit edgy this morning - not too happy inside the tube.