This is topic Anybody get extreme dizziness/vertigo? in forum Medical Questions at LymeNet Flash.


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Posted by castrong (Member # 7396) on :
 
Yesterday I woke up with severe vertigo. I was on doxy for 2 weeks and then switched to Biaxin XL and have been on that for the past 3 1/2 weeks. Just wondering if anyone else has had that symptom or should I just chalk the day up to something else going on? By last night the vertigo was nearly gone and today I'm feeling back to normal. Herx?
 
Posted by Kimmi_K_75 (Member # 7438) on :
 
hi castrong,

Before I started treatment one of the symptoms I experienced was extreme vertigo.
kinda like walking on marshmallows. This and other symptoms seemed to clear up on their own eventually. since I started treatment I still get dizzy from time to time.

However, this is probably attributed to my anemia.I would say that if it lasted for less than a day you are lucky. I dealt with it for two weeks.

Have you told your Doctor of this?
I am on doxy so maybe that helps you a little. Maybe it's a biaxin side effect?

I hope someone else can offer more insight.

-Kimmi
 


Posted by beachcomber (Member # 5320) on :
 
I have vertigo and dizziness, big time. Mepron has helped that. I think it is a symptom of Babesiosis.

[This message has been edited by beachcomber (edited 14 July 2005).]
 


Posted by zing (Member # 7124) on :
 
Hi castrong

Vertigo was one of my symptons pre-lyme diagonis. one moring I had to crawl on the floor, but mostly I just hugged walls.I took a med for motion sickness that helped but I forget what it was, sorry.

I had this sympton on and off for weeks but it eventually went away. This was all before any Lyme treatment.

Hope it stays away for you .

zing
 


Posted by castrong (Member # 7396) on :
 
Thanks for the help. I am awaiting testing from IGeneX to see if there are any co-infections. That will be interesting if Babs is present - I didn't know that was one of the symptoms. I plan to mention the dizziness to my LLMD at my next visit 8/5 - (also when I will get the test results.) I will probably call him sooner if the vertigo comes back before tho'. That was rough!
 
Posted by perplexed (Member # 1913) on :
 
I suffer from vertigo and dizziness and my first visit to an LLMD in MO is next month. I have had Lyme for 34 yrs now.

I can remember all the times I have been dizzy and walk crooked and very nauseous, and the ducks would give me a motion sickness med..could be inner ear or anxiety or panic or blood work is needed....nothing ever found though.

I am really having a hard time with the dizziez and the nauseau this past week....what will happen when I get abx?? One step at a time, I guess.

Jean
 


Posted by lymeHerx001 (Member # 6215) on :
 
I suffer from chronic vertigo and sinuses problems.

It interferes with every aspect of my life.


I cant fold my hands because I get too dizzy.

Just search my posts if you want more info
 


Posted by cindy_leigh (Member # 3514) on :
 
Oh.... BIG TIME. Been off abx for a year, but blebbing now. (LLMD calls flare ups blebbing, because a herx only happens when on abx).Got it bad. Taking meclizine twice a day (non-drowsy drammamine), OTC, until I can get back to the LLMD.
 
Posted by liz28 on :
 
I'm with Beachcomber on this one. The dizzyness and vertigo were 100% babesia. The Lyme just came down on me like an anvil.

Since a lot of babesia flies under the radar with these lame tests, you can try artemisinin first and see if you flare, then present the results to your doctor. There's certainly no reason to wait before treating yourself with artemisinin--it doesn't cure babesia, but it should make you feel much better. Here's a New York Times article about it:

Herbal Drug Is Embraced in Treating Malaria
By DONALD G. McNEIL Jr.

Published: May 10, 2004

After years of hesitation, world health agencies are racing to acquire 100 million doses of a Chinese herbal drug that has proved strikingly effective against malaria, one of the leading killers of the poor.

The drug, artemisinin (pronounced are-TEM-is-in-in), is a compound based on qinghaosu, or sweet wormwood. First isolated in 1965 by Chinese military researchers, it cut the death rate by 97 percent in a malaria epidemic in Vietnam in the early 1990's.

It is rapidly replacing quinine derivatives and later drugs against which the disease has evolved into resistant strains.

To protect artemisinin from the same fate, it will be given as part of multidrug cocktails.

Until recently, big donors like the United States and Britain had opposed its use on a wide scale, saying it was too expensive, had not been tested enough on children and was not needed in areas where other malaria drugs still worked.

Unicef, the United Nations Children's Fund, which procures drugs for the world's poorest countries, opposed its use during an Ethiopian epidemic last year, saying that there was too little supply and that switching drugs in mid-outbreak would cause confusion.

But now almost all donors, Unicef and the World Bank have embraced the drug. The new Global Fund for AIDS, Tuberculosis and Malaria has given 11 countries grants to buy artemisinin and has instructed 34 others to drop requests for two older drugs -- chloroquine and sulfadoxine-pyrimethamine -- and switch to the new one.

