Hey folks, i was talking to my physical therapist while having a lymph gland and node massage, (doesnt sound near as grand as a full body relaxing massage, and yes it got the toxins going, big time). He explained that it is higly likely that i have also developed fibromyalgia after that onset of the Lyme disease. This was an opinion of another massage therapist that i had seen before when she said i had grainy muscles such as a fibromyalgia patient has.
what do you think. Can Lyme bring on fibromyalgia? Lemonhead
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Posted by johnlyme1 (Member # 7343) on :
Have you also been tested for co-infections? I had been also diagnosed with some fibro issues but I also have had the mycoplasma M infection with the lyme - they have been treating this with the Babs abx. I have noticed a big change going on for the better -
Posted by Lymetoo (Member # 743) on :
I believe FM IS Lyme disease. Just my opinion! I was dxd with FM 25 yrs ago, but figure I've had Lyme for 46 yrs. I found out 5 yrs ago that I have Lyme.
Fibromyalgia is a set of symptoms, not a disease.
------------------ Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express! oops! Lymetutu
Posted by WildCondor on :
Fibromyalgia is caused by Lyme Disease. It is just one of the symptoms or myraid of "syndromes" that most doctors don't understand. These things always have a cause, and most Fibromyalgia is caused by Lyme bacteria. Chronic fatigue is another one, its not a disease in itself, but a cluster of symptoms. Seek the cause!!! Godo for you with the massage!!!
Maybe....FM is a symptom. My mom had what she thought was FM since I was a kid and was finally diagnosed with MS, which we now believe was really Lyme. Both my daughter and I had been diagnosed FM for many, many years, and now find out "it" was Lyme. My dad came down with Lupus and then started having symptoms identical, to that of my mom and myself before being diagnosed with other things. Symptoms that had been diagnosed as FM before.
There were 4 of us with 3 different diagnoses and we all have FM. Maybe FM is a symptom of an autoimmune type response. Just a thought.
Ooops, guess I should really read the whole dern thread. As you can see I agree with the above:}
[This message has been edited by Jellybelly (edited 02 September 2005).]
Posted by pq (Member # 6886) on :
ditto lymetoo, and wildcondor.
Since one can contract more than one infection from an insect-vector, the cause, for now might be said to be due to TBDs,and other infections from vectors carrying many microorganisms.
that said, since borrelia are known to be in tissue planes,as well as elsewhere, they would be a PRIMARY etiological suspect in fibromyalgia.
[This message has been edited by pq (edited 02 September 2005).]
Posted by BugBit (Member # 7829) on :
Ditto. Dx'd FM and CFS many many years. T'was Lyme all along, including the cysts in my joints and muscles Dx'd as osteoarthritis. Nobody looks for causes any more. It is more profitable for the drug companies to treat the symptoms. Someone said: "There is no profit in health, there is only profit in disease, preferably chronic - but not fatal." Some of the sick just don't want to know, or are incapable of figuring it all out. Cheers, *Bit*
Posted by BugBit (Member # 7829) on :
quote:Originally posted by Lymetoo: I believe FM [b]IS Lyme disease. Just my opinion! I was dxd with FM 25 yrs ago, but figure I've had Lyme for 46 yrs. I found out 5 yrs ago that I have Lyme.
Fibromyalgia is a set of symptoms, not a disease.
[/B]
Yes, me too me too. But then, we *couldn't* have been sick that long. Lyme was only discovered in 1975. :wink: Cheers, *Bit*
[This message has been edited by BugBit (edited 02 September 2005).]
Posted by Lyddie on :
These therapists are probably thinking of FM as a "post-Lyme disease syndrome. They have read articles about this, which are written by Steere and others in his camp, order to discourage long-term antibiotic use.
The idea is that yes,a person has Lyme at some point. They should only be treated for 30 days, which is supposed to wipe out the bacteria. Then the person suffers a post-Lyme syndrome, which resembles (or is) fibromyalgia (fatigue, pain, other stuff) which these MD's say will gradually improve, though not always.
Their main thesis is that antibiotics should not be used for this since, in their view, the bacteria were already eradicated by the 30 days of abx.
So this means, basically, that these therapists are not exactly Lyme-literate. Probably nice people, and good therapists. But you might want to let them know that what they are observing IS Lyme, not something else, and that you still are treating it (if you are).
The more people like this who understand that long-term abx are needed, the better.
Posted by Areneli (Member # 6740) on :
I would say that MOST of fibromyalgia is LD.
Posted by I Have Lyme Etc (Member # 7439) on :
I agree with you LymeToo.. Just my own personal opinion..I think a dx of Fibro and or CFS is a junk dx.. In my own opinion I feel Lyme IS Fibro as well as CFS and Im not so sure it's not MS as well...
quote:Originally posted by Lymetoo: I believe FM [b]IS Lyme disease. Just my opinion! I was dxd with FM 25 yrs ago, but figure I've had Lyme for 46 yrs. I found out 5 yrs ago that I have Lyme.
Fibromyalgia is a set of symptoms, not a disease.
[/B]
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"It is not genius, nor glory, nor love that reflects the greatness of the human soul.....it is kindness..."
oops! 
