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» LymeNet Flash » Questions and Discussion » Medical Questions » Mepron Buddies.........

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Author Topic: Mepron Buddies.........
mimi
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Hell everyone I opened my mepron for the first time and could not believe the YELLOW PAINT I was about to drink you guys called this liquid gold i sure hope it works like gold i could use it. I hope all of you are doing better can't wait to try and catch up with the board although, since I have returned the board is really different
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HEATHERKISS
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Hi Mimi,

It looks like paint. Feels like paint. And even gets paint chips in the lid.

At first you will hate the stuff but once you start to feel better.......... You'll LOVE mepron. I do.

I'll bring up mepron buddies.
Heather


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mimi
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Heatherkiss thanks so much for the response I am really glad to hear that it helps you so much i hope i make it through the herxes to feel better Thanks again
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HEATHERKISS
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Mimi,

Well......... Can't garuatee anything about herxes. Some people have it bad.

Mine wasn't. I was home for 4 days. Achey tired blah blah usual blah & I threw up once in the middle of the nite. I didn't think it was so bad considering what people have gone through.

My LLMD says you may just get better and better and never herx. (very optimistic)

You'll be fine. It's so worth it.

Heather


Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
burnbitter
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well I'm back on mepron and zithro...which I did for 14 days at the beginning of my treatment but couldn't tolerate it. We're hoping that now that the lyme is not as bad that maybe if I increase the dose slowly I can take it.

it was very unpleasant before...not as bad as flagyl, tinazadole, or the ketek though.


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vandeb
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I just finished my 3rd round of mepron/zith for 5 weeks then flagyl 5 weeks. It works great for me. I also have some coinfections and yeast problems. It sure helps for both. Hope it works for you too.

------------------
Debbie V.


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mimi
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Thanks for sharing all of your experiences and some advice and encouragement. I am grateful to have folks to talk to because when I read the warnings I was scared to even take the stuff. Can't wait to feel better but a little scared of the herx
Have a good one
mimi

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beachcomber
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Mimi:

Try not to be too anxious or scared of the Mepron herx. When it first hit me I thought I had been run over by a truck. Yet, somehow I was semi-functional because my brain fog had cleared. That was such a nice thing. Yes, I felt pretty ill but I was able to rationalize that I was getting better and was less stressed than before Mepron. Having less anxiety about the herx made it a bit easier. I thought I was losing my mind before the fog lifted.

The "buddies" really helped me through those first couple of months. There are good people here with lots of experience with the yellow paint.

Hang in there and just ride it out. Sleep, eat well, take walks or do yoga, watch funny movies or really bad tv. Just remember that you may feel down and cranky - goes with the territory. Try not to take it out on others. I have to watch my crantankerousness (sp?) now that I am back on the M.

Take care.

Bc

[This message has been edited by beachcomber (edited 08 July 2005).]


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pippy
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hi everyone,
I will be starting Mepron/zith in a few weeks. i am feeling better from all the medication problems and have stabilized somewhat. Much less depressed and am actually coming back to life.
When i first tried Mepron, I stopped because of the horrible crying/emotional herxing.
I've been doing artemisinin faithfully to get the babesia down enough to tolerate mepron. At least that is what my doc thinks is causing the depression and the reaction to mepron.

I will need you guys in a few weeks when I herx from the yellow paint!
Zith by itself was great. I felt better than in years! I am really worried about Mepron!

Hope i can handle the herx better this time...I really need to stay on it and see this through. I can handle fatigue and even pain, but the mood stuff is the worst because you can't think or process what is going on and your brain tells you it won't end and you might as well jump off a cliff...

Mepron really worries me so I'll need to be on the buddies list for this one!!

Thanks!


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mimi
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Good afternoon everyone I have taken 2 doses so far and I can't tell any difference I know it will take awhile. I have not taken coq10 before but I have had ALOT of encephlitis and head pressure and I was reading another thread and they said it was good for that Can I take it with biaxin,clindamycin, and mepron???? I hope all of you are doing well today
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beachcomber
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Hi, Mimi:

How ya doin'. I am just starting the Mepron decline. I feel nauseas, cranky, dizzy and very tired and achy. I have a house full of guests and am struggling to make breakfast.

But, I know this will pass in time. It will for you too. Just got to get through the rough patches. I'm having a doozy of one today.

Think I'll sedn everyone to the beach and curkl up on the couch with a book or the remote until this passes. First, I have to get a sleeping teenager off my couch!!!

