I have this daily pattern where the killer fatigue drops off in the late evening. (Thank you, God, for that)
It's got me wondering what mechanism might be causing that change, like clockwork. I'd really like to know if anybody else experiences the same or has any thoughts as to what might be going on ?
Thanks !
Posted by AlisonP (Member # 7771) on :
The same thing happens to me. I am flummoxed as to what causes it. For me, the sxs almost seem to get stronger or lessen depending on the sun.
i.e. as the sun starts to go down, my sx lessen. In the early morning hours, as the sun is rising, they gradually get worse and stay bad until again the sun goes down.
A.
Posted by krazykt1 (Member # 3739) on :
I notice the same thing. I'm better at night about 10PM. I keep thinking it's the babs and more oxygen at night. Babs has an effect on availability of oxygen in the RBC's...just my own theory, any thoughts?
Posted by cleo (Member # 6646) on :
I too have the same thing. Before I go a diagnosis I told the dr. this and he said "its because you know you are going to sleep".huh I had such (gone now) bad insomnia I did not sleep for months so night time was a more stressful time. If you read david wheldon's ms site (treating his wife) he describes his wife as having a dinural pattern , he attributes it to c.pnuemonia. Which I tested postive for. He also desribes a spring fall pattern which I also have. His site is interesting reading because he is a microbiologist. He describes progress monthly.
Posted by Pantsinsocks (Member # 7440) on :
Cleo, That's interesting, because I have C. pneumoniae too. I'll check out that site.
Its good the see these replies...glad to know others in same boat, at least !
Posted by dontlikeliver (Member # 4749) on :
Yes, I have that and have had it for 15 years.
DLL
Posted by paige1 (Member # 7486) on :
I too notice the same thing... my energy is at its worst in the morning, then again in the afternoon. But late at night (around 10) is when I have an energy surge and is the only time I can get some housework done. Could it be related to the adrenal cycle?
Also, I too notice the sun and heat causing an increase in symptoms. I spent one week on vacation in Wis in August and sat outside every day. By the end of the week I was really sick. I'd read that Lyme can have a negative effect on porphyrin regulation, which will get worse when exposed to sunlight.
Posted by paige1 (Member # 7486) on :
I too notice the same thing... my energy is at its worst in the morning, then again in the afternoon. But late at night (around 10) is when I have an energy surge and is the only time I can get some housework done. Could it be related to the adrenal cycle?
Also, I too notice the sun and heat causing an increase in symptoms. I spent one week on vacation in Wis in August and sat outside every day. By the end of the week I was really sick. I'd read that Lyme can have a negative effect on porphyrin regulation, which will get worse when exposed to sunlight.
Posted by bg2711 (Member # 1865) on :
I have had lyme for over 13 years and I have noticed the same thing. Sunlight makes me worse. Even if I am not out in it, I feel worse on sunny days. I am much better in the evenings and also have more energy. I am also better on rainy cloudy days. There is definately a pattern.
Barb
Posted by AlisonP (Member # 7771) on :
Thank you to whoever mentioned C. Pneumoniae!
I was perusing the list of clinical tests to get from the immed.org site, and that was #2 on the list. They list