LymeNet Flash: Dr. G in Jersey for lymerix patients ????

This is topic Dr. G in Jersey for lymerix patients ???? in forum Medical Questions at LymeNet Flash.

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Posted by sofy (Member # 5721) on :

I had lyme several times and then made the horroble mistake of getting the vaccine in 1999. It took till 2004 to find out that was the cause of my fall from life.

Im on my second lyme doc but recently was told of Dr. G in northern NJ who is a well known rheumy lyme doc but often treats lymerix patients with antinflamatories instead of abx.

I have not talked to her office yet but since ive been on a bunch of different abx since early 2004 and really see no difference Im beginning to wonder if this might be something worth investigating.

I hate when I read that lymerix patients will just never get over lyme so perhaps I need to be thinking about better daily management instead of a cure that may come tomorrow.

Im just over 60 so today seems a lot more important than tomorrow. Now if I was 30 I might be thinking the opposite.

Do any of you see her or have any input you care to share. Im happy to have any responses here or by private email. thanks

Posted by Monica (Member # 224) on :

Based on my personal experience, I would avoid her like the plague. Unless you like being treated like something dragged in on the bottom of someone else's shoe.

I understand if she does not make the LD diagnosis herself she is less than helpful.

Posted by Mathias (Member # 5298) on :

Dr. F is another NJ rheumy LLMD who could possibly help. Treats with antinflamatories and even steroids. Sometimes inconjunction with abx and somtimes without.

Posted by seibertneurolyme (Member # 6416) on :

Don't know anything about the docs, but just wanted to mention I spoke with the doctor at MDL Labs today by phone regarding Lyme testing. He mentioned that the C6 peptide test for Lyme often tested positive for patients who had had the vaccine.
http://www.mdlab.com

Just thought this might interest you.

Bea Seibert

Posted by pq (Member # 6886) on :

mispost

[This message has been edited by pq (edited 03 September 2005).]

Posted by janet thomas (Member # 7122) on :

I am a former patient. You're welcome to email me.

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by Mathias:
Treats with antinflamatories and even steroids.

Neither of these is a very good option. I've been told that prescription anti-inflammatories can cause damage not only to the heart and circulatory system, but to the joints as well.

and steroids......well, I think you know.

Sofy, are you taking supplements and following a good diet? All of that can help. MSM??

I'm sorry you are so miserable. Surely there's a dr near you who can help. But I would definitely steer clear of rheumies. There are very few of them who can help Lyme patients.

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu

Posted by pq (Member # 6886) on :

Since this is an immune system problem, an immunologist with some kind of subspecialty might be better.

If anti-inflammatories are the sole agents used, then it wouldn't be worth the trip.