Does anyone have the malar rash on thier face and is it indictitive of lyme or some other disease?
Posted by JesusisLord (Member # 5776) on :
It is usually indicative of lupus. However, lyme is often misdiagnosed as lupus
Maybe others will have more insight for you.
Posted by janet thomas (Member # 7122) on :
I would have "face flushes" where my face would feel warm and turn reddish in the "butterfly" rash supposed to be a sign of Lupus. I have Lyme and had (have?) co-infections.
Posted by duke77 (Member # 5051) on :
Lupus is not the only condition that can cause a malar rash. My friends niece got diagnosised by a large medical university with Lupus only because of blood in urine, creaky joints, and a malar rash. Turns out it was Lyme afterall.
Coach...I have had this. It was one of my "come and gone" symptoms. It was present for a few weeks, fluctuating in brightness from day to day.
Posted by Lyddie on :
I had this on my cheeks and nose, but simultaneously also on my knuckles. The rash on my knuckles was biopsied and showed auotimmune activity characteristic of dermatomyositis or lupus. I also ahd a positive ANA and very igh CRP.
But it was Lyme.
What sensations do you have with the rash? Mine felt sensitive like a burn.
Posted by islandgirl (Member # 5914) on :
I've had that rash for 3 years now...used to call it my Heidi freckles. It cycles, about every 2 weeks. Burns, is itchy, and ugly. Very sensativie. Butterfly rash with raised bumps, on cheeks and across the nose, like lupus, and under my right lip.
The dermatologist says it is dermatitis...which means nothing. My family Doc just snorts at all the NON-LYME diagnoses I get.Why is lyme the ugly 4 letter word with these guys?
I use a light coating of cortisone cream...very light....to take away the itch. Not often, only as needed. It helps.
Posted by pq (Member # 6886) on :
Take still photos and video tape immediately! Close up and distant pictures, and video.
Check your entire body, if rashes,even little tiny red spots, document!
Rashes can disappear.
On video describe and sensations, feeling tone(s) your having. Date it with witnesses.
Save all receipts for purchase and development!
get more than one check list of signs and symptoms.
also, see Bransfield's, and Fallon's sites.
[This message has been edited by pq (edited 12 July 2005).]
Posted by duke77 (Member # 5051) on :
I get rashes on my knuckles that come and go which most likely is dermatomyositis. I have read that Lyme can either mimic or cause dermatomyositis. Anyone have Dermatomyositis and Lyme?
Posted by Lyddie on :
That was one of my possible diagnoses. Even a breeze hurt my skin. As I said above, my knuckles were biopsied... D o you have muscle weakness or wasting?
A guy named Pachner did research on dermatomysositis and Lyme. He's in NJ and there's some stuff online on his work.
I've seen his name occasionally in the "Steere camp" which surprised me, so just a heads up. His work on dermatomyosisits triggered by Bb looked good to me.
Posted by duke77 (Member # 5051) on :
No muscle weakness that I can tell. I am going to ask LLMD next time for a CPK test. My knuckles feel like extremely dry skin and are painful to the touch especially with soap.
Lyddie,
You said you had all of the symptoms of dermatomysositis but it turned out to be Lyme. I guess that goes with some theories I saw that Lyme just mimics dermatomysositis.