Have a good day.

Bc


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mimi
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BC, Good morning I hope you can get everyone out soon so you can rest. I am pretty new to all of the lyme remedies but one thing i learned from my years of being sick and thinking because nobody could find anything wrong i must just be lazy that when i rest or sleep it helped me make it through. I hope you get some soon so you can vist with your guest. I am hanging in here i have to drive about 3 hours today to return something but then i'll be on my couch hopefully. I'd rather join your crew on the beach i do have one question why am i hearing people talking that are not here???????????? last night i was trying to go to sleep and everytime i closed my eyes i heard people talking but couldn't quite make out the words like a radio station i could here but not enough to understand the words. very scarey it took me a long time to fall asleep after i got up at least 10 times to check the house,doors and wonder if someone was really there. any ideas????
sure hope after you are able to get some rest that you feel better and have a better day and as always thanks for checking on me everyday i think what will i feel like tomorrow?? so far i'm ok

Have A Good Day
mimi


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mimi
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Pippy
when will you begin?? Everyone has been really supportive and caring for me and i'd like to reapy that to everyone as well we'll be here when you do.
scared me though with the depression emotional stuff but if it makes me better it"ll be worth it. See ya soon my fellow yellow paint friend
mimi

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beachcomber
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Mimi:

Lots of people have reportd hearing things or seeing movement out of the side of their eyes. I, for one, used to turn suddenly because I thought I saw something move in my peripheral field of vision. I was doing it so often that my family thought I was hallucinating or paranoid. I really did think I saw or heard something.

This sympton did resolve itself on my first round of Mepron/Zith/Rocephin. It was a little freaky. But, when I read that others had/have this I felt like I wasn't losing my mind.

You might want to do a search for the old threads on this.

Houseguests are still here. I am less cranky this morning. Just tired. Will find some time to nap.

Bc


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mimi
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BC, Thanks for the answers on the voices.
Without you guys I would really I was as
crazy as I feel.

I went back through all of the first mepron

buddies thread and read that you are
exercising again and that you were cycling

, running, and swimming quite a bit before

you became ill. The one thing I miss more

than all of the other things I used to do

is run and ride my bike, I know I may not

run again unless the treatment helps with

my initial symptom of severe knee pain and

swelling, but I really hope to ride my bike

again. Watching the tour is always a part

of my summer but now it makes me happy and

sad. I am not really doing that bad I can

walk, work and basically function pretty

much like everyone else but I am selfish I

want my life back to normal for me.

I gave up my first career because I was

struggling to keep up with it as well as I

used to and traded it for a job less active

physically and my mom had been dx. with MS

and I didn't want to be on call all of the

time and work 7 days a week. I love my job

now too but fear that if I can't begin to

function better I may lose it as well.

I am thrilled that you are exercising again

and you have given me hope that soon I will

too. I hope you are feeling better and that

you get some rest. Still jealous that you

live at the beach always a dream for me.

Take care,
mimi


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KrisKraft
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Anyone feel like they have a c-clamp on their heart while on Mepron?
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beachcomber
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Kris:

Ouch! I felt like that on IV Rocephin.

Mimi:

You will get your life back. You have to believe and visualize that. I still cycle & swim & run & do yoga. I do it all at a snail's pace and with great trepidation. I now live for 3 mile rides on my bike at 5:30 AM. I go that early because sometimes I get so dizzy I am afraid I will tummble off and get squished. No traffic at 5:30 AM.

My life has changed and I am more cautious but, I do whatever I can to keep going. Don't lose hope.

As for living at the beach, it sounds more glamorous than it is. It is to L.I. Sound - no waves and a little murky. But, hey the air smells good, the sand feels good and my front yard is miles of water. It brings me peace.

Bc


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pippy
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thanks mimi and all.
I am determined to get through it!
sometimes the will to fight goes when this disease goes on and on...

But we have to get back on the darn horse and ride again, and again...even if upside down and backwards (I have recurring dream every month of winning horse race upside down and backward on a huge white horse at K derby! Dreams reaveal a lot about what is going on)

I would never have believed doxy could have made me feel so much better after 4 months of hell on it then zithro and i was almost back to normal...

now the mepron/zith and Im Bicillin. I'll stay on doxy forever too since it seems like I got lucky on it the first time

Wishing you all hope and healing!!
love,
pip


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