After a year of reading on this board that Lyme can hide from antibiotics in either fat cells, the liver, or the gallbladder, I just had an experience that suggests one or all of these may be true, and wanted to run it by you.
About a month ago, I was doing great with running, weight lifting, and working full time, after I started hitting the Lyme, babesia and bartonella at once. Then, a month ago, I started trying to do yoga stretches on my waist, lower spine, and liver--and also began to seriously lose weight after years as a Lymie butterball.
But now I find that whenever I do a twist stretch on my waist, I have a Lyme relapse within 24 hours, and it is WICKED. If it weren't for the powerful abx I'm on, I'd be disabled again, and these are extreme Lyme symptoms that usually take a few weeks to build up to this strength level. It does seem like I'm squeezing the Lyme out into the open (yuck).
So I'm throwing this experience into the mix, to add to the discussion on this subject, and also to learn whether anyone else might have gone through the same thing.
It's depressing to keep relapsing again, but hopeful that exercise may flush the Lyme out of hiding.
[This message has been edited by liz28 (edited 01 July 2005).]
but I remember when I first heard Dr. Burrascano talk at Sibley Hospital in 2004....he mentioned that two of his lyme patients who were disabled and had to quick work.....designed an exercise program at a gym and eventually got better with the help of a trainer (who knew what he was doing and corresponded with Dr. B.)
He said that when they let up on the exercise symptoms resurfaced.
I do have a "shadow" on my liver that they are monitering and cysts on my gallbladder. I am looking forward to seeing the sonogram every 6 months that they check to see if this mysterious shadow keeps getting smaller...
Until then I will be twisting - I will let you know if anything comes up for me in the way of a herx...
quote:This just happened to me a few weeks ago.
Originally posted by liz28:
Then, a month ago, I started trying to do yoga stretches on my waist, lower spine, and liver--and also began to seriously lose weight after years as a Lymie butterball.But now I find that whenever I do a twist stretch on my waist, I have a Lyme relapse within 24 hours, and it is WICKED. If it weren't for the powerful abx I'm on, I'd be disabled again, and these are extreme Lyme symptoms that usually take a few weeks to build up to this strength level. It does seem like I'm squeezing the Lyme out into the open (yuck).
So I'm throwing this experience into the mix, to add to the discussion on this subject, and also to learn whether anyone else might have gone through the same thing.
I went the first week and did more than I should have but felt good afterward and then fairly beat up for 2 days.
I went back a week later and in the middle of a stretch, one with the back arched to open up that area, started having palpitations. Afterwards I couldn't stand, had no balance and was very nauseous and light headed. A massive brain fog set in, as well.
It threw me into a relapse, the likes of which I've never experienced before. I've been off ABX for a few years and not doing that well but nothing like this.
A few weeks later and some of the brainfog has lifted but other things continue to decline. I have every symptom I ever had and then some.
I have not lost any weight recently so I'd be inclined to think it's liver/gallbladder, in my case. I've been having increased problems from this area, since.
It's pushed me toward doing something about this again, finally.
ps. this makes me feel less insane.
This pathogen LIKES acid conditions.
To lose weight:
Not much has been said about pyruvate dehydrogenase that converts the pyruvate from glycolysis into acetyl-CoA. This is an important enzyme in making sure that cells preferentially oxidize fats over glucose. (It is inhibited by acetyl-CoA.)
biosci.cbs.umn.edu/BMBB/courses/5100/br_review_99.htm
Block acetyl-CoA?
During an insulin deficiency, increased gluconeogenesis in the liver leads to a deficiency of oxaloacetic acid. This causes a block in the Krebs cycle and therefore acetylCoA cannot be metabolised.
http://www.e-doc.co.za/modules.php?name=News&file=article&sid=192
Less insulin (acidic).
To lose weight...plain and simple...don't eat sugar. Do not cause insulin spikes. Less insulin = less acetlyCoA = cells oxidize fats over glucose.
Bb is "PFK dependent" this enzyme is "rate limiting" for glycolysis (sugar for energy). Insulin ACTIVATES this and Bb yells "yipee!".