"We want countries to move very rapidly to use it as a first-line treatment," said Dr. Vinand Nantulya, the fund's malaria adviser. The fund expects to spend $450 million on the drug over the next five years, he said.

The World Health Organization, a United Nations agency based in Geneva, estimates that 100 million doses will be needed by late 2005.

Malaria causes about 300 million illnesses a year, and at least 1 million deaths, 90 percent of them in Africa and most of them children under 5. Despite more than a century of eradication efforts, the disease is endemic from the Mekong Delta in Vietnam to the Amazon Basin in Brazil, and is particularly severe across central Africa, from the cane fields of Mozambique to the oases of Somalia to the rubber plantations of Liberia.

Like many tropical disease drugs, artemisinin is a fruit of military research. Chinese scientists first isolated it in 1965 while seeking a new antimalarial treatment for Vietnamese troops fighting American forces, said Dr. Nelson Tan, medical director of Holley Pharmaceuticals, which makes the drug in Chongqing, China.

Another antimalarial drug still in use, mefloquine, was isolated at the Walter Reed Army Institute of Research in 1963 for American troops in the same jungles. Under the name Lariam, it is still issued to troops and sold to travelers.

Artemisinin, which has no significant side effects, quickly reduces fevers and rapidly lowers blood-parasite levels, which can keep small outbreaks in mosquito-infested areas from becoming epidemics.

Two years ago, Dr. Dennis Carroll, a health adviser to the United States Agency for International Development, said artemisinin was "not ready for prime time." But on April 30 at a malaria conference at the Columbia University School of Public Health, he led a session on ways to induce farmers to plant more wormwood.

Dr. Carroll said that more evidence had emerged that the drug was safe and that older drugs were not working. Also, the creation of the Global Fund expedited grants for it.

Dr. Stewart Tyson, a health expert with the British Department for International Development, said his agency changed its opinion about the drug after its experience in Uganda, where resistance to older drugs had climbed to 31 percent in some areas in 2003 from 6 percent in 2000.

The price of artemisinin cocktails has fallen from $2 per treatment to 90 cents or less as more companies in China, India and Vietnam have begun making them. (Older drugs cost only 20 cents.) Novartis, the Swiss drug giant, sells its artemisinin-lumefantrine mix, Coartem, to poor countries for 10 cents less than it costs to make, a company official said. The same drug, under the name Riamet, is sold to European travelers for about $20.

As a plant material, artemisinin cannot be patented, said Dr. Allan Schapira, a policy specialist for the Roll Back Malaria campaign of the World Health Organization. Nor can the simple extraction process. Some synthetics, he said, are old and off patent, which public health officials like but pharmaceutical companies do not, because they make a larger profit from drugs on which they have patent monopolies.

No company has registered artemisinin in the United States, said Dr. Nick White, a professor of tropical medicine at Mahidol University in Thailand, because sales would be too small to justify the cost of seeking approval from the Food and Drug Administration.

Now, with more purchases, fears of a shortage that would push prices up are developing. The W.H.O. estimates that 100 million doses will be needed by late 2005, and the world now has only about a third of that.

Though it grows wild even in the United States, wormwood is cultivated only in China, Vietnam and pilot projects in Tanzania and India. It is planted in December and needs eight months to mature. Drug companies want firm orders from donors before they try to triple production.

Dr. Tan said he had seed banks ready to plant 62,000 acres, "but we need to pay farmers to give up other crops and arrange for fertilizer."

"Time is against us," he said.

Even if enough artemisinin can be made, obstacles will arise, experts warned. For example, Dr. Kopano Mukelabai, a malaria specialist at Unicef, said shopkeepers would have to be trained not to sell one or two pills to patients who lacked the money for a full course of 12.

And what Richard Allan, director of the Mentor Initiative, a public health group that fights malaria epidemics, called "the love of chloroquine" will have to be broken. That quinine derivative, in use since the 1950's, is now almost useless against parasites, but poor people still buy it because it is cheap and lowers fever as aspirin does.

Also, counterfeiting will become a problem. In Kenya in 1997, Mr. Allan said, he found 120 versions of sulfadoxine-pyrimethamine for sale, "ranging from very good drugs to talcum powder." A recent study of artemisinin drugs in Asia "found that 38 percent were fakes," he said. "We can expect the same thing to happen in Africa."

He favors giving artemisinin away to remove the counterfeiters' profit motive.



 


Posted by HEATHERKISS (Member # 6789) on :
 
Yes, very troublesome. It goes hand in hand w/ nausea and fatigue.

Lately it's up and down for me. It gets depressing after having a good day or two then going back to Dizzy.

I know I will have better days and so will you.
Heather
 


Posted by castrong (Member # 7396) on :
 
Thanks for the great article Liz28. Do you know where they sell artemisinin and what the dosing should be to keep dizzies at bay? Might be worth locating some just in case. Has anyone else used this?
 
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