I wanted to send out a good report. I've been treated for Lyme for about a year and a half now. About 6 months ago I started losing my hearing. I went to an ENT and he did several different kinds of hearing tests.
At the end of that day he said I qualified for a hearing aid right away. I told him about my Lyme (which at that time he knew almost nothing about) and I read on here once that if you get the Lyme under control your hearing would return.
He is a great doctor and friend of my family but he was very VERY skeptical of what I was saying. He thought it was permanent damage to the inner nerves in the ear. It wasn't from medication as he could tell the difference somehow.
He faxed all his findings to my LLMD 6 months ago to alert him to his findings. Well today I went back for the same tests and everything was almost normal. The ENT doctor was totally floored. He could not believe how dramatically better I was than 6 months ago.
NOW he knows for sure it definitely is possible to lose and restore your hearing when your Lyme is under control. He has researched about the Lyme and is a believer in the disease. Anytime we can convince the medical doctors that Lyme is real, we've made progress.
I just wanted to let you know about the good report and give you encouragement to keep fighting this disease and making the world aware of the hell we go thru on a daily basis. I will continue to go back every 6 months to see how the Lyme and my hearing are progressing.
Thank you to all those that kept me going and encouraged me 6 months ago to not give up. I know without you I would have totally freaked out. Hopefully this message will help somebody else going thru the same situation I am. God bless you all.
Posted by seibertneurolyme (Member # 6416) on :
That's GREAT news. STUPENDOUS in fact!!!!!
Hope this works in reverse -- hubby has hyperaccusis which means his hearing is too sensitive. Would really really love for this symptom to go away.
Bea Seibert
Posted by Lymetoo (Member # 743) on :
THAT IS TOTALLY AWESOME! I'm so happy for you!! I remember when this happened to you! Very scary!!
It's also really great that this dr now knows the real deal with Lyme. That will go a long way to help us and to help his future patients.
Did you give him a copy of Dr B's guidelines??
yippeeee!! Posted by vandeb (Member # 6345) on :
thank you both so much for your replies. I'm so encouraged by this big improvement.
Bea I hope and pray your hubby will get the same results I did eventually. Hopefully when the Lyme gets better so will his ears.
Lymetoo thanks again for your support. I don't have those guidelines from Dr. B. Where can I get them? All I had to give my doctors except for my LLMD was what I found thru searching the internet.
Anything I can learn from and show them I know would be helpful. The medical doctors I have seen here have been very open to learning more about Lyme. Most of us southern women have BIG MOUTHS. We don't stop talking til everyone knows. haha
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