quote:

---

Originally posted by lou:
This is where both Klempner and Steere worked before they were kicked upstairs, to Boston U and Harvard respectively.

---

Just as I suspected.

Golden Rule around here....beware of any major clinics or hospitals...They know nothing about Lyme.

The one exception would be Columbia. [would someone please post the full name of that institution?]
 

---

Posted by timaca (Member # 6911) on :
 
Columbia University Medical Center.

Is that what you wanted, Lymetoo??
 

---

Posted by newdurham77 (Member # 7815) on :
 
Mass General Hospital diagnosed people without positive tests (clinical) and put patients on IV for 4 months. It's true, it is not the years of treatment some LLMDs practice, but they do treat based on symptomps.

Besides, with a medical center like that you get the benefit of other specialtied (cardiology, neurology). Remember, there are other diseases except lyme...

Yes, I know, Steer is at MGH as well, but he doesn't run the place. Both me & my gf are getting treated by dr J in NC through a VERY understanding PCP at MGH.
 

---

Posted by Julie-MA (Member # 5110) on :
 
Several months into what my son's ped. correctly diagnosed as Lyme, the Lyme "specialists" at Tufts New England Medical Center's Floating Hospital for Children examined him for a rash (evidently not knowing that it only occurs 50% of the time and rarely several months into the disease), ran the ELISA which was of course neg. (even though he had a pos. Western Blot), and said that my three year's periodic inability to walk was GROWING PAINS!

He has since been treated by Dr. J in CT and beyond just an appropriate clinical diagnosis and positive WB, he also tested positive for the DNA of the Lyme bacteria, makign his diagnosis unequivocal.

I feel very vehemently (I am sort of fuming as I even write this!!) that a visit to that hospital will be a waste of time and could even hinder your health. A big part of me has wanted to sue them, though I know that it would never make a difference.

Julie
 

---

Posted by Foggy (Member # 1584) on :
 
Julie, you and me both. I left that place so dejected and bemused.

I resent the way I was treated and loath the fact that this so-called specialist told me I couldn't possibly have Lyme before I had given my history or serology.

Folks, this is why it is CRITICAL that the Columbia Center reach its funding goals ASAP. Having a dedicated Lyme & tick bourn illness research center at a respected academic hospital will make a MAJOR statement. It will give credibility to our cause and thwart the elitist ducks who potificate about the dirth of credibe published research by our "camp."

[ 07. October 2005, 10:12 AM: Message edited by: Foggy ]
 

---

Posted by lou (Member # 81) on :
 
You are so right foggy. I am biting my nails everyday about getting that center up and running. Why has it taken so long to collect what is a relatively modest amount of money in the world of charitable giving.

Don't know the reason for your question jim, but an evaluation for lyme, if not treatment, is apparently possible at Columbia now.

Glad to hear that Mass Gen is doing something right. Maybe in another hundred years they will get it all right as far as lyme is concerned. And if this is happening, why are lyme docs around the country still being targeted?
 

---

Posted by Lymetoo (Member # 743) on :
 

quote:

---

Originally posted by timaca:
Columbia University Medical Center.

Is that what you wanted, Lymetoo??

---

Yep, if that's the one that knows Lyme and what to do about it!!! Thanks!!
 

---

Posted by timaca (Member # 6911) on :
 
Their web site is www.columbia-lyme.org
 

---

Posted by jimw (Member # 3111) on :
 
Thanks everyone...they decided not to go to Tufts.
 

---

Posted by Lymetoo (Member # 743) on :
 

quote:

---

Originally posted by jimw:
Thanks everyone...they decided not to go to Tufts.

---

Good move!!
 

---

Posted by Foggy (Member # 1584) on :
 
Ditto!
 

---