LymeNet Flash: Dr. I ln LI

This is topic Dr. I ln LI in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/36589

Posted by pini (Member # 1405) on :

I'm going to Dr.I on Long Island and I would like to know if anyone any success with this doc. I am on Ceftin for 2 months and feel like crap. I was on IV a few years ago b/c Lyme was found in the spinal fluid. This doc says since I'm seronegative I need yet another spinal tap and I refuse to do it. This particular dr. says insurance will not pay for IV without another spinal tap. Any suggestions? This doctor is an infectious disease doctor.

Posted by Corgilla (Member # 4066) on :

Hi Pini,

I'm sorry but I don't know who this doctor is. Any true Lyme Literate doctor will make a diagnosis on the symptoms you have (clinical diagnosis). Spinal taps are dangerous and there is very little chance of finding any Borrelia in there anyway.

I've seen it explained as: Imagine you are fishing and there aren't many fish in the pond. You can throw the line in and not catch any fish all day long even though there are fish in the pond. They just aren't where you happened to be fishing. Borrelia are not attracted to spinal fluid.

My LLMD has told me outright that if I want to go with IV, my insurance company will pay for 2 months but I should plan on at least 6 months of treatment. I would have to pay out of pocket for the extra treatment.

I'm being treated with oral antibiotics and supplements and I'm doing very well. I have Lyme, Ehrlichia, Bartonella, mycoplasma and my Babesia is hopefully gone now. I was infected at least 13 years ago and diagnosed 3 years ago.

I really only meant to reply with "I don't know this doc" to bump your post back to the first page, but I ended up babbling. Hope that's OK.

I guess my suggestion is find another doctor.

Corgilla

Posted by maryc (Member # 4904) on :

Hi, I also see a Dr. I in LI. If you want to email me, you can reach me at [email protected]. I actually have an apt in about 3 hours. mary

quote:
Originally posted by pini:
I'm going to Dr.I on Long Island and I would like to know if anyone any success with this doc. I am on Ceftin for 2 months and feel like crap. I was on IV a few years ago b/c Lyme was found in the spinal fluid. This doc says since I'm seronegative I need yet another spinal tap and I refuse to do it. This particular dr. says insurance will not pay for IV without another spinal tap. Any suggestions? This doctor is an infectious disease doctor.

Posted by HEATHERKISS (Member # 6789) on :

email me