My symptoms started about 4 years ago. Started with muscle twitching that eventually spread to entire body. There is virtually no place on my body that I don't get them. About 2 years ago I started seeing Drs. I had clean brain / spine MRI, clean EEG, clean EMG and nerve conductance test. All Drs thought I was crazy and kept telling me it was stress. I've also had a number of extrememly strange symptoms. I had pain in my testical for 2 weeks that went away with antibiotics (not sex related). My eyes will twitch really fast when they are closed, though I only know this from people telling me. About 1.5 years ago I started noticing coldness in my right foot. I have difficulty balancing on that foot and my right thigh is always tight. Over the past 2 weeks the coldness has returned and gotten more persistent. I also have experienced cloudiness with thoughts and memory over the past couple of months. These symptoms all come and go with great infrequency. I was convinced I had a neurological disease for a long time. This site has been the first place I have found other people with very similar experiences. Wondering if anyone out there has had similar symptoms?
Thanks much.
Posted by Lymetoo (Member # 743) on :
I only have a minute....here's some info:
1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
Those are lyme symptoms listed above. What any particular individual has, though, varies. It may also be that some of those symptoms are of other tickborne diseases that can be transmitted by a tick bite. In other words, you could get more than one germ per bite, and the symptoms overlap.
There are support groups in CA. Have you contacted any of them? If not, might be a good idea. Click on support groups line in green menu box left side of this page. Several CA support group leaders post here so maybe they will come along and notice your inquiry.
The best thing to do is get educated about this, because the medical establishment has botched this disease, and only the very lucky and the persistent, educated folks are going to get appropriate diagnosis and treatment.
Also, you might have a look at the newby links at top of this page. Pretty extensive, so pick and choose what seems most applicable to you now. The links above, in Lymetoo's post, are excellent too.
