I was just wondering if the symptom of hot burning skin was commonly associated to bb, or to babesia. This will impact my choice of medication.

My LLmd has me rotating on clindamyacin/quinine, and rifampin, and zithromax. I have to be honest, I am not sure that I have seen much of this discussed,
and wondered if anyone has had success with these rounds.

Recent literature that I've seen doesn't talk about this protocol, so I was just curious if anyone had seen it being used effectively recently.

Thanks much!

I can't help you, but I am experiencing the same thing! I had babesia and thought I got rid of it, but I think it came back! I just started taking mepron/zith again, but too soon to feel a difference. I told my LLPA that I feel like I have sunburn - she said she had never heard of that! (And she's very familiar with babesia.) Hopefully other people will have some insight for us.
 

I just received a very lovely email from someone who experienced this, and felt that according to the Burronesco guidelines, it was a part of the Bartonella package. So, I am confering now with my Dr. in the hopes that he agrees, and evidently the drug combo of choice for this is nexium, and levaquin.

I am hoping this will help!

It was so strange how it appeared 2 years later, out of NOWHERE! So, now I am having a bit of a relapse with other symptoms too...

thanks for your feedback, and if I get a definite reply form My dr., I'll post back!

take care...
 

it seems to have dissipated more with the rifampin and /or clindamyacin, ( I was rotating) but it is hard to tell!

My llmd suggests that mepron is the strongest medicine for babs along w/ zith or biaxin.

I think it's the babs that gives the hot skin and night sweats. Although I used to have really bad reactions in the sun before any type of treatment.

Once I started getting treated for lyme that symptom went away. Even though I hadn't started the babs treatment yet.

Now I don't have problems in the sun like I used to. I am still abnormally hot sometimes.

Later,
Heather
 

As always, I can't remember who, but someone recently posted that "nature abhores a vacuum", describing how, as one illness gets beaten back, another fills the void.

It may be that either Babs or borellia are being successfully treated, and another bug, perhaps the one which causes Bartonella, is replacing it, perhaps because your immune system is now available to fight it.

While this makes intuitive sense, at least to me, I have no idea if it makes scientific sense. Perhaps someone else can speak to this more scientifically, or you could ask your doctor.
 

I guess he wants to stick to the clindamycin/quinine for now, but I have read that there is a high relapse rate.

Thanks, Heather, I'll try to get some mepron. ANd tickedntx, It was strange that this surfaced 2 years later; it WAS a total surprise!

I guess I have no choice but to stick out the quinine for now. I am concerned a bit since my ears are ringing alot now, (another symptom that had totally disappeared, and now resurfaced.)

thanks all!
 

I was on zith and mepron and my leg started burning and a whole lot more. My LLMD stopped all that and started me on flagyl. We have the same LLMD, b/c I will be doing the clindamycin/quinine and rifampin next. He normally doesn't use meprin with the zith, I had asked him after a + babesia test from Bowen.

Let us know how you do.
 

Now if that ringing gets too bad, you need to be sure to let him know. You may need to lower the dosage of the Q.

I would think that some of what you are experiencing COULD BE a herx.....or could be what tickedtx described. I'm pretty sure your dr has mentioned that to me too.

And i have no clue which illness causes the burning. I know rifampin is supposed to be very effective against bartonella.

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu
 

My primary symptom is skin burning.
I burn all over.
I also twitch, although Mag has pretty much taken care of that.
Thanks
Marnie.

The only med that I know helped, and that was temporary was Rifampin.
I do think Biaxin killed some bad guys.

I have been off abx for a month due to Rifing, but I will start up again soon with Biaxin, Rifampin and Tini.

I do not know if it is Babs or Bart and don't know if anyone knows for sure.

I take lots of warm baths with Epson Salt, Clorox and Hy peroxide.
Rinse off after.

Warm water is my only true relief.

I also think Elavil, which I take at nite can help.
I had been on 3600mg of Nuerotin. It did not touch the pain.

Clothes are a real problem. I have to wear very soft clothes and nothing that is tight or binding. So that leaves out bra's [lucky I don't need it much-lol} and other tight things.

If I can help email me.

Good luck
Peace,
BJG
 

Hot skin is definitly a herx symptom for me. Feeling sunburnt also, and it intensifies in the heat. Recently had to take a few days break due to this getting severe.

Also at my sickest was a problems as well from raging infection. My son's cheeks get hot to the touch and this morning he was hot as well and gave tylenol and he slept til noon and felt better.

Take care
Lymiecanuck
 

Do you know which disease you were herxing from?

[This message has been edited by sweet pea (edited 22 July 2005).]
 

I will be curious to see if Erica's bart meds that her doctor prescribes will work!

 

Well, lo and behold, I was greeted by a slow, progressive decline, and this brand new symptom, which came out of the blue! Just when you think you've had all the symptoms in all the body's systems! It was frightening at first, because I would get it for a week straight, and that included head pressure also.

I am glad to hear the the clindamyacin may help. I had one round of it about a month ago, and it did seem to dissipate the symptom. Then my local Dr. put me on 500 mg of flagyl x 3, for suspected c. diff. By the time my culture came back negative, (close to 2 weeks later)I had already burst all of these cysts! I can't believe that I was able to sustain all of that flagyl, with no great problem.

Anyway, the battle of the coinfections, and the bb thus continues...so I do hope this combo helps! I'll be sure to keep you all posted, and thanks soooo much for your contributions...I really appreciate all of this feedback
 

I also have the burning sensation.
REALLY weird stuff. It started on my ankles, this was BEFORE I even knew I had Lyme. Now I get in on my knees, parts of my face, and my ears.
I naturally thought ( now that I know I'm infected) it was from the Lyme.
Now I'm curious if it is a co-infection that's causing it.

I showed my nine year old the other night, and she got a kick out of it. I had her touch the red area, then another that wasn't red. Her eyes got real big and she said 'COOL!'

-Kimmi
 

Go figure! Tonite a new symptom. I feel like I have a sunburn when I don't. Also my skin is very sensitive and my scalp feels soooooooo weird.

I'm on my second day of bactrim which has been added to my huge regime of pills.

At least I'm not alone.
Heather