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Posted by Betty Boop 53 (Member # 7665) on :
 
I am trying to find out wether or not I truly have lyme disease. I have tested positive twice for lyme antibodies IgG/IgM ( 1.2 and 1.44)with only one positive on the western blot(band 41 kDa).I dont want to take antibiotics if I dont need to. Any thoughts on the matter?
 
Posted by HEATHERKISS (Member # 6789) on :
 
Having the antibodies is lyme! What lab did you test positive?

As some one else on this board once said,"Can you be a little pregnant?"

Do you have the actual test? Post it and see what everyone thinks.
 


Posted by Kara Tyson (Member # 939) on :
 
How fortunate you are to make antibodies and to actually have a Dr. even willing to test.

Personally, I would consider yourself fortunate and take the antibiotics. Just in case.
 


Posted by Betty Boop 53 (Member # 7665) on :
 
I was tested by two labs, Quest and Centrex. The Western blot was positive only in Quest. Unfourtunately, i do not have the tests on my computer so i cannot post them for you.


 


Posted by Betty Boop 53 (Member # 7665) on :
 
I wasnt as lucky as you think, after ten years I had to go out of the state to get the test done.


 


Posted by Betty Boop 53 (Member # 7665) on :
 
People have also been known to test false positive before...
 
Posted by Kara Tyson (Member # 939) on :
 
Betty,

You are right. People do have false positives if they have syphilis or advanced gum disease.
 


Posted by bg (Member # 46416) on :
 
Welcome Betty Boop! Read Dr. B's guidelines & Treepatrol's WESTERN BLOT info shown on his links!

Welcome to this 24/7 educational & support group board!

Here's TREEPATROL's and TINCUP'S combination newbie links.
http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this. Treepatrol constantly adds new links as they become available from the members here.

print & read Dr. Barrascono's info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
http://www.lymeinfo.net/lymediseasetreatment.html

Some guidelines from Betty/others on using this message board:

* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.

* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.

* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.

* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.

* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!
*
Bettyg, Iowa
 


Posted by Betty Boop 53 (Member # 7665) on :
 
Betty G:

Thank you so much for your reply... the links are helpful...but I have real trouble concentrating on the computer it is hard for me to go through all of the information. What do you think of my original question on diagnosis?

Thanks again... Betty Boop 53

quote:
Originally posted by bettyg:
Welcome Betty Boop! Read Dr. B's guidelines & Treepatrol's WESTERN BLOT info shown on his links!

Welcome to this 24/7 educational & support group board!

Here's TREEPATROL's and TINCUP'S combination newbie links.
http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this. Treepatrol constantly adds new links as they become available from the members here.

print & read Dr. Barrascono's info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
http://www.lymeinfo.net/lymediseasetreatment.html

Some guidelines from Betty/others on using this message board:

* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.

* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.

* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.

* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.

* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!
*
Bettyg, Iowa



 


Posted by janet thomas (Member # 7122) on :
 
Now we have 2 Betties-or is it Bettys?-how nice!

Tally your symptoms at www.canlyme.com click on symptoms.

I copied the info below from Cheryl's site.

Nine Reasons for False Negative Lyme Disease Blood Test Results
From the Lyme Disease Foundation brochure, Frequently Asked Questions About Lyme Disease
1. Antibodies against Borrelia burgdorferi (Bb) are present, but the laboratory is unable to detect them.

2. Antibodies against Bb may not be present in detectable levels in a patient with Lyme disease because the patient is currently on, or has recently taken, antibiotics. The antibacterial effect of antibiotics can reduce the body's production of antibodies.

3. Antibodies against Bb may not be present in detectable levels in a patient with Lyme disease because the patient is currently on or has previously taken anti-inflammatory steroidal drugs These can suppress a person's immune system, thus reducing or preventing an antibody response.

4. Antibodies against Bb may not be present in detectable levels in a patient with Lyme disease because the patient's antibodies may be bound with the bacteria with not enough free antibodies available for testing.

For this reason, some of the worst cases of Lyme disease test negative -- too much bacteria for the immune system to handle.

5. Antibodies against Bb may not be present in detectable levels in a patient with Lyme disease because the patient could be immunosuppressed for a number of other reasons, and the immune system is not reacting to the bacteria.

6. Antibodies against Bb may not be present in detectable levels in a patient with Lyme disease because the bacteria has changed its makeup (antigenic shift) limiting recognition by the patient's immune system.

7. Antibodies against Bb may not be present in detectable levels in a patient with Lyme disease because the patient's immune response has not been stimulated to produce antibodies, i.e., the blood test is taken too soon after the tick-bite (8-6 weeks).

Please do not interpret this statement as implying that you should wait for a positive test to begin treatment.

8. Antibodies against Bb may not be present in detectable levels in a patient with Lyme disease because the laboratory has raised its cutoff too high.

9. Antibodies against Bb may not be present in detectable levels in a patient with Lyme disease because the patient is reacting to the Lyme bacteria, but is not producing the "right" bands to be considered positive.


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Reasons Why A Seronegative Test Result Might Occur
Tom Grier, Lyme Alliance

1. Recent infection before immune response


 




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