Mg controls this enzyme.
Bb also follows the cholesterol pathway...uses the same nutrients our body does to make cholesterol.
To block THAT pathway...statin drugs (watch side effects, esp. CoQ10) OR Mg...cheaper and no "side effects".
Abx. make your system MORE acidic because they deplete the minerals your body needs to make your OWN HEALTHY antibodies.
How do you make your body more acidic?
But I thought I would put my own experience here too- after 4 years of no lyme symtpoms, and 2 years of not smoking, I started really exercising. I lost a little weight 5 pounds but was really converting the fat to muscle. I am not a heavy person, but had gained the usual 10 pounds.
I then began training for a triathlon. I finished it, but I was already relapsing and had terrible shoulder nerve pain that lasted for months. THe training was 5 days a week 1-2 hours a day aerobic. I felt AWSOME, doctors told me how good I looked and how it was helping my immune system...and then bam...I relapsed.
Just my experience. I hope to one day return to the 3 discipline arena!
Trails 
Look for lists on the internet of Low glycemic index (low sugar) foods AND lists of alkaline foods.
See what foods are on BOTH lists. Fill up your grocery cart with those foods.
This will help....a lot.
But one thing OFF SUBJECT: this no-sugar thing doesnt always work with losing weight and with women who are on the verge of menopause. My partner has been steadily gaining, she eats NO SUGAR of any kind, is vegetarian, hates sweets and acidic foods, eats moderate complex and simple carbs and continues to gain weight even being moderately active. It has only happened since the hormonal balance has shifted due to age. Any cliff notes on that problem?
Lyme symptoms are Mg deficiency symptoms...all of them.
Relapse or simply you dropped your Mg level with all that very strenuous exercise and not enough good food to supply additional nutrients?
Trails, the biggest culprit is usually alcohol. Straight to sugar. Does she have cocktails? What are her drink choices?
Yes, the hormones throw our systems into a fit. At puberty, if Mg low = seizures - not uncommon. Testosterone is sometwhat protective for both men and women. (Women have a little testosterone too.)
[This message has been edited by Marnie (edited 02 July 2005).]
Before I had lyme I loved to wobble. It made me feel great and freed up tension in my hips, pelvis & back.
As soon as I got Lyme, wobbling felt awful. It would hurt and make me extremely fatigued in just a few seconds. Finally I stopped doing it at all. Wobbling stretches the waist so I think I had the same problem you're having.
Yesterday I was able to wobble for the first time in a year.
hatsnscarfs
So when they take my gallbladder I'll be cured, right?
------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu
The GB stores bile from the liver and dumps it when we eat. How much does it dump? I don't have a clue!
Two years ago she worked out 5 days a week and drank MUCH less than now (recently got her PhD in computer science and it was NOT easy going-stress was taken out on the booze we all admit!) and still she continued to gain. She even went to nutritionists and PTs and they were baffled too. But they all said "THE CHANGE" made women hold on to fat cells that contain estrogen so it is HARD to lose and your body just wants to gain right before the levels drop off. No matter what the caloric intake was. Make sense to you?
Second- Do you think it was the Mg depletion for me???? This really trips me out! My biggest symptom after my shoulder "injury" (we'll never know if it was lyme or actual injury) healed was/is muscle twitching and brain fog. I rarely have pain or other symptoms until I go on ABX and then I flare and have major herxes.
A physiatrist told me a few months ago that she thought it was an electrolite imbalance. I have low sodium in the blood pretty consistantly but nothing seems to change that. I drank electrolite drinks and emergen-C-electrolite things crystals for weeks on end WITHOUT exercising and still had the low sodium and the twitching. What is one to do about this Mg depletion? Even if I soak in epsom salts, I still twitch! All over all the time. Is that the lyme or the lack of Mg? Sorry we have gotten so far off topic! Really interested in what you have to offer me. How do you know all this?
Thanks!
Trails
[This message has been edited by trails (edited 03 July 2005).]
So the whole thing doesn't mean that you have a relapse.